Please help me assess my child symptomatically if he has pcd
GowriSivakumar17 hours ago
After having battled for 5 years with my son's condition, iam here to see if I I will be able to find out some information abou...
Worried Mom of 2 yr old boy with PCD
Ebearsmom6 days ago
Hi my 2 yr old son has PCD was diagnosed genetically when he was 6 weeks old, he has had growth and weight gain issues as well and has a ent...
Katieamynewbs-9521 days ago
Hi I'm 22 and i was diagnosed with PCD and situs inversus as soon as I was born. I was just wondering does anyone suffer with joint pain? I ...
PCD - Do you also feel unusual fatigue and have arthritis symptoms?
SilValea month ago
My name is Silvia and I am writing on behalf of my sister who has born with Kartagener syndrome often associated to Primary Ciliary ...
Just saying hi
Helzapopina month ago
Wow, I'm amazed to find this site! How nice to meet you all.
I was diagnosed with Kartageners about 25 years ago and used to have physio a...
New way to make new antibiotics---cheaply, too!
shannielarsa month ago
Found this article in another group today:
Scientists stumble across new method of making antibiotics
12 July 2017 Salford, The University of
Sinus surgery and septoplasty
Beek45a month ago
Hi everyone. I am booked in for sinus surgery and septoplasty. I need to know how long recovery is (I have heard 6 weeks!) And how painful i...
shannielars2 months ago
62 years old, PCD with SI and polysplenia. Have a 66yo sister PCD/SI, too. Normal sister and brother as well. On oxygen 24/7, currently l...
Can a PCD SIT patient adopt a dog?
AnjalMehta2 months ago
Hey! I know this is very random but i was hoping you could help me with this problem.
I'm planning to adopt a dog and i have PCD SIT i.e a m...
JacquiSmith3 months ago
My son is 3 years old and has situs inversus. When he was tested for pcd at 3 months old the results came back that he had some...
has pet puppy made son's chest worse?
Carolanne19073 months ago
I am new to this website. I am looking for some advice please? My son has PCD and has recently been admitted to hospital d...
Post surgery blues.
Simmilou935 months ago
My mum had sinus surgery a little over two years ago and since has lost most of her smell and taste due to nerve damage so will never regain...
VX-371 Clinical trial
Karlo6 months ago
I'm posting this in case anyone is interested in participating in a clinical trial for developing new treatment. The details are in the link...
shedevil496 months ago
Has any of you had costocondritis I've had it since Xmas I can't do anything cos the pain affects my breathing? If any of you have any hints...
PCD Adult Service in Cumbria?
windle6 months ago
My son is 23 and was diagnosed with PCD at 13. Last year was his best as he was on Azithromycin 3x a week. As soon as he stopped he is h...
Athritic pain and PCD
Iram_sa6 months ago
I'm on prophylactic antibiotics (co-amoxiclav) and have been on them for over two years then take other rescue drugs when an infection fl...
Nasal brush sample still has heavy bacterial load?
Mpmc6 months ago
Just had feedback on the third brush, previous 2 were equivocal for abnormal function after culture..with slightly reduced frequency. What's...
Recessive genetic condition?
toothfairy447 months ago
Hi, Our son Josh was diagnosed with PCD soon after birth. He is now eight years old. He has received excellent multidisciplinary care countr...
shelleymash7 months ago
Does anyone with little ones who are on coamoxiclav suspension regularly, find they have stained teeth?
My poor girl brushes her teeth religi...
shelleymash8 months ago
An interesting article about where we're at with CRISPR. Very exciting stuff.
Travel nebuliser recommendations
Okay, next question- does anyone have a travel nebuliser that they are happy with and would recommend? (for 6 year old, saline only at this...
Hi, I've recently been issued a nebuliser and told to do saline nebuliser once a day when my daughter is ill.
My question is, is there such ...
Is atelectasis a common problem with people who have bronchiectasis and have primary ciliary dyskinesia?
fcfilice9 months ago
I was told by my doctor that I had atelectasis which was observed on a chest x-ray located in the area where I had past pneumonia when I wa...
When do you know when you need to see a doctor?
KayErin9 months ago
So my daughter is 3 and a half she was diagnosed around 4months so i should know what im doing! I was just wondering when you feel you/your ...
Karlo10 months ago
Hi everyone! I'm new to the forum but not to PCD. I've been diagnosed with PCD as a child, at the age of 13, currently I'm 32 years old now....
PCDWIFE10 months ago
Paul's consultant has said the next step is a lung transplant. Has anyone on here had one or know any one that has had one for PCD? He's ...
PCDmama10 months ago
My 3 year old son's doctor is recommending sinus surgery to open up the drainage passages for more efficient draining. Have any of you with...
Having a tough time.
I'm really struggling at the moment, my husband has taken a turn for the worse with his condition and has been on constant IV's in the ho...
dmacheta110 months ago
Hi would appreciate advice on hypertonic nebulisers. Is it something that is routinely prescribed in adult patients with PCD? I have been on...
Ill health retirement
Iram_sa10 months ago
I've just signed up and looking for some advice and help. I've been teaching for 17 years now (I know some may say risky with scho...
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