It suck I don't understand this disease I'm always tired sleepy can't concentrate really I'm just frustrated with everything now
Scarodosis: It suck I don't understand this... - SarcoidosisUK
Scarodosis
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Tosha1244
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2 Replies
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Hi
Don't lose faith. Are you being medicated with steroids?
They made my sarcoid enter a dormant state. I get really tired too and I probably have one of the most stressful jobs imaginable.
Keep the faith and push your Doctors
Regards,
Andy
I was diagnosed with this over 9 years ago when they were doing a biopsy on my liver (was an esophageal cancer survivor and they initially thought that it was mets), I was thrilled that it was sarcoidosis but I have not had any treatment for it yet. Sorry that I can not be of help, I do have fatigue but I never even thought that the sarcoidosis was involved as I have other medical conditions but it could be a factor.
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