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Myalgic Encephalomyelitis Community

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Hello 😎

Hello everybody, I’m new to this group but not to this website…. It’s so hard to know what to say to people these days everyone starts with how are you and...

Hello everybody, I’m new to this group but not to this website…. It’s so hard ...

Kellthebell

•16 days ago

19 Replies

Hello, new to the group.

Hello everyone, I think my fatigue problems started when I had Steven' Johnson's syndrome in 1995. I just kept pushing through. In 2019 my asthma became...

Hello everyone, I think my fatigue problems started when I had Steven' Johnson's...

MMBJI

•25 days ago

4 Replies

Happy New year.

I would like to wish you all a Happy New year. I hope you will all be as well as possible. X

I would like to wish you all a Happy New year. I hope you will all be as well as...

Kitten-kat23

•1 month ago

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Holter monitor results??

Hi, I was just wondering if any one had any experience with results of Holter monitors. Mine was a 24 hrs Holter monitor and it's been 2 weeks now with no...

Hi, I was just wondering if any one had any experience with results of Holter mo...

CookieMunch22

•1 month ago

5 Replies

Tachycardia

Hi, Does anyone have any problems with tachycardia and cfs? I have bad chronic Fatigue Symptoms but have been told that it could be due to tachycardia? any...

Hi, Does anyone have any problems with tachycardia and cfs? I have bad chroni...

CookieMunch22

•2 months ago

10 Replies

Missing heaths records

So finally moved doctors gp My records all missing my M.Ecfs Fibromyalgia Post exerional Malaise Restless leg syndtrome diagnosis all gone astray and im am...

So finally moved doctors gp My records all missing my M.Ecfs Fibromyalgia Post e...

Charlie1606

•2 months ago

1 Reply

Peer Review?

Hi, I'm wondering if I have this disorder but can't currently get a proper diagnosis/go to a doctor about it. How do I know if I have this disorder?I don't...

Hi, I'm wondering if I have this disorder but can't currently get a proper diagn...

ParkerNeedsAMinute

•4 months ago

3 Replies

Psychologist recommendation?

Hello, Does anyone have a recommendation for a psychologist specialising in ME? I am in London but willing to travel. Many thanks 😀

Hello, Does anyone have a recommendation for a psychologist specialising in ME?...

Coulterm

•5 months ago

2 Replies

Tips on how to manage a trip from UK to NZ with CFS

Hi, I've had CFS plus other chronic conditions for 24 years. Just had one total knee replacement with another to follow. Needless to say I've crashed. I really...

Hi, I've had CFS plus other chronic conditions for 24 years. Just had one total ...

stravinsky1

•6 months ago

6 Replies

work and ME

hi everyone I am new here . I have had ME(cfs) for years . I used to work full time before surgery now back three days and this week had a half day trail at...

hi everyone I am new here . I have had ME(cfs) for years . I used to work full...

Amanda556

•6 months ago

2 Replies

lol i found out today that postage has gone up.

i was at the post office, used an old stamp, thankfully i was posting it at the counter so my post officer said it's gone up. i said i didn't know, i live in...

i was at the post office, used an old stamp, thankfully i was posting it at the ...

MayGodBlessYou

•6 months ago

1 Reply

How many of us have a misdiagnosis and undiagnosed lyme disease?

Heart block tachycardic hypertensive lung issues gastric issues nerve pain swollen joint arthritis chronic fataigue Post exertional malaise etc skin issues

Heart block tachycardic hypertensive lung issues gastric issues nerve pain swol...

Charlie1606

•6 months ago

3 Replies

another week without a shampoo

but i do appreciate it's winter, so showers and shampoos matter less than in summer! often i get round to wondering what's caused the exhaustion, wondering...

but i do appreciate it's winter, so showers and shampoos matter less than in sum...

MayGodBlessYou

•7 months ago

2 Replies

worm tablets pyrantel and mebendazole

for something to have a go at, 3 years ago, i took worm tablets. in case i had parasites. 10+ years earlier my g.p had put me on worm treatment parex (which...

for something to have a go at, 3 years ago, i took worm tablets. in case i had...

MayGodBlessYou

•7 months ago

3 Replies

Tired Tavern - a community for people with CFS/ME

Hi, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's a space where we can all share tips, support each other, and just chat...

Hi, Tired Tavern is community server for people with CFS/ME and/or Long Covid. ...

TiredTavern

•7 months ago

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A live day in the life of Someone with M.E.

