Scarodosis: It suck I don't understand this... - SarcoidosisUK

SarcoidosisUK

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Scarodosis

Tosha1244 profile image
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It suck I don't understand this disease I'm always tired sleepy can't concentrate really I'm just frustrated with everything now

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Tosha1244 profile image
Tosha1244
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unbreakable profile image
unbreakable

Hi

Don't lose faith. Are you being medicated with steroids?

They made my sarcoid enter a dormant state. I get really tired too and I probably have one of the most stressful jobs imaginable.

Keep the faith and push your Doctors

Regards,

Andy

AoifeMcC profile image
AoifeMcC

I was diagnosed with this over 9 years ago when they were doing a biopsy on my liver (was an esophageal cancer survivor and they initially thought that it was mets), I was thrilled that it was sarcoidosis but I have not had any treatment for it yet. Sorry that I can not be of help, I do have fatigue but I never even thought that the sarcoidosis was involved as I have other medical conditions but it could be a factor.

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