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Meningioma Support

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Suggestions please

I have had multiple recurring meningiomas with subsequent infections since 2020. I have undergone radiation treatments x2. The first was 5 times/week x 6...

I have had multiple recurring meningiomas with subsequent infections since 2020....

Rob_Nug

•9 hours ago

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51 year old

I had three operations in four months three years ago thought I would be a lot better than iam side off my face still has no movement will it ever come back...

I had three operations in four months three years ago thought I would be a lot b...

moodyone

•2 days ago

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assistance/recommendations please

I have been dealing with recurring meningiomas since 3/2020 and have had many setbacks including multiple infections as well as recurring tumors. Long and...

I have been dealing with recurring meningiomas since 3/2020 and have had many se...

Rob_Nug

•6 days ago

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recently diagnosed meningioma

I have a 2 cm meningioma near my optic nerve. If anyone had or have meningioma in this location, please share your experience. If you had surgery, who was...

I have a 2 cm meningioma near my optic nerve. If anyone had or have meningioma...

Beatmeningioma

•6 days ago

2 Replies

Meningioma post op craniotomy

5 days post op. Wow. This is not what I anticipated. My question is for all who have gone through this How long does the swelling last? My face and head...

5 days post op. Wow. This is not what I anticipated. My question is for all wh...

Agmancino

•6 days ago

10 Replies

Watch &Wait

Hi, im a 54 year old female who has recently been diagnosed with a meningioma situated opposite my right temporal pole. It was an incidental finding after...

Hi, im a 54 year old female who has recently been diagnosed with a meningioma ...

Spanieldoggo

•7 days ago

2 Replies

left Intraventricular Meningioma

New to this forum having only just been diagnosed with a small meningioma in the left posterior ventricle (10mm) last week. I would be interested to hear...

New to this forum having only just been diagnosed with a small meningioma in the...

Bulldogmother

•11 days ago

2 Replies

steroids!

I had a craniotomy about a week ago after finding a 5 cm meningioma which was affecting my vision and balance. I am on high doses of Steroids to reduce...

I had a craniotomy about a week ago after finding a 5 cm meningioma which was a...

Pomelo123

•29 days ago

14 Replies

Support please

I had a craniotomy 7 weeks ago to remove a large meningioma. My head feels like it's being squeezed constantly. I'm also having issues sleeping it feels like...

I had a craniotomy 7 weeks ago to remove a large meningioma. My head feels like ...

Mason2014

•2 months ago

11 Replies

MIL diagnosis - what to expect?

Hello, I am on a forum elsewhere on this site that I have very helpful, so thought it was time I tried this one. Hoping to learn and understand a bit more...

Hello, I am on a forum elsewhere on this site that I have very helpful, so thoug...

RugbyMama

•2 months ago

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Support Line closed over Christmas

Our Support Line will be closed over the Christmas period, from 2pm on Tuesday the 24th of December. Our Support Team will be back from 9am on Thursday the 2nd...

Our Support Line will be closed over the Christmas period, from 2pm on Tuesday t...

Zhaleh_TBTC

Administrator•2 months ago

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7x3x2. Mm meningioma on right incisura

hi every just got this report back I have MS and really thought my symptoms were related to a relapse since fatigue and vision are my biggest struggles, come...

hi every just got this report back I have MS and really thought my symptoms were...

Candersen3

•3 months ago

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Atypical meningioma

Atypical meningioma with separate radiation necrosis site.

george1504

•3 months ago

2 Replies

45 year survivor of brain cancer

I am a 58 year old brain tumor survivor. When I was 13 I had surgery for an Astrocytoma tumor. 27 treatment days of radiation followed. I recovered and thought...

I am a 58 year old brain tumor survivor. When I was 13 I had surgery for an Astr...

Sawsallskull

•3 months ago

1 Reply

Meningioma

I have had multiple recurring meningiomas with subsequent infections since 2020. I have undergone radiation treatments x2. The first was 5 times/week x 6...

I have had multiple recurring meningiomas with subsequent infections since 2020....

Rob_Nug

•4 months ago

1 Reply

How and where opinion

What are your thoughts or opinions on how these develop? Did you have any physical trauma, did you work with chemicals, did any other family members have...

What are your thoughts or opinions on how these develop? Did you have any physic...

Saraschild2

•4 months ago

1 Reply

How will I feel after surgery?

Active, social 72 year old female awaiting non malignant meningioma surgery around Christmas time. The meningioma is currently pressing on my optic nerve and...

Active, social 72 year old female awaiting non malignant meningioma surgery arou...

Bananabag

•4 months ago

4 Replies

Multiple menigioma

Has anyone had more than 1 menigioma? I had 1 surgically removed from spine and now have 1 in my head. Dr. Is watching for now.

