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Myalgic Encephalomyelitis Community

2,137 members•660 posts

All posts for June 2018

The ME Westminster Hall Debate

Well! Emotions ran high both in the chamber and amongst the viewers. We were heard with issues raised. Whether the minister actually acts is another matter....

Well! Emotions ran high both in the chamber and amongst the viewers. We were hea...

cwill

•7 years ago

3 Replies

Degeneration of central nervus system

As many of u well no, M.E is a Nuerological central nervus system illness involving literally every system in ur body I was lucky to get an M.E diagnosis at...

As many of u well no, M.E is a Nuerological central nervus system illness involv...

cutecub_x

•7 years ago

9 Replies

Briefing document from Invest in ME Research. An appalling state of affairs.

This is a long document clearly written. You can scan through and see how many failures are recorded against the UKs own guidelines and statements. A briefer...

This is a long document clearly written. You can scan through and see how many f...

cwill

•7 years ago

1 Reply

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A letter to the Lancet regarding the PACE trial. We have powerful friends!

These blogs are well worth a read if you are able. This is the second time multiple signatories have requested the withdrawal of the PACE trial from the...

These blogs are well worth a read if you are able. This is the second time multi...

cwill

•7 years ago

3 Replies

My ME/CFS

I have suffered from ME/CFS for approx 20yrs, I now cope with all the things it throws at me but find the Fatigue to be really hard to manage at times. I have...

I have suffered from ME/CFS for approx 20yrs, I now cope with all the things it ...

xkathx

•7 years ago

3 Replies

Westminster debate on M.E.

This is a linke to ME missing and the debate in Parliament soon. Also a link to contact your MP to ask them to attend....

This is a linke to ME missing and the debate in Parliament soon. Also a link to ...

topaz1

•7 years ago

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Pacing and heart rate

Hello new to this forum. I have Hashimoto disease and was diagnosed last April with ME/CFS . I see an endo privately who closely monitors my thyroid,vita etc...

Hello new to this forum. I have Hashimoto disease and was diagnosed last April ...

siannie

•7 years ago

2 Replies

esa assessment

i had my esa assessment and the assessor focused on just my incontanence and nothing else saying she knows what the dwp are looking for. every time i brought...

i had my esa assessment and the assessor focused on just my incontanence and not...

Sammi-rose17413

•7 years ago

1 Reply

ME-sympathic doctor needed

Can anyone recommend an ME-sympathetic GP in the St Austell, Cornwall area? My previous GP has sadly left.

Can anyone recommend an ME-sympathetic GP in the St Austell, Cornwall area? My p...

lin23

•7 years ago

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Posts - Myalgic Encephalomyelitis Community | HealthUnlocked

Myalgic Encephalomyelitis Community

All posts for June 2018

The ME Westminster Hall Debate

Degeneration of central nervus system

Briefing document from Invest in ME Research. An appalling state of affairs.

A letter to the Lancet regarding the PACE trial. We have powerful friends!

My ME/CFS

Westminster debate on M.E.

Pacing and heart rate

esa assessment

ME-sympathic doctor needed

Search posts

Pinned Posts

Latest poll

If ever been seen by UK 'CFS/ME' clinics what was your experience? Tick any that apply. (Will be more polls on this subject in future too!)

Topics

Archive