one high level radiotherapy: hi everyone... - Meningioma Support

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one high level radiotherapy

Hallett profile image
10 Replies

hi everyone

My last mri has shown my small bit of tumour left has grown a few mm as it’s in the middle of my vein surgery is to risky therefore I need radiotherapy, was wondering if anyone else has had this and have any advice. Ta

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Hallett
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10 Replies
Cast_away profile image
Cast_away

hi there. Yes I had regrowth too and just completed six weeks of targeted radiotherapy to hopefully stop my friend!

I will have another mri in six months. All the best to you.

Agmancino profile image
Agmancino in reply toCast_away

Was there any side effects from the radiation. I’m supposed to start next month

Cast_away profile image
Cast_away in reply toAgmancino

Yes - the worst being the fatigue - just so very tired all the time. A little nausea and some hair loss but the fatigue was quite overwhelming.

Everyone reacts differently to it so I hope all goes well for you.

Agmancino profile image
Agmancino in reply toCast_away

Thank you. 😊

Hallett profile image
Hallett in reply toCast_away

Hi

Hope all goes well with the mri results

Cast_away profile image
Cast_away in reply toHallett

Thank you for your kindness.

Trufle profile image
Trufle

Hi, I had 6 weeks of radiotherapy last summer due to a tiny regrowth, my friend sits on brain stem! It wants bad thought, staff lovely and took literally 10 minutes each day! No hair loss at all, did feel quite sick and lightheaded after 3/4 weeks but ginger biscuits help. Had MRI in February and have appointment in a couple of weeks to let me know results to see if it worked and stopped it growing!

Best wishes

Hallett profile image
Hallett in reply toTrufle

I called mine glody golf ball don’t know why I wrote a poem about it before my surgery in feb 21. Best wishes for your results soon take care

Agmancino profile image
Agmancino in reply toTrufle

Praying it worked. I start my 6 weeks of radiation in a month

Hallett profile image
Hallett in reply toAgmancino

Hope all goes well

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