Is anyone currently receiving treatment for IBM? If so what treatment? Having been recently diagnosed I just wanted to see how others manage IBM. Thanks
Managing IBM: Is anyone currently receiving... - Myositis UK
Managing IBM
Written by
InspireMe
To view profiles and participate in discussions please or .
3 Replies
•
Jo-GoodeAdministrator
Currently there are no medical treatments for IBM, but there are ongoing trials and you are more likely to be included in future trials if you see a specialist in IBM (see links below).
I am very hopeful that we are finally nearing the time when treatments are available. Exercise is advised particularly because not all muscles are effected by the disease.
ucl.ac.uk/ion/library/links...
uclh.nhs.uk/OurServices/Con...
I'm also admin for Myositis UK's forum on facebook, which is larger and more active this group, so you could also join this. facebook.com/groups/Myositi...
Jo
There is no treatment for IBM
Thanks for your reply margaretallan72. I just wanted to find out more about living with IBM.
Not what you're looking for?
You may also like...
New study for IBM
Has anyone been asked to attend a new study for 9weeks about psychological affects helping IBM...
IBM people, please post
I have just found my way to the new site. I hope all those with IBM will as well. I miss your...
Poly or IBM?
Not long diagnosed but symptoms getting worse over weeks not months. Mycophenolate I couldn’t...
Newly diagnosed with IBM
Hello folks,
Recently diagnosed, around a year ago but had symptoms for well over 3 years. Pretty...
I have just been diagnosed with Myositis, but not had a muscle biopsy to confirm the type. How long did it take you to get a muscle biopsy?
I have had a muscle condition in my lower legs and now my arms with difficulty swallowing which...
Related Posts
NewbieModeration team
Jo-GoodeAdministrator
