Is anyone currently receiving treatment for IBM? If so what treatment? Having been recently diagnosed I just wanted to see how others manage IBM. Thanks
Managing IBM: Is anyone currently receiving... - Myositis UK
Managing IBM
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InspireMe
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Jo-GoodeAdministrator
Currently there are no medical treatments for IBM, but there are ongoing trials and you are more likely to be included in future trials if you see a specialist in IBM (see links below).
I am very hopeful that we are finally nearing the time when treatments are available. Exercise is advised particularly because not all muscles are effected by the disease.
ucl.ac.uk/ion/library/links...
uclh.nhs.uk/OurServices/Con...
I'm also admin for Myositis UK's forum on facebook, which is larger and more active this group, so you could also join this. facebook.com/groups/Myositi...
Jo
There is no treatment for IBM
Thanks for your reply margaretallan72. I just wanted to find out more about living with IBM.
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Jo-GoodeAdministrator
