Uk GPs only now informed of WHO classification 1995
Charlie160618 minutes ago
As of 1/8/18 UK goverment recognises M.E/CFS as neurological as per WHO 1995
Maybe now we can get all the help we need
and not be treated inhu...
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jo195 days ago
Every time I have a crash which usually lasts for two months, all I can think of as I lie down on the bed useless to myself and anyone else ...
They said it didn't exist!!
BeeBee508 days ago
I was diagnosed with CFS/ME along side fibromyalgia a year ago. Exhausted all the time which I thought was a symptom of my heart failure afe...
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I have Cfs/m.e and pots but am going through investigations for a 3rd time due to having vertigo etc the past 6months. Any Tips on coping?
Ponymad11 days ago
Very worried it’s untreatable. It took the Doctors years and years to find out I had pots in the past so suffered years of dizziness
Pots weird blood test ?
H209012 days ago
Hey i was just wondering if any one could help me i have dysautomia pots plus me/cfs plus histimine intolerance and far few other things tha...
Sparked by MrsMouse
nedda month ago
Words supplied for belting it out purposes.
Besides man on airing pain podcast assures me singing can only be good for one.
Ready deep breath
Dealing physically and emotionally with the “fall out” from seeing old froends
winter2013a month agoPOPULAR
I imagine I know what the advice will be if anyone has the time, energy or motivation to reply. Feel so unpleasant physically though...
Has anybody else with M.E went on to devolop sticky blood & had TIAs or full strokes?
Charlie1606a month ago
Please im 5yrs with this and am getting worse
Tomorrow 3rd time of trying ( very trying)
Temperature veering from 32-35 degrees
AWDF2 months ago
Hi, I'm the mum of a 27 year old female who has been having various symptoms including exhaustion and aching all over. CFS is now being con...
jo192 months ago
Hi everyone, I hope you are all able to at least keep your head above water. My doctor just confirmed that I do indeed have ME. It was stres...
Pack of interest in ME/ facebook
winter20132 months ago
Posted yesterday about adrenaline surges and 2 people kindly replied which was helpful.
Trying to accept and understand our conditio...
Feel shaky when or just after had some energy
I have probably had elements of ME/CFS for years. A GP first suggested it 3 years ago but as I have a lung condition which makes me...
Working with ME
Maddie212 months ago
I have not had an actual diagnosis but I do think that it is a strong possibility that I have ME.
Can anyone tell me any tips as to ho...
7 Replies1 Like
Important ME Petition
cwill3 months ago
This has just landed in my inbox. Carol Monaghan is asking for what every person with ME wants: benefits, health and social care, a research...
2 Replies1 Like
The ME Westminster Hall Debate
Well! Emotions ran high both in the chamber and amongst the viewers. We were heard with issues raised. Whether the minister actually acts is...
3 Replies4 Likes
Degeneration of central nervus system
cutecub_x3 months ago
As many of u well no, M.E is a Nuerological central nervus system illness involving literally every system in ur body
I was lucky to get an M...
8 Replies1 Like
Briefing document from Invest in ME Research. An appalling state of affairs.
This is a long document clearly written. You can scan through and see how many failures are recorded against the UKs own guidelines and stat...
1 Reply2 Likes
A letter to the Lancet regarding the PACE trial. We have powerful friends!
These blogs are well worth a read if you are able. This is the second time multiple signatories have requested the withdrawal of the PACE tr...
xkathx3 months ago
I have suffered from ME/CFS for approx 20yrs, I now cope with all the things it throws at me but find the Fatigue to be really hard to manag...
Westminster debate on M.E.
topaz13 months ago
This is a linke to ME missing and the debate in Parliament soon.
Also a link to contact your MP to ask them to attend.
Pacing and heart rate
siannie3 months ago
Hello new to this forum.
I have Hashimoto disease and was diagnosed last April with ME/CFS . I see an endo privately who closely monitors my...
Sammi-rose174134 months ago
i had my esa assessment and the assessor focused on just my incontanence and nothing else saying she knows what the dwp are looking for. eve...
ME-sympathic doctor needed
lin234 months ago
Can anyone recommend an ME-sympathetic GP in the St Austell, Cornwall area? My previous GP has sadly left.
Hello new on here new diagnosis looking to share knowledge and understand this condition
Duncansyard4 months ago
Hi new diagnosis looking for direction re mamagemt and promoting healing
Indenting veins in arms
Beau664 months ago
Just wondered if anyone has this? It’s like your veins are making a indented groove mostly on elevation
The ME documentary on BBC iplayer for 11 months.
cwill4 months ago
1 Reply1 Like
davjul5 months ago
Hello everybody, I'm new to this forum, and I really need help.
I've been sick for one year without a successful diagnosis, my symptoms are: ...
Sooooo exhausted lately 😴😴
Hidden5 months ago
Cant seem to be able to gain any energy an thats with being in rest for days an nights on end dont know what im doing wrong 😫
BBC documentary to be aired in ME week.
cwill5 months ago
This is all I know so get googling or check out UK charity pages as they will be publisicing events I’m sure.
5 Replies3 Likes
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