Posts - PCD Family Support Group (UK) | HealthUnlocked

PCD Family Support Group (UK)

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Glue ear leaking

Hi,I have glue ear in my left ear, for quite a while it has been oozing a thick...
Chrissie82 profile image

Advice on Dextrocardia standard checks

Hello, and thanks in advance for any assistance. A long time ago now, we were l...
DextroBaby profile image

My Mother, part 2, 2000

My mother was one of 15 centenarians invited in year 2000 to St Paul’s for Queen...
Morrison10 profile image
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Pregnancy and childbirth modality

Hi everyone, I'm Ana Carolina from Brazil and I have a doubt: anyone with PCD di...
Ana_Amorim profile image

Breathlessness

Hi, For the past few days I have been extremely breathless, the doctor is treati...
Chrissie82 profile image

Azithromycin and Group Practices

My Consultant knows that I’ve had bad infected two years. Now I’ve got rid of ps...
Morrison10 profile image

Adults with PCD & hearing issues

Does anyone here (adults) with PCD have trouble with their ears? I had grommet...
C9RPY profile image

Question about communities from an outsider

Hello, Other than this forum, what 'communities' (forums, chat groups, meetups)...
Galaz profile image

URGENT Pneumonia

does anyone worry about flying with PCD? i have pneumonia right now. Do you thin...
Baynajarian profile image

post nasal drip

has anyone heard of post nasal drip? I have it and it’s severe on off all day an...
FrankiePugg profile image

RSPH4a Radial spoke

Good evening. Does anyone have mutations in the RSPH4a gene? I would like to hea...

I.v. antibiotics administered at home

I’m going to QE Hospital Birmingham tomorrow to be set up for Two i.v. Antibioti...
Morrison10 profile image

Pcd and Ataluren

Good evening.I read about research on the use of the drug Ataluren for the treat...
Olja profile image

4th jab

I’ve had letter telling me to book 4th jab. As I’m having a nurse come to my ho...

Spring Booster

Does anyone know yet if we are included in the group that will be having this bo...
Iram_sa profile image

Stopping Azithromycin after 25 years

Anyone else been told to stop their alternate day dose of Azithromycin due to co...
cmpfhorn profile image

Pcd and parents

Hello Everyone. My daughter was diagnosed with PCD half a year ago. Since then, ...
Olja profile image

Lung infection

Hi, can a lung infection go on from 2020 to date? I have a face to face with Bro...
FrankiePugg profile image

Covid

Good evening. Husband and I had Covid 7 days ago, now we are negative. Our daugh...
Olja profile image

Appointment with Brompton hospital london

Hi, I have an video appointment on Monday with Brompton. Are they good? Are the...
FrankiePugg profile image

PCD

Is this a considered to be a serious illness?

PCD

What does PCD stand for? Thank you
FrankiePugg profile image

Hello, I’m new here my Name is nicola

I will have to start taking azithromycin 3 times a week as I have had 5 chest in...
FrankiePugg profile image

HAPPIER NEW YEAR. to everyone

Let up hope and pray that 2022 will be better than last year
Morrison10 profile image

NHS PCD Service Specification

Could I ask if members of this forum are receiving the services specified, where...
Morrison10 profile image

PCD poem

Cilia, little hairs, you are so important Little hairs why don’t you move Ther...
Morrison10 profile image

Azithomycin

I read that some with PCD are on constant 3 day courses of azithomycin. Do you ...
Morrison10 profile image

Has anyone had problems booking a 3rd vaccination or a booster? Apparantly I am not ' eligible' but have PCD!

Has anyone had problems booking a 3rd vaccination or a booster? Apparantly I am ...
Chrissie82 profile image

Pcd rsph4a compound heterozygosity

Hello. My daughter is 2 years and 4 months old and genetic testing has determine...
Olja profile image

Masks,iv etc

During the war falling debris flattened and moved my nose, I cannot breath very ...
Morrison10 profile image
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