Meningioma post op craniotomy - Meningioma Support

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Meningioma post op craniotomy

Agmancino profile image
10 Replies

5 days post op. Wow. This is not what I anticipated. My question is for all who have gone through this

How long does the swelling last? My face and head are totally numb on the side of the surgery. How long before sensation comes back?

Any advice would greatly be appreciated

TIA

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Agmancino profile image
Agmancino
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10 Replies
Bananaboy1 profile image
Bananaboy1

Hi there, I'm afraid in my experience your in for the long haul. I think it was about three weeks to a month because I could even open my mouth to eat as the muscles had been cut by my temples... Of course it will depend on where on you head they went it but if there is some advice I could offer it would be to write down each day how you are and where you are in your healing because this will help you see you are improving over time even though it may feel endless and hopeless at the time. Have patience with yourself, try to love yourself well and thank your body every day for surviving what it has and healing as best it can. Good luck, best wishes and I wish I'd had this resource in the early days, it would have helped a lot. X

summerjasmine profile image
summerjasmine in reply toBananaboy1

I agree, you're in for a long haul. Patience is the key, your specialist nurse will be there to support you, talk to her, be kind to yourself. Your body has been through a big trauma, give it love and patience and Time. Good luck and best wishes

Agmancino profile image
Agmancino in reply toBananaboy1

Thank you so much for your reply. I cannot open my mouth to eat either. It’s good to talk to people who have gone thru the same thing. It’s not easy. I hope you’re doing better … gives me hope for the future

Bananaboy1 profile image
Bananaboy1 in reply toAgmancino

Keep the faith in what your body can do if we speak kindly to is and push gently for improvement. I kept trying to open my mouth wider and wider every day, but with care and gentleness. It did improve slowly and over maybe three weeks I was actually able to bite into a sandwich which felt wonderful to finally have a mouth full of food that I could chew!

Love yourself well. I had to learn this massive lesson which is hard. I had always been the kind of person who was extremely hard on myself, as so many of us are... what we all need to do to heal on many levels is to be compassionate to ourselves. I believe this ripples out into the world and help others to do the same.

Lots of love to you, and all who read this.

Agmancino profile image
Agmancino in reply toBananaboy1

Thank you 🥰🥰

Cast_away profile image
Cast_away

Hi there!

Firstly big love to you for hanging in there! It certainly is quite overwhelming I know. Immediately post craniotomy I was also completely numb from the top of my head to the entire left side of my face. The black eyes and swelling eased after about 10 days. I’m pleased to say that my numbness eased over the following six weeks but has never left me entirely - I still have sensation issues on the left side of my head and face.

The thing to remember is that your body is doing all it can to heal and this takes time but you will make progress and in time be able to look back at what your amazing body has done for you!

All the very best healing wishes for you xx

Agmancino profile image
Agmancino in reply toCast_away

Thank you for your reply. It sure helps talking to people who have gone thru the same thing. It’s not easy. Just taking it one day at a time 🙏🏻. Hope you are doing better

Bananabag profile image
Bananabag

Hi, I’m 10 weeks post op. I had 3 meningiomas removed, the largest pressing on my optic nerve. My black eye was gone within the first week. My numbness has subsided gradually and is now just a strip about an inch away from the incision line. Swellings came and went in different places but the initial large swelling had reduced at 2 weeks and completely gone at 3 weeks. I now have a very small bump on my temple but nobody else notices it. I was back at my dance class at 6 weeks and although I still get tired some days, I feel very well.

After the first couple of weeks you should feel a little better each day. Do rest as much as you can in the first 2-3 weeks and listen to your body. Accept all help offered! Good luck with your recovery, it’s so good to be on the other side of the operation! Take care of yourself.

Agmancino profile image
Agmancino in reply toBananabag

Thank you for your reply. You are a true trooper. This is not easy !!! Good to hear other people’s story so I can get an idea of what to expect. 8!days out swelling and numbness are the two major symptoms. Pain is getting better. One day at a time. I am keeping positive 🙏🏻🙏🏻

Bananabag profile image
Bananabag in reply toAgmancino

No, it’s really not easy at the beginning. I just slept and ate right through Christmas! It almost completely passed me by. Yes, just think positive and take it a day at a time and you will soon be able to look back and see the progress you are making. 🤞

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