Posts - PCD Family Support Group (UK) | HealthUnlocked

PCD Family Support Group (UK)
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PCD & Fertility

Hi Everyone! Im wanting to get some advice regarding fertility. My boyfriend an...

PCD and Starting Periods

Given the function of cilia in moving eggs along the Fallopian tube is there any...

SUPPORT EACH OTHER

hello! it’s been a while since i used this app. i can’t think this community eno...

Calcified Lymph Node or Granuloma

I had a sinus infection a week ago and began a course of antibiotics. I am now o...

Happy Christmas

I’ve done my own postural drainage for many years, learnt more about it when ha...

Pregnancy worries

Hi I’m 27 recently married and looking to start a family. I’ve lived with PCD my...

Pregnancy

Hi I’m 27 recently married and looking to start a family. I’ve lived with PCD my...

Help!

I’m not going to lie to you all I am bloody struggling by it has been a very ver...

Southampton here i come!

Hi everyone! So, i have an appointment for Southampton in January for the genet...

Love to hear your experiences - the cough that won’t go away!

Hi everyone! We are currently on the wait list cilia testing for my almost 12 mo...

Sinus operation

Hi all, first time on here! I have been diagnosed with PCD and situs invertus si...

PCD/Bronchiectasis and headaches

Hi everyone, I have PCD and bronchiectasis and regularly get headaches which ste...

Anyone from Northern Ireland?

I got diagnosed at age 21 (now 29) after a long battle of chest and sinus infect...

Does anyone know the life expectancy for PCD in the North of England?

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Hi, Any other teens on here with PCD?

Anyone one else on here a teen and diagnosed with PCD or PCD pheno type?

Top tips for 10 year old physio

Two years post-diagnosis twice daily physio is a source of constant conflict bet...

Male Fertility in PCD

Are you an adult male with PCD living in the UK? Have you signed up for this re...

Travel Insurance

Any advice about good Travel Insurance companies to use, what to say /specify s...

Inhalers

I have PCD, my 6 year old son has asthma, I had a puff of his brown inhaler toda...

How many people Has got all

Hi All It’s ok to find out how people there is with Kartagener’s Syndrome ( PCD ...

Genetic screening for carriers of kartingers

Hi, I was told when I was pregnant that my son had dextrocardia with situs inver...

6yr Old Baffling Doctors

Hello. One of my 6yr old twins has always been more susceptible to illness, RSV ...

Anyone of my age on here?

Hi all Just joined the site. I'm trying to locate other PCD / Kartagener suffer...

PCD

I Hi i’m martin I was born in 1967 in Exeter old hospital ( Dean Clark House, ...

PCD maybe my second daughter has it ?

My eldest daughter is 13 and has PCD, her sister is 7 and got tested at 4 for PC...

( Happy Nose Buddy)

hello, has anyone use this?( Happy Nose Buddy)? any experience ? is it work for ...

College

I’ve been accepted to college! As of right now I believe I will be going to coll...

Throat problems

I have been suffering for months now with a swollen, achey, dry throat causing p...

Genetic test for pcd

My daughter is 2 and has been medically diagnosed with pcd while waiting for gen...

chest physiotherapy

hello,i have 7years old son and last week geneticist dr call me and told your so...
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