Life insurance with Dermatomyositis - Myositis UK

Myositis UK

1,223 members498 posts

Life insurance with Dermatomyositis

amp0124 profile image
4 Replies

Hi all,

I hope this sort of advice/discussion is welcome on here, I’m looking for some advice on life insurance as someone who was diagnosed with Dermatomyositis around 9 months ago. I’m 29 and experience muscle issues and rashes on my face and hands. Symptoms are improving with an altered lifestyle and meds 🤞 Since my diagnosis, it’s made me realise that I need some sort of cover for whatever life my throw at me. Has anyone with Dermatomyositis taken out life insurance cover since their diagnosis and if so, who with please? I’ve tried a few different companies and it seems that no one wants to cover me!

Thanks in advance 😊

Written by
amp0124 profile image
amp0124
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Parisian13 profile image
Parisian13

Hi there,

I already had life insurance with Royal London pre diagnosis but it was quite simple to update with my DM information.

I paid a little extra but not massively and they asked logical but it super intrusive questions. They did have to go away and figure out what DM was (I got the impression they don’t deal with it every day!!) but then I got my policy renewed with my condition declared.

Travel insurance was also pretty simple once I explained I had good mobility and and that I am well managed on medication.

Hope it all goes well and you find a company.

amp0124 profile image
amp0124 in reply to Parisian13

I’ll take a look at Royal London. Thank you! 😊

Jo-Goode profile image
Jo-GoodeAdministrator

I was diagnosed aged 25 almost 30 years ago & not been able to get life insurance (due to various complications that occured when diagnosed).

If your on facebook, there was a recent conversation about life insurance with 30 responses on the UK Myositis group (The Myositis Community of Great Britain & Ireland).

facebook.com/groups/themyos...

amp0124 profile image
amp0124 in reply to Jo-Goode

Thanks for your reply. I’ll have a look at the Facebook group 😊

You may also like...

Dermatomyositis

connect with others who can maybe give me some type of hope that there’s Doctors who actually know...

Not alone? Dermatomyositis

my condition too and what some your stories are. It'd be cool to talk to some of you guys about how...

Can my GP help with tests?

psoriatic arthritis. Since then I feel it is much more likely I have Dermatomyositis. I have a new...

Anyone get calcinosis?

VERY far from getting a diagnosis (thank you, NHS) and I'd have given up long since if it wasn't...

Hello to every sufferer fighting his/her way back to a kind of normality

group and new to Dermatomyositis (diagnosed 5 weeks ago). Finding the whole thing and meds side...