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Meningioma Support

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Meningioma

I have had multiple recurring meningiomas with subsequent infections since 2020. I have undergone radiation treatments x2. The first was 5 times/week x 6...

I have had multiple recurring meningiomas with subsequent infections since 2020....

Tumorboy20

•6 days ago

1 Reply

How and where opinion

What are your thoughts or opinions on how these develop? Did you have any physical trauma, did you work with chemicals, did any other family members have...

What are your thoughts or opinions on how these develop? Did you have any physic...

Saraschild2

•6 days ago

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How will I feel after surgery?

Active, social 72 year old female awaiting non malignant meningioma surgery around Christmas time. The meningioma is currently pressing on my optic nerve and...

Active, social 72 year old female awaiting non malignant meningioma surgery arou...

Bananabag

•23 days ago

4 Replies

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Multiple menigioma

Has anyone had more than 1 menigioma? I had 1 surgically removed from spine and now have 1 in my head. Dr. Is watching for now.

Has anyone had more than 1 menigioma? I had 1 surgically removed from spine and ...

Saraschild2

•1 month ago

8 Replies

Anxious meningioma

I have only ever posted once before... and I know we're all in the same boat. Many worse off than I 😕 I have a 1.6cm benign meningioma that sit pressing...

I have only ever posted once before... and I know we're all in the same boat. Ma...

PointedCricket

•1 month ago

2 Replies

incredibly worried

Hi people, I've just heard - and I'm sure it was meant very kindly - and not intended to cause distress - that if someone is older - I'm 72 with a benign...

Hi people, I've just heard - and I'm sure it was meant very kindly - and not in...

Hidden

•2 months ago

5 Replies

benign meningioma diagnosed October 23

Hi everyone, I've been lurking and reading the very brave and positive stories here for a while but have decided to post and ask for advice if I may. I'm...

Hi everyone, I've been lurking and reading the very brave and positive stories ...

Hidden

•2 months ago

9 Replies

Hello

Newly diagnosed (09/2024)with meningioma on right temporal lobe and transverse sinus vein.. I'm trying to get information and find a neurosurgeon. I have so...

Newly diagnosed (09/2024)with meningioma on right temporal lobe and transverse s...

Sydnshel

•2 months ago

1 Reply

Fractionated Radiotherapy for Meningioma

Hi All I am about to start a six-week course of fractionated brain radiotherapy having been diagnosed with a medium sized Petroclivial Meningioma which...

Hi All I am about to start a six-week course of fractionated brain radiotherapy...

eblu

•2 months ago

8 Replies

Meningioma

Hi was diagnosed with a meningioma in may thus year it is pressing on my trigeminal nerve I have seen neurosurgeon my options monitored radiotherapy...

Hi was diagnosed with a meningioma in may thus year it is pressing on my trige...

catmillieprincess22

•2 months ago

1 Reply

How to get more information about neurosurgeons?

Hi, Thanks for accepting me to this group, having been diagnosed with a meningioma tumour 2 weeks ago, following a seizure, and having been referred for...

Hi, Thanks for accepting me to this group, having been diagnosed with a meningio...

musicloverabc

•2 months ago

1 Reply

Grade 2 meningioma

Hello , has anyone had any luck with dvla changing their rules on not been able to drive for 12 months following a grade 2 meningioma . I had mine removed in...

Hello , has anyone had any luck with dvla changing their rules on not been able ...

Mum2t2

•2 months ago

3 Replies

Post-surgical hemorrhagic collection and compression by an enlargement of the postoperative tumor cavity along with bleeding

Hello, I had a craniotomy in 2020 for Atypical meningioma grade 2. At present, the cyst of the tumour cavity is enlarged and now the size is 4.5 cm. Along with...

Hello, I had a craniotomy in 2020 for Atypical meningioma grade 2. At present, t...

nidhi123

•3 months ago

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ive used my 9 lives

On the 22/06/2024 i was travelling to work in my car and blacked out causing a car accident . I woke up in ambulance was taken to local hospital diagnosed with...

On the 22/06/2024 i was travelling to work in my car and blacked out causing a c...

Hidden

•3 months ago

1 Reply

Looking for education and support.

Hi All, I am sorry we meet here because of our circumstances. However, we are obviously here because only we know what it is like knowing there is something...

Hi All, I am sorry we meet here because of our circumstances. However, we are ob...

PointedCricket

•3 months ago

4 Replies

Eleven Meningiomas and counting…..

Hi, Just wondering If anyone else has multiple meningiomas? If so, what have you been told about possible treatment? I realise it depends where they are and...

Hi, Just wondering If anyone else has multiple meningiomas? If so, what have yo...

Mamtanna

•3 months ago

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Mamtanna

I have 11 meningiomas and have worsening headaches, always really bad on wakening. Medication given by my Surgery made feel nauseous and headaches aren’t...

