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Myalgic Encephalomyelitis Community

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Covid 19 has it worsen your ME/CFS symptoms?

Good morning all! I was wondering if any of you caught Covid 19 that made their ME symptoms worse. The reason I ask is that I am pretty much still "terrified"...

Good morning all! I was wondering if any of you caught Covid 19 that made their ...

•3 days ago

Long-term experiences of managing Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (CFS/ME): A qualitative study

Another useful doctoral study:. Williams, D. S. (2016). Long-term experiences of managing Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME): A...

Another useful doctoral study:. Williams, D. S. (2016). Long-term experiences ...

•13 days ago

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A life lived differently: an exploration of how living with CFS/ME impacts upon people's identity

I just came across this important doctoral research and thought to share it with you. See below: Murray, Rebecca E. (2016) A life lived differently: an...

I just came across this important doctoral research and thought to share it w...

•16 days ago

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Do anybody get seizures or type of movement disorder from me/cfs?

Just wondering as I'm not diagnosed with cfs but my symptoms point to it.I've been getting constant sore throats from over doing it (that's just getting...

Just wondering as I'm not diagnosed with cfs but my symptoms point to it.I've be...

•19 days ago

Reasonable adjustments at work (field of education)

Hello, I am going back to work after a major relapse. I already have a set of reasonable adjustments in place to facilitate pacing and I was wondering if...

Hello, I am going back to work after a major relapse. I already have a set of r...

•27 days ago

useful guides

Good morning all, just discovered some useful guides from the British Association of Clinicians in ME/CFS (BACME) . BACME provides information to support...

Good morning all, just discovered some useful guides from the British Associa...

•28 days ago

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Question: ME & Cluster Headaches

Hello everyone, For the last seven years I have been mostly at home and bed bound due to ME.Some weeks ago I had my first cluster headache attack (CHA)which...

Hello everyone, For the last seven years I have been mostly at home and bed bou...

•1 month ago

Two important studies link ME/CFS to changes in the gut microbiome

Though not a ME/ CFS patient, I have joined this community in order to post this message about a recent article that appeared in my "Inside Precision Medicine"...

Though not a ME/ CFS patient, I have joined this community in order to post this...

•1 month ago

Naltrexone - low dose.

Would anyone be able to give me their account of using this drug please. My immunologist has prescribed it for me. Thank you.

Would anyone be able to give me their account of using this drug please. My immu...

•2 months ago

Living with ME/CFS - as a partner.

I wonder if it's OK to join you on this forum? My husband has had ME for around 8 years and probably like many here often lacks the energy to participate...

I wonder if it's OK to join you on this forum? My husband has had ME for around ...

•2 months ago

Advice on pacing

I’m just waiting on formal diagnosis from the ME doctor but had phone call last week from the ME nurse. He said one of the only way of managing the condition...

I’m just waiting on formal diagnosis from the ME doctor but had phone call last ...

•3 months ago

CFS Relapse

Hi I'm new to the group so please bear with me. I have been managing my CFS very well for the last few years but after having my Gall bladder removed earlier...

Hi I'm new to the group so please bear with me. I have been managing my CFS very...

•3 months ago

Over done it today

Oh boy. Just one day working in a bike shop. Tried sitting on a stool for some of it. So tired. Any advice on meds at all. Or supplements to help. New on here....

Oh boy. Just one day working in a bike shop. Tried sitting on a stool for some o...

•6 months ago

Checking In

Hello to all you beautiful people! How are you guys doing? I understand the challenges we face and pray our strength. I have been having a really rough time,...

Hello to all you beautiful people! How are you guys doing? I understand the chal...

PaigeyPaigeForLife

•7 months ago

PCS or ME

Hi first time post on here I was involved in a car crash 11 weeks ago it was only a light crash did not bang my head. Been to the hospital doctors audiologist....

Hi first time post on here I was involved in a car crash 11 weeks ago it was onl...

•8 months ago

I am reading Dr Byron Hyde's book

Hi I have just bought Dr Byron Hyde;s book Understanding ME but I am not buying it. My head has cleared up over the years and if it were a permanent injury it...

