Unwilling Staff and Principle
GwenVG7 days ago
I have a 504 plan and I’m a junior in high school. I’ve had one since 7th grade because I’m absent a lot. Not only do i have PCD but I have ...
PCD and IVF Funding
Freddo_821 days ago
I was hoping to get some advice from anyone that might be or have been in a similar situation to us please. I’m 29 and my husband is 3...
Marieduns21 days ago
Hi. My son got the cilia biopsy last week to test for PCD. It was very traumatic for him ( and me) the firt time was bad enough but he had t...
Bronchoscopy ... anyone had one?
Helzapopina month ago
I have just had a call from the chest clinic at my local hospital wanting me to go for a bronchoscopy next week. I’m really nervous a...
Sinus Infection Won’t Go Away!
GwenVGa month ago
I’ve been battling a sinus infection for the past 2 weeks and it won’t go away. I called my doctor and he prescribed me 14 days of augmentin...
New to the forum.
aishatua month ago
Hello everyone. I am new to the forum although my daughter was diagnosed with PCD around 5 years ago. It is only now that I am finding I nee...
Heath + Tech + PCD
N1232 months ago
I hope everyone is keeping well
I'm interested in technologies that fellow PCDers are using to keep well or manage their conditi...
Emma_823 months ago
We recently had a bit of shock and found out we are expecting a baby. It's very early days and we have an early scan booked next week as I'm...
Living with PCD
GwenVG3 months ago
Hi, My Names Gwen and I'm 16 years old. And 6 years ago I was diagnosed with Secondary Ciliary Dyskinesia.
My whole childhood I couldn't do ...
Our baby has PCD
Jpeas3 months ago
Are there any parents on here with babies that have PCD. Olivia is 6 months old
We found out she has situs inversus after her sats were 82 a...
Rubymae02064 months ago
Our daughter has just been diagnosed with the condition after 9 long years of being told 'she's just a kid with a runny nose!'
We have been ...
Missing School Again!!!
Mummy044 months ago
Harrison who is 13 has an average school attendance of 64%
Due to 2 week courses of IVs , hospital appointments and generally feeling u...
FPolly5 months ago
Does anyone else suffer with their ears alllll the time?
I had an op about 13 years ago and unfortunately was un successful. An...
Primary ciliary dyskinesia: mechanisms and management
N1235 months ago
A research paper outlining mechanism and management of PCD.
Happy readings x
Port A Cath
Mummy045 months ago
My son Harrison is 13 and had a port fitted when he was 3 for regular IV's ( every 3 months for 2 weeks ) . He is just about ...
Danni9105 months ago
Morning all! Hope everyone is as well as can be expected!
I’m 33 with PCD. Unfortunately for me, it was a late diagnosis and as a result I ha...
8 Replies1 Like
Stage II COPD
Karlo5 months ago
I went to my pulmo specialist the other day and had the spirometry test done.
The important digits are
FREE WEBINAR TONIGHT!
Participate in a live webinar
As part of Primary Ciliary Dyskinesia Week at the ATS, and in conjunction with PAR partner, the PCD Foundation,...
Starting a family
FPolly6 months ago
I myself have PCD. My husband and I are trying to start a family.
We knew that IVF would have to be the only option for us, but we have ...
17 Replies1 Like
Flu season is upon us.
N1236 months ago
If you live in England and have a long term condition (e.g. lung disease) then you should be able to get a flu jab on the NH...
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Primary ciliary dyskinesia: Myths and realities
2 Replies1 Like
Extreme sneezing typical of PCD?
Mpmc6 months ago
I asked my daughter's doctor this before, but was told it was likely due to allergy. Yes she does have known allergies, and her reaction is ...
Need A Little Advice
Sam_306 months ago
Just want an opinion on this.
I currently stopped taking my contraceptive pill. I was on the mini pill and was to take it everyday meanin...
fcfilice6 months ago
I just purchased an Aerobika device today. I decided to treat myself for my birthday and I was as happy as a person purchasing a kitchen app...
3 Replies1 Like
PCD & heart problems
Hidden6 months ago
Hi anyone know if PCD has any link with heart problems?
Baynajarian6 months ago
Hi I am a college age girl with PCD and Situs Inversus. I have never talked to anyone that has the same disease. There is a lot I would like...
LOOKING FOR FRIENDS WHO HAVE PCD AS WELL
AnjalMehta6 months ago
hey! so i was wondering if anyone would like to be friends who share the same condition as i do i.e pcd sit. we could talk about it and get ...
KayErin7 months ago
Hi my daughter is starting school next week shes 4 and has PCD was diagnosed around 4months old. I have always stuck to a strict physio rout...
5 Replies1 Like
Please help me assess my child symptomatically if he has pcd
GowriSivakumar7 months ago
After having battled for 5 years with my son's condition, iam here to see if I I will be able to find out some information abou...
Worried Mom of 2 yr old boy with PCD
Ebearsmom7 months ago
Hi my 2 yr old son has PCD was diagnosed genetically when he was 6 weeks old, he has had growth and weight gain issues as well and has a ent...
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