I'm a frantic newby... I was diagnosed this week ..I'm devastated yet relieved it wasn't a cancer diagnosis. I've had cough for possibly fours years now..I didn't notice till last year but my family said they did. Last year I couldn't catch my breath after doing a twenty minute fast walk and panicked...since then I've been going to my gp. Instantly, have had 3 chest infections, have had 3 lots of steroids..but the cough still persists. In the last two weeks I've had a PET scan, EBUS test, ct scans and usual bloods and urine.
I was told that I have severely scarred lungs and only 46% lung capacity.. this has freaked me out a I still have no treatment as the docs have said they will call me back in 4 weeks to decide on treatment.
The day after the EBUS I have developed a seriously bloodshot eye. I have also developed lumps all over the body in the last 3 months.
Does have anyone have any advice for me about anything..?
I wish everyone with this condition all the best. X