myositis nightmare.used to be fairly active,lost a lot of weight,depression,and a sence of being useless.

[englishe]

Does this ever end,can,t swallow,have to set up feed equipment pump every evening,ends about half 11.weekness in the legs,i use a stick for support.have to be carefull going up and down stairs.saw my specialist the other day should be getting an update on my medication.

[casinogal]

Sorry to hear you are having such a rough time. Which myositis do you have?

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I believe with the right medication and treatment this disease can be brought under control so you quality of life can be improved .

It must be so awful for you right now.

It’s very important that you see a Myositis specialist Dr because this disease is so rare.

Hope you feel better soon .