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PCD Family Support Group (UK)
340 members164 posts

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Genetic test for pcd

My daughter is 2 and has been medically diagnosed with pcd while waiting for gen...

chest physiotherapy

hello,i have 7years old son and last week geneticist dr call me and told your so...

is pari sinus facility useful for sinusitis without antibiotics?

hi i have 7 years boy.when he was 5 he started to exit weird thick discharge (mo...

Rough Few Months

I haven’t been here on a while, and quite a lot has happened. I’ve been getting ...

Pregnancy

Hi is anyone diagnosed with PCD plus has kids , also was it difficult to have ki...

Baby

Hi is anyone diagnosed with PCD plus has kids , also was it difficult to have ki...

Natural remedies

Hi, does anybody have any natural remedies they use to help clear the lungs and ...

American Lung Association Fundraiser

https://m.facebook.com/donate/2209445562676920/?action_type=invite&fundraiser_so...

IVF with ICSI

Hi, My husband has PCD and we have recently gone through a failed round of IVF ...

Baby

Hi, I posted previously about being pregnant. Just to say that our baby girl ar...

Question

Does anyone with PCD or that has a family member with it get dizzy/light headed ...

Aorta getting larger?

Hi, I just got a message that my descending aorta has increased in size which ha...

Help

Has anyone had to take sodium chloride before??? Via nebulizer/inhalation

Reoccurring costochondritis

I was diagnosed with Costochondritis a few months back and I have it again. I ha...

Hospital?

My aunt was recently sick and I caught her cold. I can’t breathe out of my nose ...

Claiming PIP

Hi all, I have just received my letter about claiming PIP, I have always receive...

Sternum Pain

I’ve been having constant sternum pain for the past few months. I have acid refl...

Local clinic

I have brought my daughter to Loughborough. I believe I heard there was a local ...

Ciliary dyskinesia? Allergies? Who knows?!?!

I am a mom of 20 month old twins. Focusing on Baby B. Baby B was born c section ...

Mouthbreathing

Does anyone have experience of mouthbreathing? My 8 year old mouthbreaths and al...

Salt Spa

Has anyone used halo therapy as a form of preventative care? My daughter has be...

School Troubles

My last post was about my school, and now this is just an update. Honestly not...

PCD without cough?

Does anyone have PCD without breathing issues or a persistent cough? My son has ...

Pseudomonas since before Christmas

Hi everyone, My daughter ( she'll be 4 tomorrow) had sputum collected just befor...

C-section & coughing

Just pondering the above. I'm not due until July but was thinking about birth th...

Unwilling Staff and Principle

I have a 504 plan and I’m a junior in high school. I’ve had one since 7th grade ...

PCD and IVF Funding

Hello, I was hoping to get some advice from anyone that might be or have been in...

Cilia Biopsy

Hi. My son got the cilia biopsy last week to test for PCD. It was very traumatic...

Bronchoscopy ... anyone had one?

Hi all I have just had a call from the chest clinic at my local hospital wantin...

Sinus Infection Won’t Go Away!

I’ve been battling a sinus infection for the past 2 weeks and it won’t go away. ...
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