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Myalgic Encephalomyelitis Community

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Advice wanted - relatively new here

Hi all, I’m writing after a recent ME diagnosis, after being ill approx 2- 3 y...

how do you deal with extreme coldness and shivers?

I have had fibromyalgia for 25 years, but never such coldness which makes me wa...

Tired Tavern - Discord community for people with CFS/ME and/or Long Covid (PACS)

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Co...
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Nicotine patches

Hello, has anyone had success feeling better with nicotine patches?
Sammy333 profile image

Post dental treatment

Wondering how you are all doing? Just has some dental treatment this week and t...
strongmouse profile image

Tired Tavern - Discord community for people with CFS/ME and/or Long Covid (PACS)

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Co...
TiredTavern profile image

Diagnosing ME/CFS

Just getting round to reading the Winter 2023 edition of the ME Associations mag...

Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Co...

New and need help

Hi all, I should say I haven’t been given a diagnosis however my GP has suggeste...

A stab in the dark

What triggered your condition ? I’ve just finished my second course of antibiot...

Tired Tavern - Discord server for people with CFS/ME and Long Covid

Hi guys, Just wanted to say that our CFS/ME and Long Covid Discord server has b...

how do you actually feel?

Right now I am feeling weird with tremor and as I try and sleep, I feel weirder....
MEguy profile image

What meds do y ou take for y our ME/CFS

I am seeing my doctor tomorrow and will try and get some meds for my transient t...
MEguy profile image

Is ME a mind-body illness?

I just got over having tremor and hypnic jerks for the last month. I could not s...
MEguy profile image

Do you get tremors?

I have had a relapse of ME and I am getting tremors. It is like being attached t...
MEguy profile image

How can you explain epidemic ME

How do people here explain epidemic forms of ME where lots of people get ill wit...
MEguy profile image

Awakeing suddenly with a jerk

Hi Does anyone else wake up suddenly while sleeping with a jerk like feeling?
MEguy profile image

Perrins technique

Anyone tried this. How did it go?
Shirlchristine profile image

The Effect of COVID on ME/CFS

Can anyone point me to science-based, medically sound articles on how COVID...
SoporRose profile image

Waiting for diagnosis

Hi, It's been 12 months and i am still waiting for a diagnosis for my tiredness....
HannahCB92 profile image

Bisphosphonates iv

Hi I have M.E/CSF plus Fibromyalgia, osteoarthritis and osteoporosis and have b...
mimimouse profile image

Best illustration ever!

Created by Kornelia Paulsen, an illustrator from Norway. She’s on Twitter and I...
_Sarah_J profile image

Perrin technique

I have an appointment with an osteopath for the Perrin technique. Anyone tried ...

Breathing problems

Hi, I've got CFS and have been having breathing problems for past 19 days. I had...
stravinsky1 profile image

You're not a fraud!

https://www.theguardian.com/science/2023/jul/09/microbiome-chronic-fatigue-me-lo...

Acceptance

Sorry 18 years Not 28

Acceptance

Hi, How do I accept my uselessness?I have had CFS for 28 years and was managing...
stravinsky1 profile image

Drug info

Hi, I'm wondering if anyone has experience (good or bad) with taking any if the ...
Aloysia profile image

Struggling despite no formal diagnosis

Hello all. I do feel a bit of a fraud because I am still waiting for a formal di...
WytchHazel74 profile image

Itchy skin - heat

I have a number of ailments, hypothyroidism, ME/CFS, Menopause & Fibromyalgia so...
Suei profile image
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