Went to appt yesterday and got a registrar, never happy seeing them. Anyway they are going to try me on humira which they hope to have approved in about 6 weeks. I hope it has the same non side effects that enbrel had as I hate having to try and work through side effects.
I asked about what I can do for my hands as my fingers are starting to drift on my right hand and also my jaw has become very painful, which are new painful things. She just shrugged her shoulders and said nothing! OK right then. I ask about my parathyroid test results as my levels have been increasing over the past couple of years, she knew nothing but I pushed this one so now I am booked in for a scan to see if they have tumors on them. Just have to wait to get the appt. She wants me back on steroids but I am loathe as they pack on so much weight. If I get desperate I might take them for a few days as the costochronditis is getting very painful and I am finding it hard to breathe. So I guess now I go back to GP ask about what I can do for my hands and jaw and pay for it all, if I can afford it.