Hi I have just bought Dr Byron Hyde;s book Understanding ME but I am not buying ...

•10 months ago

Lightning Process Exposé

This isn't new, but I've only recently found it and when I was looking for answers after my diagnosis, there wasn't any such commentary. Given how frequently...

This isn't new, but I've only recently found it and when I was looking for answe...

•11 months ago

Back In The Bed

I felt good for a very short period, but now I'm back in the bed. Experiencing a lot of nausea, lots of brain fogginess, nervousness and feeling so much worse...

I felt good for a very short period, but now I'm back in the bed. Experiencing a...

PaigeyPaigeForLife

•11 months ago

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Back In The Bed

I felt good for a very short period, but now I'm back in the bed. Experiencing a lot of nausea, lots of brain fogginess, nervousness and feeling so much worse...

I felt good for a very short period, but now I'm back in the bed. Experiencing a...

PaigeyPaigeForLife

•11 months ago

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Still In The Bed

Checking in, it’s been a rough time for me lately, I have a some days out of bed but more days in bed that I like. If this continues throughout the weekend I...

Checking in, it’s been a rough time for me lately, I have a some days out of bed...

PaigeyPaigeForLife

•1 year ago

Club Bed

Happy New Year Beautiful People! I have been living wirh chronic fatigue since 2013 and still struggling I have been in bed on and off since last year...

Happy New Year Beautiful People! I have been living wirh chronic fatigue since...

PaigeyPaigeForLife

•1 year ago

Club Bed

Happy New Year Beautiful People! I have been living wirh chronic fatigue since 2013 and still struggling I have been in bed on and off since last year...

Happy New Year Beautiful People! I have been living wirh chronic fatigue since...

PaigeyPaigeForLife

•1 year ago

Club Bed

Happy New Year Beautiful People! I have been living wirh chronic fatigue since 2013 and still struggling I have been in bed on and off since last year...

Happy New Year Beautiful People! I have been living wirh chronic fatigue since...

PaigeyPaigeForLife

•1 year ago

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Bad flare - advice?

Hi everyone I am going through a particularly bad flare at the moment. Has been on and off for weeks (e.g. 3 bad days, 1 good day and so on) -unable to sleep...

Hi everyone I am going through a particularly bad flare at the moment. Has been ...

•1 year ago

How did covid jabs affect your ME/CFS?

I have not posted before but am often moved by the posts I read. There are so few solutions out there! I have a dilemma, I live in France and my covid health...

I have not posted before but am often moved by the posts I read. There are so fe...

•1 year ago

2021 flu jab for over 65s…. Exhaustion going on after it

I’m wondering if anyone is experiencing overwhelming exhaustion ( more than usual level) after this years over 65 flu jab? I had it 2 weeks ago. Admittedly I...

I’m wondering if anyone is experiencing overwhelming exhaustion ( more than usua...

•1 year ago

My ME episodes are getting more frequent

My ME makes me just want to sit on the couch, the fog makes driving a bit insecure and working out simple problems or sums a lengthy process. My memory is...

My ME makes me just want to sit on the couch, the fog makes driving a bit insec...

•1 year ago

I'm New Here -- Living with CFS and my treatments

My Treatment I have had CFS and Fibromyalgia for 2, almost 3 years. I have been taking Celebrex and Amytriptaline for about the same years for the pain. I...

My Treatment I have had CFS and Fibromyalgia for 2, almost 3 years. I have been...

•1 year ago

Cfs / ME & tinnitus

Hello there. I'm new to this forum. I've had ME for 20 years and I lead a very quiet life. Last July my previously mild tinnitus got very loud - and it still...

Hello there. I'm new to this forum. I've had ME for 20 years and I lead a very q...

•2 years ago

Can you have M.E/CFS without the fatigue?

Hi I have been suffering for the last 3 years with episodes of flu like symptoms. They usually last 3 months then I’m fine for like a year then they come back....

Hi I have been suffering for the last 3 years with episodes of flu like symptoms...

•2 years ago

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