I am looking for support from fellow suffers

[Wardilllinda]

I'm not receiving any treatment other than exercises to help with my balance problems. I have a very supportive family but my condition sometimes makes me feel very lonely

[Cast_away]

hi there

Good to hear that you have a supportive family which I know is so important. I too have a sense of loneliness which this forum helps me address. My meningioma was resected in 2022 but has since returned and like you say, having a supportive family helps but having the tumour and facing its consequences such as the craniotomy and radiotherapy is something that I do and I do so alone. However, here I learn the journeys that others face and it helps me understand how I’m not so alone. Kindest wishes to you.

[MypeanutandI]

You are so right about feeling alone. It is difficult to come to terms ourselves with what's happening much less explain it to family. It is a surreal thing. Of all the things we could have guessed or imagined happening in our lives this one wasn't even a passing thought. I let myself cry on my own. It helps to do that. To just release the fear and uncertainty.

Also I find ways to distract myself.

Last year when I was first diagnosed, I was helping special needs children. I shook like a leaf when I was alone with my thoughts but as soon as I was with the children and helping them the whole thing was forgotten.

Lots of funny old movies

Escapism? Yes. But do we need it from time to time? Yes, indeed we do!

[MypeanutandI]

I've also started listening to Brown Noise (Deep or Dark I don't remember.) It was annoying at first but now it's very soothing to listen to once my head is on the pillow. I found mine in Pandora. I chose the 12 hour continuous version with no looping and only one advertisement at the beginning.

[MypeanutandI]

It's called Deep Brown Noise this is the link, so says Pandora: pandora.app.link/SOYlwuxDoSb