New way to make new antibiotics---cheaply, too!
shannielars7 months ago
Found this article in another group today:
Scientists stumble across new method of making antibiotics
12 July 2017 Salford, The University of
2 Replies1 Like
Sinus surgery and septoplasty
Beek457 months ago
Hi everyone. I am booked in for sinus surgery and septoplasty. I need to know how long recovery is (I have heard 6 weeks!) And how painful i...
shannielars8 months ago
62 years old, PCD with SI and polysplenia. Have a 66yo sister PCD/SI, too. Normal sister and brother as well. On oxygen 24/7, currently l...
Can a PCD SIT patient adopt a dog?
AnjalMehta8 months ago
Hey! I know this is very random but i was hoping you could help me with this problem.
I'm planning to adopt a dog and i have PCD SIT i.e a m...
JacquiSmith9 months ago
My son is 3 years old and has situs inversus. When he was tested for pcd at 3 months old the results came back that he had some...
5 Replies1 Like
has pet puppy made son's chest worse?
Carolanne19079 months ago
I am new to this website. I am looking for some advice please? My son has PCD and has recently been admitted to hospital d...
Post surgery blues.
Simmilou93a year ago
My mum had sinus surgery a little over two years ago and since has lost most of her smell and taste due to nerve damage so will never regain...
VX-371 Clinical trial
Karloa year ago
I'm posting this in case anyone is interested in participating in a clinical trial for developing new treatment. The details are in the link...
shedevil49a year ago
Has any of you had costocondritis I've had it since Xmas I can't do anything cos the pain affects my breathing? If any of you have any hints...
PCD Adult Service in Cumbria?
windlea year ago
My son is 23 and was diagnosed with PCD at 13. Last year was his best as he was on Azithromycin 3x a week. As soon as he stopped he is h...
Athritic pain and PCD
Iram_saa year ago
I'm on prophylactic antibiotics (co-amoxiclav) and have been on them for over two years then take other rescue drugs when an infection fl...
Nasal brush sample still has heavy bacterial load?
Mpmca year ago
Just had feedback on the third brush, previous 2 were equivocal for abnormal function after culture..with slightly reduced frequency. What's...
Recessive genetic condition?
toothfairy44a year ago
Hi, Our son Josh was diagnosed with PCD soon after birth. He is now eight years old. He has received excellent multidisciplinary care countr...
shelleymasha year ago
Does anyone with little ones who are on coamoxiclav suspension regularly, find they have stained teeth?
My poor girl brushes her teeth religi...
An interesting article about where we're at with CRISPR. Very exciting stuff.
Travel nebuliser recommendations
Okay, next question- does anyone have a travel nebuliser that they are happy with and would recommend? (for 6 year old, saline only at this...
Hi, I've recently been issued a nebuliser and told to do saline nebuliser once a day when my daughter is ill.
My question is, is there such ...
Is atelectasis a common problem with people who have bronchiectasis and have primary ciliary dyskinesia?
fcfilicea year ago
I was told by my doctor that I had atelectasis which was observed on a chest x-ray located in the area where I had past pneumonia when I wa...
When do you know when you need to see a doctor?
KayErina year ago
So my daughter is 3 and a half she was diagnosed around 4months so i should know what im doing! I was just wondering when you feel you/your ...
Hi everyone! I'm new to the forum but not to PCD. I've been diagnosed with PCD as a child, at the age of 13, currently I'm 32 years old now....
PCDWIFEa year ago
Paul's consultant has said the next step is a lung transplant. Has anyone on here had one or know any one that has had one for PCD? He's ...
PCDmamaa year ago
My 3 year old son's doctor is recommending sinus surgery to open up the drainage passages for more efficient draining. Have any of you with...
Having a tough time.
I'm really struggling at the moment, my husband has taken a turn for the worse with his condition and has been on constant IV's in the ho...
dmacheta1a year ago
Hi would appreciate advice on hypertonic nebulisers. Is it something that is routinely prescribed in adult patients with PCD? I have been on...
Ill health retirement
I've just signed up and looking for some advice and help. I've been teaching for 17 years now (I know some may say risky with scho...
Hi I am 52 years old finally diagnosed with PCD after persisting for 26 years to get a diagnosis!
I have been colonised with pseudomonnas fo...
Physio for 3yr old
My daughter was diagnosed with PCD at around 5months but as shes getting older im finding physio harder she either doesnt want to do it or t...
Gastrointestinal problems PCD
Grace9614a year ago
I am currently awaiting genetic results for PCD. I had neonatal distress and I am under the Rotal Brompton. I had a lung op at 18 and si...
Pcd and cystic fybrosis
Chrisjudya year ago
Hi is it possible that my child could have pcd and cystic fibroses becouse his doctor did genetic tests on him and this is what she said is ...
16 year old can't accept his diagnosis
Caz3283a year ago
My 16year old son was diagnosed with PCD 3 weeks ago. He is finding it extremely hard to accep it. In fact he says he just doesn't want to. ...
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