Danni910a day ago
Morning all! Hope everyone is as well as can be expected!
I’m 33 with PCD. Unfortunately for me, it was a late diagnosis and as a result I ha...
Stage II COPD
Karlo2 days ago
I went to my pulmo specialist the other day and had the spirometry test done.
The important digits are
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FREE WEBINAR TONIGHT!
N1238 days ago
Participate in a live webinar
As part of Primary Ciliary Dyskinesia Week at the ATS, and in conjunction with PAR partner, the PCD Foundation,...
Starting a family
FPolly13 days ago
I myself have PCD. My husband and I are trying to start a family.
We knew that IVF would have to be the only option for us, but we have ...
15 Replies1 Like
Flu season is upon us.
N12316 days ago
If you live in England and have a long term condition (e.g. lung disease) then you should be able to get a flu jab on the NH...
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Primary ciliary dyskinesia: Myths and realities
N12317 days ago
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Extreme sneezing typical of PCD?
Mpmc23 days ago
I asked my daughter's doctor this before, but was told it was likely due to allergy. Yes she does have known allergies, and her reaction is ...
Need A Little Advice
Sam_3024 days ago
Just want an opinion on this.
I currently stopped taking my contraceptive pill. I was on the mini pill and was to take it everyday meanin...
fcfilice24 days ago
I just purchased an Aerobika device today. I decided to treat myself for my birthday and I was as happy as a person purchasing a kitchen app...
3 Replies1 Like
PCD & heart problems
Hiddena month ago
Hi anyone know if PCD has any link with heart problems?
Baynajariana month ago
Hi I am a college age girl with PCD and Situs Inversus. I have never talked to anyone that has the same disease. There is a lot I would like...
LOOKING FOR FRIENDS WHO HAVE PCD AS WELL
AnjalMehtaa month ago
hey! so i was wondering if anyone would like to be friends who share the same condition as i do i.e pcd sit. we could talk about it and get ...
KayErin2 months ago
Hi my daughter is starting school next week shes 4 and has PCD was diagnosed around 4months old. I have always stuck to a strict physio rout...
4 Replies1 Like
Please help me assess my child symptomatically if he has pcd
GowriSivakumar2 months ago
After having battled for 5 years with my son's condition, iam here to see if I I will be able to find out some information abou...
Worried Mom of 2 yr old boy with PCD
Ebearsmom2 months ago
Hi my 2 yr old son has PCD was diagnosed genetically when he was 6 weeks old, he has had growth and weight gain issues as well and has a ent...
Katieamynewbs-953 months ago
Hi I'm 22 and i was diagnosed with PCD and situs inversus as soon as I was born. I was just wondering does anyone suffer with joint pain? I ...
PCD - Do you also feel unusual fatigue and have arthritis symptoms?
SilVale3 months ago
My name is Silvia and I am writing on behalf of my sister who has born with Kartagener syndrome often associated to Primary Ciliary ...
1 Reply1 Like
Just saying hi
Helzapopin3 months ago
Wow, I'm amazed to find this site! How nice to meet you all.
I was diagnosed with Kartageners about 25 years ago and used to have physio a...
New way to make new antibiotics---cheaply, too!
shannielars3 months ago
Found this article in another group today:
Scientists stumble across new method of making antibiotics
12 July 2017 Salford, The University of
Sinus surgery and septoplasty
Beek453 months ago
Hi everyone. I am booked in for sinus surgery and septoplasty. I need to know how long recovery is (I have heard 6 weeks!) And how painful i...
62 years old, PCD with SI and polysplenia. Have a 66yo sister PCD/SI, too. Normal sister and brother as well. On oxygen 24/7, currently l...
Can a PCD SIT patient adopt a dog?
AnjalMehta4 months ago
Hey! I know this is very random but i was hoping you could help me with this problem.
I'm planning to adopt a dog and i have PCD SIT i.e a m...
JacquiSmith5 months ago
My son is 3 years old and has situs inversus. When he was tested for pcd at 3 months old the results came back that he had some...
5 Replies1 Like
has pet puppy made son's chest worse?
Carolanne19075 months ago
I am new to this website. I am looking for some advice please? My son has PCD and has recently been admitted to hospital d...
Post surgery blues.
Simmilou937 months ago
My mum had sinus surgery a little over two years ago and since has lost most of her smell and taste due to nerve damage so will never regain...
VX-371 Clinical trial
Karlo7 months ago
I'm posting this in case anyone is interested in participating in a clinical trial for developing new treatment. The details are in the link...
shedevil497 months ago
Has any of you had costocondritis I've had it since Xmas I can't do anything cos the pain affects my breathing? If any of you have any hints...
PCD Adult Service in Cumbria?
windle8 months ago
My son is 23 and was diagnosed with PCD at 13. Last year was his best as he was on Azithromycin 3x a week. As soon as he stopped he is h...
Athritic pain and PCD
Iram_sa8 months ago
I'm on prophylactic antibiotics (co-amoxiclav) and have been on them for over two years then take other rescue drugs when an infection fl...
Nasal brush sample still has heavy bacterial load?
Mpmc8 months ago
Just had feedback on the third brush, previous 2 were equivocal for abnormal function after culture..with slightly reduced frequency. What's...
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