The ME Westminster Hall Debate
cwill2 days ago
Well! Emotions ran high both in the chamber and amongst the viewers. We were heard with issues raised. Whether the minister actually acts is...
3 Replies3 Likes
Degeneration of central nervus system
cutecub_x2 days ago
As many of u well no, M.E is a Nuerological central nervus system illness involving literally every system in ur body
I was lucky to get an M...
Briefing document from Invest in ME Research. An appalling state of affairs.
cwill4 days ago
This is a long document clearly written. You can scan through and see how many failures are recorded against the UKs own guidelines and stat...
1 Reply2 Likes
A letter to the Lancet regarding the PACE trial. We have powerful friends!
These blogs are well worth a read if you are able. This is the second time multiple signatories have requested the withdrawal of the PACE tr...
xkathx4 days ago
I have suffered from ME/CFS for approx 20yrs, I now cope with all the things it throws at me but find the Fatigue to be really hard to manag...
Westminster debate on M.E.
topaz15 days ago
This is a linke to ME missing and the debate in Parliament soon.
Also a link to contact your MP to ask them to attend.
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Pacing and heart rate
siannie16 days ago
Hello new to this forum.
I have Hashimoto disease and was diagnosed last April with ME/CFS . I see an endo privately who closely monitors my...
Sammi-rose1741320 days ago
i had my esa assessment and the assessor focused on just my incontanence and nothing else saying she knows what the dwp are looking for. eve...
ME-sympathic doctor needed
lin2321 days ago
Can anyone recommend an ME-sympathetic GP in the St Austell, Cornwall area? My previous GP has sadly left.
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Hello new on here new diagnosis looking to share knowledge and understand this condition
Duncansyarda month ago
Hi new diagnosis looking for direction re mamagemt and promoting healing
Indenting veins in arms
Beau66a month ago
Just wondered if anyone has this? It’s like your veins are making a indented groove mostly on elevation
The ME documentary on BBC iplayer for 11 months.
cwill2 months ago
1 Reply1 Like
davjul2 months ago
Hello everybody, I'm new to this forum, and I really need help.
I've been sick for one year without a successful diagnosis, my symptoms are: ...
Sooooo exhausted lately 😴😴
MysteriousMel2 months ago
Cant seem to be able to gain any energy an thats with being in rest for days an nights on end dont know what im doing wrong 😫
BBC documentary to be aired in ME week.
This is all I know so get googling or check out UK charity pages as they will be publisicing events I’m sure.
5 Replies3 Likes
cfs_warrior42 months ago
So hello! I never properly introduced myself to this community. I was diagnosed with CFS/ME at 19. I am almost 22. It’s been a struggle. I d...
4 Replies2 Likes
JessAH2 months ago
Was wondering if anyone (especially with severe ME) have struggled with their tears? I know this sounds bonkers, but since getting s...
Calliepet3 months ago
Would anyone like to be represented at the Southampton Millions Missing visibility action for ME/CFS on May 12th. We would love to display ...
4 Replies3 Likes
Newbie - CFS
Lynzhoppy13 months ago
Hi everyone, I hope you are all as well as can be.
So my GP feels I have CFS on top of everything else I have going on!! He’s referred me to ...
10 Replies1 Like
How to shake off nasty comments from person at support group?
NotBertieWooster3 months ago
I was able to go to a CFS support group meeting this Monday for the first time. The coordinator is lovely and probably half the ...
17 Replies1 Like
BBC article on research controversy
Starry3 months ago
Has anyone seen this article? What are your thoughts?
5 Replies2 Likes
Hello and need a good neuro
MsAndyIvy3 months ago
I’m new on this forum but a member of Lupus one.
GP and rheumatologist both seem to think ME as they’ve run out of options after much testi...
Cannabus oil ?
xkathx3 months ago
I have read how good Cannabis oil is, I was wondering if it would help with the CFS side of M.E or would it make it worse by relaxing the bo...
Work capability form.
Shearers14 months ago
I have parkinsons and I am in work support group.has anyone been asked to fill work capability form in similer circumstances.
Hard to cope.
jo194 months ago
Hi all I have just joined this community after diagnosing myself from an article I read. I have been dealing with this for two years. I have...
Any ME patients out there with diabetes too?
Kazandoz5 months ago
Having difficulty getting a diagnosis as none of my specialists will do some joined up thinking with everything thats happening. This ...
5 Replies1 Like
Simmeke835 months ago
Not too sure what advice I need really. It seems like my world gone upside down in the last couple of months. My work has been extremel...
aliciajasmine175 months ago
Had chronic fatigue/pain syndrome since early 2014, always had sleep problems - the usual - insomnia, going nights without sleep. Yesterday ...
nedd6 months ago
I've really posted that for me.
I don't know about you all. But I hide so many things. And am still working on the magic of
2 Replies9 Likes
Social life = zero
Simmeke836 months ago
Does anybody with chronic condition feel lonely? I found myself literally not going out anywhere. My work exhausts me to the point that I am...
6 Replies3 Likes
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