Emma_826 days ago
We recently had a bit of shock and found out we are expecting a baby. It's very early days and we have an early scan booked next week as I'm...
Living with PCD
GwenVG7 days ago
Hi, My Names Gwen and I'm 16 years old. And 6 years ago I was diagnosed with Secondary Ciliary Dyskinesia.
My whole childhood I couldn't do ...
Our baby has PCD
Jpeas11 days ago
Are there any parents on here with babies that have PCD. Olivia is 6 months old
We found out she has situs inversus after her sats were 82 a...
Rubymae0206a month ago
Our daughter has just been diagnosed with the condition after 9 long years of being told 'she's just a kid with a runny nose!'
We have been ...
Missing School Again!!!
Mummy04a month ago
Harrison who is 13 has an average school attendance of 64%
Due to 2 week courses of IVs , hospital appointments and generally feeling u...
FPollya month ago
Does anyone else suffer with their ears alllll the time?
I had an op about 13 years ago and unfortunately was un successful. An...
Primary ciliary dyskinesia: mechanisms and management
N1232 months ago
A research paper outlining mechanism and management of PCD.
Happy readings x
Port A Cath
Mummy042 months ago
My son Harrison is 13 and had a port fitted when he was 3 for regular IV's ( every 3 months for 2 weeks ) . He is just about ...
Danni9102 months ago
Morning all! Hope everyone is as well as can be expected!
I’m 33 with PCD. Unfortunately for me, it was a late diagnosis and as a result I ha...
5 Replies1 Like
Stage II COPD
Karlo2 months ago
I went to my pulmo specialist the other day and had the spirometry test done.
The important digits are
FREE WEBINAR TONIGHT!
Participate in a live webinar
As part of Primary Ciliary Dyskinesia Week at the ATS, and in conjunction with PAR partner, the PCD Foundation,...
Starting a family
FPolly2 months ago
I myself have PCD. My husband and I are trying to start a family.
We knew that IVF would have to be the only option for us, but we have ...
15 Replies1 Like
Flu season is upon us.
If you live in England and have a long term condition (e.g. lung disease) then you should be able to get a flu jab on the NH...
Be the first to reply1 Like
Primary ciliary dyskinesia: Myths and realities
N1233 months ago
2 Replies1 Like
Extreme sneezing typical of PCD?
Mpmc3 months ago
I asked my daughter's doctor this before, but was told it was likely due to allergy. Yes she does have known allergies, and her reaction is ...
Need A Little Advice
Sam_303 months ago
Just want an opinion on this.
I currently stopped taking my contraceptive pill. I was on the mini pill and was to take it everyday meanin...
fcfilice3 months ago
I just purchased an Aerobika device today. I decided to treat myself for my birthday and I was as happy as a person purchasing a kitchen app...
3 Replies1 Like
PCD & heart problems
Hidden3 months ago
Hi anyone know if PCD has any link with heart problems?
Baynajarian3 months ago
Hi I am a college age girl with PCD and Situs Inversus. I have never talked to anyone that has the same disease. There is a lot I would like...
LOOKING FOR FRIENDS WHO HAVE PCD AS WELL
AnjalMehta3 months ago
hey! so i was wondering if anyone would like to be friends who share the same condition as i do i.e pcd sit. we could talk about it and get ...
KayErin4 months ago
Hi my daughter is starting school next week shes 4 and has PCD was diagnosed around 4months old. I have always stuck to a strict physio rout...
Please help me assess my child symptomatically if he has pcd
GowriSivakumar4 months ago
After having battled for 5 years with my son's condition, iam here to see if I I will be able to find out some information abou...
Worried Mom of 2 yr old boy with PCD
Ebearsmom4 months ago
Hi my 2 yr old son has PCD was diagnosed genetically when he was 6 weeks old, he has had growth and weight gain issues as well and has a ent...
Katieamynewbs-954 months ago
Hi I'm 22 and i was diagnosed with PCD and situs inversus as soon as I was born. I was just wondering does anyone suffer with joint pain? I ...
PCD - Do you also feel unusual fatigue and have arthritis symptoms?
SilVale5 months ago
My name is Silvia and I am writing on behalf of my sister who has born with Kartagener syndrome often associated to Primary Ciliary ...
1 Reply1 Like
Just saying hi
Helzapopin5 months ago
Wow, I'm amazed to find this site! How nice to meet you all.
I was diagnosed with Kartageners about 25 years ago and used to have physio a...
New way to make new antibiotics---cheaply, too!
shannielars5 months ago
Found this article in another group today:
Scientists stumble across new method of making antibiotics
12 July 2017 Salford, The University of
Sinus surgery and septoplasty
Beek455 months ago
Hi everyone. I am booked in for sinus surgery and septoplasty. I need to know how long recovery is (I have heard 6 weeks!) And how painful i...
62 years old, PCD with SI and polysplenia. Have a 66yo sister PCD/SI, too. Normal sister and brother as well. On oxygen 24/7, currently l...
Can a PCD SIT patient adopt a dog?
AnjalMehta6 months ago
Hey! I know this is very random but i was hoping you could help me with this problem.
I'm planning to adopt a dog and i have PCD SIT i.e a m...
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