Natalie62898 days ago
I have a meeting with my manager and executive director tomorrow to discuss reducing my hours at work slightly, my performance and how...
14 Replies1 Like
Sweepy1325 days ago
Hello hope everyone is having a positive day
I have had chest rib ache with a kind of tightness I have had a recent ECG with stress test and...
Getting worse after flu jab
winter2013a month ago
Had flu jab on Saturday which probably wasn’t the best time as am sort in a crash anyway. Have to have it for a lung condition ( non...
Graded Exercise Therapy (GET) is declared ineffective and potentially harmful for ME CFS patients
cwilla month ago
Wow! As a physio I never understood why the fatally flawed PACE trials and others were not judged harshly by Cochrane and other safeguards o...
2 Replies7 Likes
The Gupta Programme
amasufindme2 months ago
Does anyone have any experience of doing this programme by Ashok Gupta about retraining the Amygdala (part of our brain that is responsible ...
Uk GPs only now informed of WHO classification 1995
Charlie16062 months ago
As of 1/8/18 UK goverment recognises M.E/CFS as neurological as per WHO 1995
Maybe now we can get all the help we need
and not be treated inhu...
2 Replies2 Likes
jo192 months ago
Every time I have a crash which usually lasts for two months, all I can think of as I lie down on the bed useless to myself and anyone else ...
They said it didn't exist!!
BeeBee502 months ago
I was diagnosed with CFS/ME along side fibromyalgia a year ago. Exhausted all the time which I thought was a symptom of my heart failure afe...
Be the first to reply5 Likes
I have Cfs/m.e and pots but am going through investigations for a 3rd time due to having vertigo etc the past 6months. Any Tips on coping?
Ponymad2 months ago
Very worried it’s untreatable. It took the Doctors years and years to find out I had pots in the past so suffered years of dizziness
Pots weird blood test ?
H20902 months ago
Hey i was just wondering if any one could help me i have dysautomia pots plus me/cfs plus histimine intolerance and far few other things tha...
Sparked by MrsMouse
nedd3 months ago
Words supplied for belting it out purposes.
Besides man on airing pain podcast assures me singing can only be good for one.
Ready deep breath
Dealing physically and emotionally with the “fall out” from seeing old froends
winter20133 months agoPOPULAR
I imagine I know what the advice will be if anyone has the time, energy or motivation to reply. Feel so unpleasant physically though...
35 Replies1 Like
Has anybody else with M.E went on to devolop sticky blood & had TIAs or full strokes?
Charlie16063 months ago
Please im 5yrs with this and am getting worse
Tomorrow 3rd time of trying ( very trying)
Temperature veering from 32-35 degrees
AWDF3 months ago
Hi, I'm the mum of a 27 year old female who has been having various symptoms including exhaustion and aching all over. CFS is now being con...
jo194 months ago
Hi everyone, I hope you are all able to at least keep your head above water. My doctor just confirmed that I do indeed have ME. It was stres...
Pack of interest in ME/ facebook
winter20134 months ago
Posted yesterday about adrenaline surges and 2 people kindly replied which was helpful.
Trying to accept and understand our conditio...
Feel shaky when or just after had some energy
I have probably had elements of ME/CFS for years. A GP first suggested it 3 years ago but as I have a lung condition which makes me...
Working with ME
Maddie214 months ago
I have not had an actual diagnosis but I do think that it is a strong possibility that I have ME.
Can anyone tell me any tips as to ho...
7 Replies1 Like
Important ME Petition
cwill4 months ago
This has just landed in my inbox. Carol Monaghan is asking for what every person with ME wants: benefits, health and social care, a research...
2 Replies1 Like
The ME Westminster Hall Debate
cwill5 months ago
Well! Emotions ran high both in the chamber and amongst the viewers. We were heard with issues raised. Whether the minister actually acts is...
3 Replies4 Likes
Degeneration of central nervus system
cutecub_x5 months ago
As many of u well no, M.E is a Nuerological central nervus system illness involving literally every system in ur body
I was lucky to get an M...
8 Replies1 Like
Briefing document from Invest in ME Research. An appalling state of affairs.
This is a long document clearly written. You can scan through and see how many failures are recorded against the UKs own guidelines and stat...
1 Reply2 Likes
A letter to the Lancet regarding the PACE trial. We have powerful friends!
These blogs are well worth a read if you are able. This is the second time multiple signatories have requested the withdrawal of the PACE tr...
xkathx5 months ago
I have suffered from ME/CFS for approx 20yrs, I now cope with all the things it throws at me but find the Fatigue to be really hard to manag...
Westminster debate on M.E.
topaz15 months ago
This is a linke to ME missing and the debate in Parliament soon.
Also a link to contact your MP to ask them to attend.
Be the first to reply3 Likes
Pacing and heart rate
siannie5 months ago
Hello new to this forum.
I have Hashimoto disease and was diagnosed last April with ME/CFS . I see an endo privately who closely monitors my...
Sammi-rose174135 months ago
i had my esa assessment and the assessor focused on just my incontanence and nothing else saying she knows what the dwp are looking for. eve...
ME-sympathic doctor needed
lin235 months ago
Can anyone recommend an ME-sympathetic GP in the St Austell, Cornwall area? My previous GP has sadly left.
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Hello new on here new diagnosis looking to share knowledge and understand this condition
Duncansyard6 months ago
Hi new diagnosis looking for direction re mamagemt and promoting healing
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