Has anyone had more than 1 menigioma? I had 1 surgically removed from spine and ...

Saraschild2

•4 months ago

8 Replies

Anxious meningioma

I have only ever posted once before... and I know we're all in the same boat. Many worse off than I 😕 I have a 1.6cm benign meningioma that sit pressing...

I have only ever posted once before... and I know we're all in the same boat. Ma...

PointedCricket

•5 months ago

2 Replies

incredibly worried

Hi people, I've just heard - and I'm sure it was meant very kindly - and not intended to cause distress - that if someone is older - I'm 72 with a benign...

Hi people, I've just heard - and I'm sure it was meant very kindly - and not in...

Hidden

•5 months ago

5 Replies

benign meningioma diagnosed October 23

Hi everyone, I've been lurking and reading the very brave and positive stories here for a while but have decided to post and ask for advice if I may. I'm...

Hi everyone, I've been lurking and reading the very brave and positive stories ...

Hidden

•5 months ago

9 Replies

Hello

Newly diagnosed (09/2024)with meningioma on right temporal lobe and transverse sinus vein.. I'm trying to get information and find a neurosurgeon. I have so...

Newly diagnosed (09/2024)with meningioma on right temporal lobe and transverse s...

Sydnshel

•5 months ago

2 Replies

Fractionated Radiotherapy for Meningioma

Hi All I am about to start a six-week course of fractionated brain radiotherapy having been diagnosed with a medium sized Petroclivial Meningioma which...

Hi All I am about to start a six-week course of fractionated brain radiotherapy...

eblu

•5 months ago

8 Replies

Meningioma

Hi was diagnosed with a meningioma in may thus year it is pressing on my trigeminal nerve I have seen neurosurgeon my options monitored radiotherapy...

Hi was diagnosed with a meningioma in may thus year it is pressing on my trige...

catmillieprincess22

•6 months ago

1 Reply

How to get more information about neurosurgeons?

Hi, Thanks for accepting me to this group, having been diagnosed with a meningioma tumour 2 weeks ago, following a seizure, and having been referred for...

Hi, Thanks for accepting me to this group, having been diagnosed with a meningio...

musicloverabc

•6 months ago

2 Replies

Grade 2 meningioma

Hello , has anyone had any luck with dvla changing their rules on not been able to drive for 12 months following a grade 2 meningioma . I had mine removed in...

Hello , has anyone had any luck with dvla changing their rules on not been able ...

Mum2t2

•6 months ago

3 Replies

Post-surgical hemorrhagic collection and compression by an enlargement of the postoperative tumor cavity along with bleeding

Hello, I had a craniotomy in 2020 for Atypical meningioma grade 2. At present, the cyst of the tumour cavity is enlarged and now the size is 4.5 cm. Along with...

Hello, I had a craniotomy in 2020 for Atypical meningioma grade 2. At present, t...

nidhi123

•6 months ago

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ive used my 9 lives

On the 22/06/2024 i was travelling to work in my car and blacked out causing a car accident . I woke up in ambulance was taken to local hospital diagnosed with...

On the 22/06/2024 i was travelling to work in my car and blacked out causing a c...

Hidden

•6 months ago

1 Reply

Looking for education and support.

Hi All, I am sorry we meet here because of our circumstances. However, we are obviously here because only we know what it is like knowing there is something...

Hi All, I am sorry we meet here because of our circumstances. However, we are ob...

PointedCricket

•7 months ago

4 Replies

Eleven Meningiomas and counting…..

Hi, Just wondering If anyone else has multiple meningiomas? If so, what have you been told about possible treatment? I realise it depends where they are and...

Hi, Just wondering If anyone else has multiple meningiomas? If so, what have yo...

Mamtanna

•7 months ago

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Posts - Meningioma Support | HealthUnlocked

Meningioma Support

Suggestions please

51 year old

assistance/recommendations please

recently diagnosed meningioma

Meningioma post op craniotomy

Watch &Wait

left Intraventricular Meningioma

steroids!

Support please

MIL diagnosis - what to expect?

Support Line closed over Christmas

7x3x2. Mm meningioma on right incisura

Atypical meningioma

45 year survivor of brain cancer

Meningioma

How and where opinion

How will I feel after surgery?

Multiple menigioma

Anxious meningioma

incredibly worried

benign meningioma diagnosed October 23

Hello

Fractionated Radiotherapy for Meningioma

Meningioma

How to get more information about neurosurgeons?

Grade 2 meningioma

Post-surgical hemorrhagic collection and compression by an enlargement of the postoperative tumor cavity along with bleeding

ive used my 9 lives

Looking for education and support.

Eleven Meningiomas and counting…..

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