Anxious meningioma

[PointedCricket]

I have only ever posted once before... and I know we're all in the same boat. Many worse off than I 😕 I have a 1.6cm benign meningioma that sit pressing slightly on my "pons", left side. However, the team told me that it is sitting deep inside between the "pons" and the brain stem. Their prognosis for operating wasn't a good one. Therefore they have decided it best to monitor it monthly.

I believe that many of my symptoms, new and old, may well have been being masked by the pain medications I have been on for the last 7 years or so. In recent months I am have been being supported to come off PREGABALIN, bloody hard when you also have CPTSD, and degenerative disc disease. The drug is not easy to come off. But I am getting there thankfully.

I wonder if anyone has been prescribed PREGABALIN since being diagnosed with meningioma/s and if it has been successful for you? I also have Fibromyalgia, which is being (?) as I have chronic fatigue. I am being reviewed for M.E. I am now questioning if the fatigue + pain/nerve pain is in fact due to the meningioma and it's location causing the disturbances.

I agree my 'marble' sized, benign tumour may seen to as the best of the worst news, but I have questions and feel so very alone. I don't know how I should feel, if I am overreacting (yeah I know), if I am experiencing fatigue due to the under-invited-guest or because I am burnt out! There's an increasing amount off irrational fear arising and those awfully private morbid those. Those I can usually quieten due to being 7 years melanoma free!! (Yipee/yeep)

I don't know, I probably shouldn't post this, I don't want to trigger anyone. But I know I should too, so that someone/folk can unmuddle this very anxious 50yr old, lone parent of 4s mind.

Thanks 😊

[Calannmc]

Hi Cricket,

I have no advice, I'm afraid but wanted to extend my support