Posts - SarcoidosisUK | HealthUnlocked

SarcoidosisUK

428 members • 62 posts

Sort posts by:

Olfactory Hallucinations

Hello everyone. I’m experiencing Olfactory Hallucinations. I cannot tell you how annoying this is to smell something that’s not there. Is anyone else...

Hello everyone. I’m experiencing Olfactory Hallucinations. I cannot tell you how...

•2 months ago

Be the first to reply

New Member

Hi Joined today. Now approx 14 years post sarcoidosis, with some lung fibrosis, otherwise ok. Ask me anything.

Hi Joined today. Now approx 14 years post sarcoidosis, with some lung fibrosi...

•4 months ago

23 Years w/ Multi-system Chronic Sarcoid

Hello all, I was happy to find this support group, thank you for allowing me to join. I hope to learn new info about sarc, its treatments, and from others...

Hello all, I was happy to find this support group, thank you for allowing me to ...

•1 year ago

Be the first to reply

Want to take advantage of all our features? Just log in!

or

Sarcoid attack help needed

Wife’s having a sarcoidosis attack on chest limph nodes, consultant offered steroids but she also has type 2 diabetes, low iron and menopause any help for her...

Wife’s having a sarcoidosis attack on chest limph nodes, consultant offered ster...

•2 years ago

Be the first to reply

I’m new here I was in a sarcoidosis group sponsored by NIH as Bears Mom

Thank you so much for welcoming me into the group. The NIH group I was a member of well I’m not able to find it on line, but it was so beneficial to me....

Thank you so much for welcoming me into the group. The NIH group I was a member ...

•3 years ago

Be the first to reply

Sarcoidosis USA

I’m relatively new to the group so I’m very familiar with sarcoidosis because I was diagnosed with this horrible disease in 2006. I had pulmonary sarcoidosis...

I’m relatively new to the group so I’m very familiar with sarcoidosis because I ...

•3 years ago

Be the first to reply

Active?

So is this community still active? I’m noticing there aren’t many posts or responses.

So is this community still active? I’m noticing there aren’t many posts or respo...

•4 years ago

Hello everyone, new to group

I have seen numerous doctors etc and they all tell me different things as to what is wrong with me - so I then do my own research and take control rather than...

I have seen numerous doctors etc and they all tell me different things as to wha...

•4 years ago

Sarcoidosis in stomach

Anyone have any symptoms of stomach pain through there sarcoidosis my wife was diagnosed Three years ago and has been ok for about 18 months but is now...

Anyone have any symptoms of stomach pain through there sarcoidosis my wife was d...

•4 years ago

Blood test results

Good afternoon I am still on the journey of being diagnosed with Sarc, ct chest scan came back with a shadow that’s going to be investigated. Awaiting brain...

Good afternoon I am still on the journey of being diagnosed with Sarc, ct chest...

•4 years ago

Can sarcoidosis return after many years?

I was diagnosed with sarcoidosis in 2007 and it lasted until 2010. By then I had put all my lost weight back on and a CT scan confirmed that it had cleared up....

I was diagnosed with sarcoidosis in 2007 and it lasted until 2010. By then I had...

•4 years ago

Neurosarcoidosis, does anyone have any experience of this frustrating condition?

Has anyone ever suffered with neurosarcoidosis, my ACE blood test came as 64 & it should of been 50. Doc sent me for chest X-ray thankfully it came back clear....

Has anyone ever suffered with neurosarcoidosis, my ACE blood test came as 64 & i...

•4 years ago

Confirmation of Sarcoidosis

I have Giant Cell Arteritis (in remission) and Polycythemia. I am taking Prednisone and Hydroxycarbamide. However over the past 18 months I have developed...

I have Giant Cell Arteritis (in remission) and Polycythemia. I am taking Prednis...

•4 years ago

Scared

I think I have Sarcoidosis and I am petrified. I have a tattoo that I've had for 5 years. It has a few rough areas feels like goosebumps and 1 or 2 pimple...

I think I have Sarcoidosis and I am petrified. I have a tattoo that I've had fo...

•5 years ago

Do you sometimes have horrible 'pins and needles' at the tips of your fingers?

This is nothing to do with my other health conditions! I have had 'pins and needles' at the tips of my fingers three times in the past months. It is horrible...

This is nothing to do with my other health conditions! I have had 'pins and nee...

•5 years ago

Sarcoidosis of lymph nodes

I have sarcoidosis of lymph nodes in neck region.that nodes does not pain . They only grow .i had sarcoidosis when I 12 years old . I also had operation at...