I have 11 meningiomas and have worsening headaches, always really bad on wakenin...

Mamtanna

•4 months ago

4 Replies

Is 69 weeks a normal waiting time to see a neurosurgeon for the first time?

I was recently diagnosed with a 1.7cm meningioma in my frontal lobe (an incidental find after a suspected stroke) I’ve had 2 CT scans & an MRI scan at my local...

I was recently diagnosed with a 1.7cm meningioma in my frontal lobe (an incident...

SuziWuziCruizi

•4 months ago

5 Replies

fatigue

radiotherapy and fatigue. Has anyone experienced episodes of extreme fatigue? Eg, tired upon waking. If so, were you able to reduce symptoms successfully ?

radiotherapy and fatigue. Has anyone experienced episodes of extreme fatigue? Eg...

Tumour149

•4 months ago

4 Replies

🚗 driving

Hi, does anyone have any suggestions on dealing with dvla, 11 months from 1 seizure and 8 months from surgery dvla have said today they have cancelled my...

Hi, does anyone have any suggestions on dealing with dvla, 11 months from 1 seiz...

Satishouse

•4 months ago

6 Replies

Radiotherapy Experience?

Hi, I had a craniotomy and resection of petroclival meningioma in May 2022 but as attached to brain stem it can’t be fully removed. Due to minor growth and...

Hi, I had a craniotomy and resection of petroclival meningioma in May 2022 but ...

Trufle

•5 months ago

1 Reply

radiation

I’m interested in any long term side effects of radiation treatment on meningioma grade 1 but regrowing.

I’m interested in any long term side effects of radiation treatment on meningiom...

Sharkdiver3

•6 months ago

1 Reply

Meningioma advice

Hi all, I started getting constant headaches about three years ago. After being ignored by my doctors, I paid for a private neurologist, and he did an MRI,...

Hi all, I started getting constant headaches about three years ago. After being...

Calannmc

•6 months ago

13 Replies

just had a craniotomy

hello I joined this group to hear how others are recovering from their crainotomy. I had my surgery 3 weeks ago to remove a meningioma which I’ve known about...

hello I joined this group to hear how others are recovering from their crainotom...

Meningioma12

•6 months ago

20 Replies

New diagnosis

Hi I have just been diagnosed with sphenoid meningioma and also with dehisence semi circular canal , which is a problem with bones that affect balance in...

Hi I have just been diagnosed with sphenoid meningioma and also with dehisence ...

Creamteas

•6 months ago

1 Reply

Flying with a meningioma

Hi I was hoping someone might be able to advise me on whether you think it is safe to fly with a Meningioma. Last year my family and I were due to travel...

Hi I was hoping someone might be able to advise me on whether you think it is ...

Limegreen2024

•8 months ago

12 Replies

Sign our open letter

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. We're calling for: 🔬Pioneering research into brain tumours. 🏥Access to...

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. ...

Zhaleh_TBTC

Administrator•9 months ago

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newly diagnosed with left frontal lobe meningioma, and told not to worry

I have been having awful headaches since November 2023 I went to a&e in Jan from the advice of my doctors. I had a ct scan which showed a swollen mass on my...

I have been having awful headaches since November 2023 I went to a&e in Jan from...

musicloving_girl

•9 months ago

4 Replies

Advice please

Hi, I have had an incidental finding of a ‘6mm meningioma in the right frontal location’ when I had a head CT scan after a fall. This was last Tues, 13th. I...

Hi, I have had an incidental finding of a ‘6mm meningioma in the right frontal l...

Ladyofthelake

•9 months ago

6 Replies

Meningioma

hi I’m looking for help with my Meningioma. I have had surgery but the tumour is growing again and I have been offered radiology treatment. What have you all...

hi I’m looking for help with my Meningioma. I have had surgery but the tumour ...

Godoone22

•9 months ago

10 Replies

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Posts - Meningioma Support | HealthUnlocked

Meningioma Support

Meningioma

How and where opinion

How will I feel after surgery?

Multiple menigioma

Anxious meningioma

incredibly worried

benign meningioma diagnosed October 23

Hello

Fractionated Radiotherapy for Meningioma

Meningioma

How to get more information about neurosurgeons?

Grade 2 meningioma

Post-surgical hemorrhagic collection and compression by an enlargement of the postoperative tumor cavity along with bleeding

ive used my 9 lives

Looking for education and support.

Eleven Meningiomas and counting…..

Mamtanna

Is 69 weeks a normal waiting time to see a neurosurgeon for the first time?

fatigue

🚗 driving

Radiotherapy Experience?

radiation

Meningioma advice

just had a craniotomy

New diagnosis

Flying with a meningioma

Sign our open letter

newly diagnosed with left frontal lobe meningioma, and told not to worry

Advice please

Meningioma

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