Well had appt with rheumy week ago and we had a long discussion about stuff. He started off saying he thinks a lot of my pain is fibromyalgia and sleep apnea until he had a look at my blood test results, really high inflammatory markers and changed his mind about that assumption. I aslo told him that I have a fairly high pain threshold so do not believe I have fibro. He then went on to say he has no idea what I have, it may take years before it shows up in my blood work as a high enough + ana to figure out what I have and is going to call it Lupus related inflammatory arthritis as it would be less destructive to my joints. gee thanks. He really really wants me to try mtx but I am so anti it after my sister's experience and others on here who say how they feel so sick all the time, I just couldn't work full time if I felt like that. Anyway long story short I said Ok lowest possible dose and if it makes me sick and unable to work I am stopping it. So he says Ok let me look at your liver function results to see if they have improved, hmmm liver function still bad so now that is out. So I am trying steroids again for a month and so far so good, haven;t crashed my car this time. Yay. I have also been diagnosed with wolff parkinson white syndrome, a heart condition and had a cardiac ablation a couple of weeks ago but cardio had to stop as I went in to atrial fibrillation and they had terrible trouble getting me back in to normal rhythm sooo now I have to go through it all again mid May to see if they can get rid of the extra electrical pathways and get my heart beating normally again.
I am supposed to see the sleep dr in April but they cancelled my appt until June so now I am trying to get in sooner as rheumy wants to see how I go on bipap machine for the month before I see him again and just to top it all off as my calcium levels have been high for over a yer now for no explainable reason he is going to test me to see if I have multiple myeloma, sheesh is there anything else I could try on for size. I seem to spend a lot of time sitting in different medical waiting rooms these days. So that's my reason for not being so active lately I am completely stuffed after going to work all day and all I want to do on the weekends is sleep. I lead such a glittering existence these days. hahahaha Hope you are all Ok and starting to see some warm weather as I look down the barrel of winter on this side of the world.