Chrissie82a month ago
Hi, does anybody have any natural remedies they use to help clear the lungs and keep you well? I used to swear by a company called Oralmat t...
American Lung Association Fundraiser
GwenVG2 months ago
Help me raise money for my birthday to donate to the American Lung...
IVF with ICSI
americanuser3 months ago
My husband has PCD and we have recently gone through a failed round of IVF with ICSI. His sperm are not motile, and I'm concerned that i...
Emma_823 months ago
I posted previously about being pregnant. Just to say that our baby girl arrived a few weeks back, all fine and healthy, she's doing rea...
6 Replies1 Like
Baynajarian4 months ago
Does anyone with PCD or that has a family member with it get dizzy/light headed often?
Aorta getting larger?
PetraK4 months ago
Hi, I just got a message that my descending aorta has increased in size which has increased between CT scans. My question is whether this is...
Has anyone had to take sodium chloride before??? Via nebulizer/inhalation
GwenVG4 months ago
I was diagnosed with Costochondritis a few months back and I have it again. I have just been having severe sternum pain. I haven’t been coug...
GwenVG5 months ago
My aunt was recently sick and I caught her cold. I can’t breathe out of my nose and can definitely tell I have a fever. I cannot sleep for t...
Chrissie826 months ago
I have just received my letter about claiming PIP, I have always received disability benefit, have other people had success with clai...
GwenVG6 months ago
I’ve been having constant sternum pain for the past few months. I have acid reflux but this doesn’t feel like that. My sternum cracks a lot ...
KellyNeal7 months ago
I have brought my daughter to Loughborough. I believe I heard there was a local PCD clinic. I’m interested to hear from anyone local, which...
Ciliary dyskinesia? Allergies? Who knows?!?!
Sstevens847 months ago
I am a mom of 20 month old twins. Focusing on Baby B. Baby B was born c section and immediately had respiratory issue and 16 days in NICU. O...
BessH7 months ago
Does anyone have experience of mouthbreathing? My 8 year old mouthbreaths and always has done. Since her pcd diagnosis and our awareness of ...
Has anyone used halo therapy as a form of preventative care? My daughter has been using sodium chloride through her nebulizer for many year...
GwenVG7 months ago
My last post was about my school, and now this is just an update.
Honestly nothing has changed and I fear that nothing will. My mother is fi...
PCD without cough?
mwinger7 months ago
Does anyone have PCD without breathing issues or a persistent cough? My son has had sinus issues since he was born but has never been diagno...
Pseudomonas since before Christmas
Luci817 months ago
My daughter ( she'll be 4 tomorrow) had sputum collected just before Christmas last year and came back she had pseudomonas. She ...
C-section & coughing
Emma_828 months ago
Just pondering the above. I'm not due until July but was thinking about birth the other day and wondered if anyone here who's had a baby has...
Unwilling Staff and Principle
GwenVG8 months ago
I have a 504 plan and I’m a junior in high school. I’ve had one since 7th grade because I’m absent a lot. Not only do i have PCD but I have ...
PCD and IVF Funding
Freddo_89 months ago
I was hoping to get some advice from anyone that might be or have been in a similar situation to us please. I’m 29 and my husband is 3...
Marieduns9 months ago
Hi. My son got the cilia biopsy last week to test for PCD. It was very traumatic for him ( and me) the firt time was bad enough but he had t...
Bronchoscopy ... anyone had one?
Helzapopin9 months ago
I have just had a call from the chest clinic at my local hospital wanting me to go for a bronchoscopy next week. I’m really nervous a...
Sinus Infection Won’t Go Away!
GwenVG9 months ago
I’ve been battling a sinus infection for the past 2 weeks and it won’t go away. I called my doctor and he prescribed me 14 days of augmentin...
New to the forum.
aishatu9 months ago
Hello everyone. I am new to the forum although my daughter was diagnosed with PCD around 5 years ago. It is only now that I am finding I nee...
Heath + Tech + PCD
N1239 months ago
I hope everyone is keeping well
I'm interested in technologies that fellow PCDers are using to keep well or manage their conditi...
2 Replies1 Like
Emma_82a year ago
We recently had a bit of shock and found out we are expecting a baby. It's very early days and we have an early scan booked next week as I'm...
12 Replies1 Like
Living with PCD
GwenVGa year ago
Hi, My Names Gwen and I'm 16 years old. And 6 years ago I was diagnosed with Secondary Ciliary Dyskinesia.
My whole childhood I couldn't do ...
Our baby has PCD
Jpeasa year ago
Are there any parents on here with babies that have PCD. Olivia is 6 months old
We found out she has situs inversus after her sats were 82 a...
Rubymae0206a year ago
Our daughter has just been diagnosed with the condition after 9 long years of being told 'she's just a kid with a runny nose!'
We have been ...
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