Julie873 days ago
Anyone has had B12 level of 1500 and using a b12 spray and has had injections with that level? I think I am B12 dificent but using a B12 spr...
Has anyone had there homocysteine tested at home by the York test.?
My homocysteine is very high 18 and looking at a private test cos doc wo...
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Newbie here.Why am I so sleepy?
Daisycav14 days ago
I have had ? ME ? Addisons? POTS ? anything you want to insert here!! for a few years now although the Drs I have seen cannot seem to decide...
3 Replies1 Like
Band of fire
Pita668 days ago
Hi all, Hope everyone is managing to cope today, I have a question for you all, I have found that when i'm laying flat I can't raise either ...
Julie878 days ago
I wrote to my MP about lack of support in advice about my Homocysteine and low across the board in vitamins he sent all to the GP who in ear...
Cfs and root canals
joebloa month ago
Hi everyone, so my question is to do with root canals and cfs.
Ive had loads of root canals and am currently diagnosed with cfs even though m...
Has anyone with ME Deteriorated over time?
Murfle2 months ago
Has anyone with ME found they have deteriorated over time? I adapted to my new normal after being diagnosed over two years ago. I relapsed l...
11 Replies2 Likes
Hope this helps!
jo192 months ago
Hi everyone, hope you are all keeping your head above water. I know how delibitating this Illness is but I wanted to share my experience wit...
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Kitten502 months ago
Had the most horrific day yesterday, I felt so ill. My body aches everywhere I have no energy at all, it's even a struggle to go to the toil...
Natalie62892 months ago
I have a meeting with my manager and executive director tomorrow to discuss reducing my hours at work slightly, my performance and how...
14 Replies1 Like
Sweepy133 months ago
Hello hope everyone is having a positive day
I have had chest rib ache with a kind of tightness I have had a recent ECG with stress test and...
Getting worse after flu jab
winter20133 months ago
Had flu jab on Saturday which probably wasn’t the best time as am sort in a crash anyway. Have to have it for a lung condition ( non...
Graded Exercise Therapy (GET) is declared ineffective and potentially harmful for ME CFS patients
cwill3 months ago
Wow! As a physio I never understood why the fatally flawed PACE trials and others were not judged harshly by Cochrane and other safeguards o...
2 Replies7 Likes
The Gupta Programme
amasufindme4 months ago
Does anyone have any experience of doing this programme by Ashok Gupta about retraining the Amygdala (part of our brain that is responsible ...
Uk GPs only now informed of WHO classification 1995
Charlie16064 months ago
As of 1/8/18 UK goverment recognises M.E/CFS as neurological as per WHO 1995
Maybe now we can get all the help we need
and not be treated inhu...
2 Replies2 Likes
jo194 months ago
Every time I have a crash which usually lasts for two months, all I can think of as I lie down on the bed useless to myself and anyone else ...
They said it didn't exist!!
BeeBee504 months ago
I was diagnosed with CFS/ME along side fibromyalgia a year ago. Exhausted all the time which I thought was a symptom of my heart failure afe...
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I have Cfs/m.e and pots but am going through investigations for a 3rd time due to having vertigo etc the past 6months. Any Tips on coping?
Ponymad4 months ago
Very worried it’s untreatable. It took the Doctors years and years to find out I had pots in the past so suffered years of dizziness
Pots weird blood test ?
H20904 months ago
Hey i was just wondering if any one could help me i have dysautomia pots plus me/cfs plus histimine intolerance and far few other things tha...
Sparked by MrsMouse
nedd5 months ago
Words supplied for belting it out purposes.
Besides man on airing pain podcast assures me singing can only be good for one.
Ready deep breath
Dealing physically and emotionally with the “fall out” from seeing old froends
winter20135 months agoPOPULAR
I imagine I know what the advice will be if anyone has the time, energy or motivation to reply. Feel so unpleasant physically though...
35 Replies2 Likes
Has anybody else with M.E went on to devolop sticky blood & had TIAs or full strokes?
Charlie16065 months ago
Please im 5yrs with this and am getting worse
Tomorrow 3rd time of trying ( very trying)
Temperature veering from 32-35 degrees
AWDF6 months ago
Hi, I'm the mum of a 27 year old female who has been having various symptoms including exhaustion and aching all over. CFS is now being con...
jo196 months ago
Hi everyone, I hope you are all able to at least keep your head above water. My doctor just confirmed that I do indeed have ME. It was stres...
Pack of interest in ME/ facebook
winter20136 months ago
Posted yesterday about adrenaline surges and 2 people kindly replied which was helpful.
Trying to accept and understand our conditio...
Feel shaky when or just after had some energy
I have probably had elements of ME/CFS for years. A GP first suggested it 3 years ago but as I have a lung condition which makes me...
Working with ME
Maddie216 months ago
I have not had an actual diagnosis but I do think that it is a strong possibility that I have ME.
Can anyone tell me any tips as to ho...
7 Replies1 Like
Important ME Petition
cwill7 months ago
This has just landed in my inbox. Carol Monaghan is asking for what every person with ME wants: benefits, health and social care, a research...
2 Replies1 Like
The ME Westminster Hall Debate
Well! Emotions ran high both in the chamber and amongst the viewers. We were heard with issues raised. Whether the minister actually acts is...
3 Replies4 Likes
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