Suggestions please

[Rob_Nug]

I have had multiple recurring meningiomas with subsequent infections since 2020. I have undergone radiation treatments x2. The first was 5 times/week x 6 weeks. The next was called TrueBeam. It was only one treatment in November of 2023, but it left me with brain lesions (areas of necrosis on the brain) . In late December of 2023, I began having difficulty walking. In March of 2024 I had what was classified as a seizure. In May, I had trouble with controlling my right foot. I have been to many doctors and done a fairly significant amount of research on my own. I have also been having issues falling as of late.

I have been placed on the following meds: Avastin ( infusions every 2 weeks at 12 mg/kg), Trental (to increase blood flow, Vimpat (for seizures), as well as many other OTC vitamins/supplements.

I have consulted Neurologists, NeuroOncologists, and Physical Therapists.

Any info/suggestions would be helpful as none of the DR's have any idea what is happening and they don't want to change any of the meds.

[nidhi123]

Even I had a ceniotomy for the reservation of Atypical meningioma grade II in 2020. have undergone radiation treatment. The first was 5 times. Known as Cyber- knif.e radiosurgery. From 2023 there was a frequent bleeding from the cystic cavity. Undergone from aspiration of blood three times from 2023 till 2024 2024.the tumor was Recurred with radiation necrosis alongwith bleeding in 2024. Again I had a major complex craniotomy in February 2025. After surgery my left hand and leg weakened. Physiotherapy sessions are still in progress. Iam still taking antiseptic medicines and few pain killers. I am a professor in a College. At present on leave. I hope everything will be well and I will be able to work again.

[Rob_Nug in reply to nidhi123]

Wow. Sounds almost identical to mine minus the bleeding. I had a follow up mri yesterday and am currently awaiting the report/results. I believe that cyber-knife is very similar to the true beam.

Some questions if you don’t mind:

What meds are you currently taking and which ones do you feel are most effective?

Are you doing anything other than traditional medicine? I have been doing acupuncture for the last month.

Thanks for the reply!