I have sarcoidosis of lymph nodes in neck region.that nodes does not pain . They...

•6 years ago

Is there any treatment on sarcoidosis and for which age group?

•6 years ago

Son with Sarcoidosis and lymphadenopathy

My son is 35 and was diagnosed with Sarc about 10 years ago. It started after he had a bad chest infection, he also has asthma. At first it was treated as a...

My son is 35 and was diagnosed with Sarc about 10 years ago. It started after he...

•6 years ago

Living with Sarcoidosis for as long as I can remember.

I was diagnosed April 1986 after a doctor looked at my xrays and told me my lungs look like they were full of paint. When my Daughter was born in Oct of 1972 I...

I was diagnosed April 1986 after a doctor looked at my xrays and told me my lung...

•7 years ago

Shirlme

I am new and live in USA. I have never known anyone with sarcoidosis. I have a niece who has lupus. They diagnosed me with sarcoidosis due to enlarged lymph...

I am new and live in USA. I have never known anyone with sarcoidosis. I have a...

•7 years ago

my name is ian

my sons mother found out two weeks ago by chance as she was coughing a lot and was admitted two hospital,she had a disease which was attacking her lungs,she...

my sons mother found out two weeks ago by chance as she was coughing a lot and w...

•7 years ago

my name is ian and my sons mother is very ill

my sons mother found out two weeks ago by chance as she was coughing a lot and was admitted two hospital,she had a disease which was attacking her lungs,she...

my sons mother found out two weeks ago by chance as she was coughing a lot and w...

•7 years ago

Be the first to reply

Steroids

Hello everybody , after blood tests and x ray , i have been diagnosed with chronic sarcoidosis. I am on steroids now for 1 month and i am getting very better...

Hello everybody , after blood tests and x ray , i have been diagnosed with chron...

•7 years ago

Forum Update

This forum is operational and monitored by SarcoidosisUK (formerly SILA). You can also join our active SarcoidosisUK Facebook page:...

This forum is operational and monitored by SarcoidosisUK (formerly SILA). You ca...

SarcoidosisUKTeam

•7 years ago

Be the first to reply

Is this site still operational? No one seems to be on it?

Is anyone out there?

Is anyone out there?

•7 years ago

Be the first to reply

Scarodosis

It suck I don't understand this disease I'm always tired sleepy can't concentrate really I'm just frustrated with everything now

It suck I don't understand this disease I'm always tired sleepy can't concentrat...

•7 years ago

Is this site closed

Hi anyone here? No one seems to come on this site anymore it's such a shame x

Hi anyone here? No one seems to come on this site anymore it's such a shame x

•7 years ago

Stage 3 of sarcoidosis

My father has had sarcoidosis for about the last three years but I don't really know that much about this illness the consultant just tell us about the bloods...

My father has had sarcoidosis for about the last three years but I don't really ...

•7 years ago

A new diagnosis of chronic pulmonary sarcoidosis!

Hello all, I'm a frantic newby... I was diagnosed this week ..I'm devastated yet relieved it wasn't a cancer diagnosis. I've had cough for possibly fours...

Hello all, I'm a frantic newby... I was diagnosed this week ..I'm devastated ye...

•7 years ago

Sarcoidosis - I'm new

Is anyone using steroid creams on the face to deal with sarcoidosis outbreaks upon the advice of their GP? Can sarcoidosis be found on the scalp? I have had...

Is anyone using steroid creams on the face to deal with sarcoidosis outbreaks up...

•7 years ago

Write a post or ask a question

Search posts

Latest poll

What are your symptoms of sarcoidosis ?

Topics

All things SILA(0)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Feb

Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan

Feb

Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2022

Jan

Mar

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2021

Jan

Feb

Mar

Apr

May

Aug

Sep

Oct

Dec

2020

Feb

Apr

Jun

Jul

Aug

Oct

Nov

Dec

2019

Jan

Feb

Mar

Apr

May

Jun

Aug

Sep

Nov

2018

Jan

Mar

Apr

May

Aug

Sep

Nov

Dec

2017

Apr

Jun

Jul

Aug

Nov

2016

Jan

Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan

Mar

Apr

May

Jun

Jul

Aug

Sep

Oct

Dec

2014

Jan

Feb

Mar

Apr

May

Jun

Jul

Sep

Oct

Nov

Dec

2013

Jan

Feb

Mar

Apr

May

Jun

Jul

Aug

Sep

Oct

Dec