Posts - PCD Family Support Group (UK) | HealthUnlocked

PCD Family Support Group (UK)

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Anyone experience with ear tubes / grommets?

Hi you all. My boy Thom (now almost 3 yrs old) was diagnosed with PCD when he w...

Anyone similar ?

Hi , my daughter is 12 has had a wet cough (the amount of stuff she coughs up is...

Inhaled tobramycin

Hello, Just curious if anyone has had side effects after starting inhaled tobram...
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Vaccine worries

Hi, Are people with PCD likely to become quite poorly after having the vaccine ...

Situs Inversus Totalis, Bronchiectasis and possible PCD.

Greetings Everyone !!! I am so happy to have found this support group I just cri...

Volara System

My son with Kartagener’s just got approved for the home Volara System by Hillrom...

Pfizer vaccine

I had the jab last Thursday, tender arm for 24 hours, no other side effects. Hav...

Fertility in female pcd patients

hi everyone I am just starting my journey into trying for a baby with my partner...

A

Hi My Name Is Alice I Have a Baby 9 Months Old Her Name Is Mary When She Was Bor...

Covid-19 protection

Was wondering what everyone is doing for covid-19 as far as protection mask or f...

Canadian Support

Does anyone know if there is a support group like this in Canada? I have tried ...

Vaccines

Does anyone know if PCD specialists have considered if there are any reasons wh...

PCD in Babys

I am 20 weeks pregnant and over the past couple of weeks been given the diagnosi...

Does anyone else have this too?

Hi, i have a slightly embarrassing question to ask. I don't know if it's normal ...

Vaccime

I know I am jumping the gun here but if and when a vaccine is available do you t...

New diagnosis

Hi, I was finally diagnosed with PCD yesterday as it came up on the 100,000 geno...

Back to school with PCD

Hi. My Daughter is 11 years old and has Pcd. I am too much stressed cause of sen...

Wearing face mask

For last few years as my lungs have deteriorated and also my sinuses, I have no...

I was wondering if anyone could recommend a good life insurance company/policy for an adult with PCD?

I got a quote from one firm and because PCD was an unknown condition, my quote w...

NHS At Home monitoring

Have come across this press release from the NHS mentioning CF, are we PCD patie...

Covid-19 PCD Survey

Please can you complete this questionnaire to help us understand the impact of C...

Shielding

If we are shielding, does that mean we wont be able to get back to normal life u...

Disability

Does having PCD mean you are considered to have a disability?

Nitrous Oxide as antiviral

My son was diagnosed with PCD last year. One of the diagnostic tests was a measu...

COVID 19

as you all know the world is being badly affected by this pandemic and looking a...

Fertility and PCD

Hi are there any mothers here with PCD. I would really appreciate anyone who can...

Shielding letter in Scotland?

Has anyone with PCD living in Scotland received a shielding letter? My son hasn...

Letters / Shopping

I’ve still not received my letter. Do the letters give any help re booking on-l...

What are the chances ?

Hi , My name is James and i am 37 years old . I was diagnosed with Kartageners w...

12 weekers - letters

Any one had one yet? I thought they would out quite quickly but I've had nothing...
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