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Myalgic Encephalomyelitis Community

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Missing heaths records

So finally moved doctors gp My records all missing my M.Ecfs Fibromyalgia Post exerional Malaise Restless leg syndtrome diagnosis all gone astray and im am...

So finally moved doctors gp My records all missing my M.Ecfs Fibromyalgia Post e...

•3 days ago

Peer Review?

Hi, I'm wondering if I have this disorder but can't currently get a proper diagnosis/go to a doctor about it. How do I know if I have this disorder?I don't...

Hi, I'm wondering if I have this disorder but can't currently get a proper diagn...

ParkerNeedsAMinute

•2 months ago

Psychologist recommendation?

Hello, Does anyone have a recommendation for a psychologist specialising in ME? I am in London but willing to travel. Many thanks 😀

Hello, Does anyone have a recommendation for a psychologist specialising in ME?...

•3 months ago

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Tips on how to manage a trip from UK to NZ with CFS

Hi, I've had CFS plus other chronic conditions for 24 years. Just had one total knee replacement with another to follow. Needless to say I've crashed. I really...

Hi, I've had CFS plus other chronic conditions for 24 years. Just had one total ...

•3 months ago

work and ME

hi everyone I am new here . I have had ME(cfs) for years . I used to work full time before surgery now back three days and this week had a half day trail at...

hi everyone I am new here . I have had ME(cfs) for years . I used to work full...

•4 months ago

lol i found out today that postage has gone up.

i was at the post office, used an old stamp, thankfully i was posting it at the counter so my post officer said it's gone up. i said i didn't know, i live in...

i was at the post office, used an old stamp, thankfully i was posting it at the ...

•4 months ago

How many of us have a misdiagnosis and undiagnosed lyme disease?

Heart block tachycardic hypertensive lung issues gastric issues nerve pain swollen joint arthritis chronic fataigue Post exertional malaise etc skin issues

Heart block tachycardic hypertensive lung issues gastric issues nerve pain swol...

•4 months ago

another week without a shampoo

but i do appreciate it's winter, so showers and shampoos matter less than in summer! often i get round to wondering what's caused the exhaustion, wondering...

but i do appreciate it's winter, so showers and shampoos matter less than in sum...

•4 months ago

worm tablets pyrantel and mebendazole

for something to have a go at, 3 years ago, i took worm tablets. in case i had parasites. 10+ years earlier my g.p had put me on worm treatment parex (which...

for something to have a go at, 3 years ago, i took worm tablets. in case i had...

•4 months ago

Tired Tavern - a community for people with CFS/ME

Hi, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's a space where we can all share tips, support each other, and just chat...

Hi, Tired Tavern is community server for people with CFS/ME and/or Long Covid. ...

•5 months ago

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A live day in the life of Someone with M.E.

A very famous science influencer by the name of Physics Girl is running a completely live breakdown of her day on YouTube....

A very famous science influencer by the name of Physics Girl is running a comple...

•5 months ago

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Online support groups

Hi, Does anyone know of any good online support groups please? Karen

Hi, Does anyone know of any good online support groups please? Karen

•5 months ago

High ANA (antinuclear antibodies)

Hello, I am new in this group, but have been searching for answers for years about chronic fatigue. Over a decade ago, I thought I'd found the answer as I...

Hello, I am new in this group, but have been searching for answers for years abo...

•6 months ago

Sound Familiar?

Hi everyone! Hope you're all well and apologies for the oncoming rant. I've been having musings about potentially having ME for a while now but getting a...

Hi everyone! Hope you're all well and apologies for the oncoming rant. I've be...

•7 months ago

Tired Tavern - a Discord community for people with CFS/ME and/or Long Covid (PACS)

Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 400+ members since starting last December. It's a...

Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS)...

•7 months ago

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Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December....

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Co...

•8 months ago

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Advice wanted - relatively new here

Hi all, I’m writing after a recent ME diagnosis, after being ill approx 2- 3 years. When I first got symptoms, I started having acupuncture and taking...

Hi all, I’m writing after a recent ME diagnosis, after being ill approx 2- 3 y...

•9 months ago

how do you deal with extreme coldness and shivers?

I have had fibromyalgia for 25 years, but never such coldness which makes me want to hide in bed for warmth.

I have had fibromyalgia for 25 years, but never such coldness which makes me wa...

•9 months ago

Tired Tavern - Discord community for people with CFS/ME and/or Long Covid (PACS)

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December....

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Co...

•9 months ago

Nicotine patches

Hello, has anyone had success feeling better with nicotine patches?

Hello, has anyone had success feeling better with nicotine patches?

•9 months ago

Post dental treatment

Wondering how you are all doing? Just has some dental treatment this week and thought I was doing okay after it but now feeling the effects. Why does dental...

Wondering how you are all doing? Just has some dental treatment this week and t...

•9 months ago

Tired Tavern - Discord community for people with CFS/ME and/or Long Covid (PACS)

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences...

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Co...

•10 months ago

Diagnosing ME/CFS

Just getting round to reading the Winter 2023 edition of the ME Associations magazine and they have a free booklet titled The Importance of an Early & Accurate...

Just getting round to reading the Winter 2023 edition of the ME Associations mag...

•10 months ago

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Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences...

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Co...

•10 months ago

Be the first to reply

New and need help

Hi all, I should say I haven’t been given a diagnosis however my GP has suggested that this may be the cause. I had a viral infection two months ago which...

Hi all, I should say I haven’t been given a diagnosis however my GP has suggeste...

Hatwindowwindow4

•10 months ago

A stab in the dark

What triggered your condition ? I’ve just finished my second course of antibiotics following a sinus/ ear infection and feel a bit washed out. I’ve started...

What triggered your condition ? I’ve just finished my second course of antibiot...

•11 months ago

Tired Tavern - Discord server for people with CFS/ME and Long Covid

Hi guys, Just wanted to say that our CFS/ME and Long Covid Discord server has been up and running for two weeks now and we're close to 150 members. We're a...

Hi guys, Just wanted to say that our CFS/ME and Long Covid Discord server has b...

•11 months ago

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how do you actually feel?

Right now I am feeling weird with tremor and as I try and sleep, I feel weirder. I feel a throbbing kind of feeling too. How do you feel?

Right now I am feeling weird with tremor and as I try and sleep, I feel weirder....

•1 year ago

What meds do y ou take for y our ME/CFS

I am seeing my doctor tomorrow and will try and get some meds for my transient tremors and jerking awake symptoms. I am thinking something like Clonazepam or...

I am seeing my doctor tomorrow and will try and get some meds for my transient t...

•1 year ago

Is ME a mind-body illness?

I just got over having tremor and hypnic jerks for the last month. I could not sleep and then suddenly I woke up this morning and all my tremors and hypnic...

I just got over having tremor and hypnic jerks for the last month. I could not s...

•1 year ago

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