I have to confess to being a long time lurker on this forum but I really wanted to say thank you to all of you who are less shy than I am. I have been reading all the blog posts and questions for 18 months now and sharing people's journeys and advice and I am very grateful to be a member of this forum, even if I am a silent one!!
My Grandma died of ovarian cancer when I was little (I am 40) and my mum was diagnosed in April last year with grade 3C ovarian cancer. She had a radical hysterectomy and oophorectomy and 6 months of chemo which finished last November. My mum has been tested for BRCA1 and BRCA2 and has come back negative but the geneticist was quite concerned so is now trying to track down a piece of her tumour so he can test for Lynch Syndrome or hereditary nonpolyposis colorectal cancer (HNPCC). We also have an early bowel cancer death on my mum's side of the family which is where the Lynch link comes from. Thankfully my Mum is doing ok. She is having 3 monthly check-ups currently and her CA125 is stable although it isn't a good indicator for her.
But what I really wanted to say is that reading all your posts has been so helpful. Knowing that there are many other lovely ladies on the same journey as my lovely, special mum has helped no end. All the fantastic,useful advice helped so much when she was really poorly. I knew she wouldn't come on the forum but i knew that I could gather the info for her and share it with her. I am eternally grateful to you all and I wish you all the very best on your individual journeys.