A very famous science influencer by the name of Physics Girl is running a completely live breakdown of her day on YouTube....

A very famous science influencer by the name of Physics Girl is running a comple...

Alanna012

•7 months ago

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Online support groups

Hi, Does anyone know of any good online support groups please? Karen

klr31

•7 months ago

10 Replies

High ANA (antinuclear antibodies)

Hello, I am new in this group, but have been searching for answers for years about chronic fatigue. Over a decade ago, I thought I'd found the answer as I...

Hello, I am new in this group, but have been searching for answers for years abo...

hawkis

•9 months ago

6 Replies

Sound Familiar?

Hi everyone! Hope you're all well and apologies for the oncoming rant. I've been having musings about potentially having ME for a while now but getting a...

Hi everyone! Hope you're all well and apologies for the oncoming rant. I've be...

iOwlface

•9 months ago

5 Replies

Tired Tavern - a Discord community for people with CFS/ME and/or Long Covid (PACS)

Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 400+ members since starting last December. It's a...

Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS)...

TiredTavern

•9 months ago

Be the first to reply

Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December....

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Co...

TiredTavern

•10 months ago

Be the first to reply

Advice wanted - relatively new here

Hi all, I’m writing after a recent ME diagnosis, after being ill approx 2- 3 years. When I first got symptoms, I started having acupuncture and taking...

Hi all, I’m writing after a recent ME diagnosis, after being ill approx 2- 3 y...

Tiredtwinmum20

•11 months ago

13 Replies

how do you deal with extreme coldness and shivers?

I have had fibromyalgia for 25 years, but never such coldness which makes me want to hide in bed for warmth.

I have had fibromyalgia for 25 years, but never such coldness which makes me wa...

Shirlchristine

•11 months ago

4 Replies

Tired Tavern - Discord community for people with CFS/ME and/or Long Covid (PACS)

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December....

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Co...

TiredTavern

•11 months ago

1 Reply

Nicotine patches

Hello, has anyone had success feeling better with nicotine patches?

Sammy333

•11 months ago

7 Replies

Post dental treatment

Wondering how you are all doing? Just has some dental treatment this week and thought I was doing okay after it but now feeling the effects. Why does dental...

Wondering how you are all doing? Just has some dental treatment this week and t...

strongmouse

•11 months ago

3 Replies

Tired Tavern - Discord community for people with CFS/ME and/or Long Covid (PACS)

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences...

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Co...

TiredTavern

•1 year ago

1 Reply

Diagnosing ME/CFS

Just getting round to reading the Winter 2023 edition of the ME Associations magazine and they have a free booklet titled The Importance of an Early & Accurate...

Just getting round to reading the Winter 2023 edition of the ME Associations mag...

PortiaRose123

•1 year ago

Be the first to reply

Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences...

Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Co...

TiredTavern

•1 year ago

Be the first to reply

New and need help

Hi all, I should say I haven’t been given a diagnosis however my GP has suggested that this may be the cause. I had a viral infection two months ago which...

Hi all, I should say I haven’t been given a diagnosis however my GP has suggeste...

Hatwindowwindow4

•1 year ago

19 Replies

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Posts - Myalgic Encephalomyelitis Community | HealthUnlocked

Myalgic Encephalomyelitis Community

Hello 😎

Hello, new to the group.

Happy New year.

Holter monitor results??

Tachycardia

Missing heaths records

Peer Review?

Psychologist recommendation?

Tips on how to manage a trip from UK to NZ with CFS

work and ME

lol i found out today that postage has gone up.

How many of us have a misdiagnosis and undiagnosed lyme disease?

another week without a shampoo

worm tablets pyrantel and mebendazole

Tired Tavern - a community for people with CFS/ME

A live day in the life of Someone with M.E.

Online support groups

High ANA (antinuclear antibodies)

Sound Familiar?

Tired Tavern - a Discord community for people with CFS/ME and/or Long Covid (PACS)

Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)

Advice wanted - relatively new here

how do you deal with extreme coldness and shivers?

Tired Tavern - Discord community for people with CFS/ME and/or Long Covid (PACS)

Nicotine patches

Post dental treatment

Tired Tavern - Discord community for people with CFS/ME and/or Long Covid (PACS)

Diagnosing ME/CFS

Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)

New and need help

Search posts

Pinned Posts

Latest poll

If ever been seen by UK 'CFS/ME' clinics what was your experience? Tick any that apply. (Will be more polls on this subject in future too!)

Topics

Archive