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Myalgic Encephalomyelitis Community

2,020 members • 633 posts

All posts for January 2019

Bath M.E Children Unit - any experiences please?

Hello ME community Can anyone comment on the specialist children’s ME unit at Bath Hospital (run by Dr Esther Crawley)? I am new to this forum but grateful to...

Hello ME community Can anyone comment on the specialist children’s ME unit at Ba...

Scooby2001

•5 years ago

4 Replies

Surviving pip assessment.

So a little pip update. Had a guy come yesterday. I was flat out on the sofa in sunglasses and fading fast. Think he was new, but qualified nurse trainer. It...

So a little pip update. Had a guy come yesterday. I was flat out on the sofa in ...

Starry

•5 years ago

10 Replies

Worth a thousand words ...

For those who have not encountered it, the Chronic Illness Inclusion Project is led by disabled people living with energy-limiting chronic illness. Their aim...

For those who have not encountered it, the Chronic Illness Inclusion Project is ...

lady_eve

•5 years ago

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Daughter diagnosed CFS-ME, struggling with professionals different views and attitudes.

in short approx. 2 years ago our now 7 year old started to become exhausted constantly complained of pains all over, struggled with infection after infection....

in short approx. 2 years ago our now 7 year old started to become exhausted cons...

mummy-26

•5 years ago

11 Replies

B12 1500

Anyone has had B12 level of 1500 and using a b12 spray and has had injections with that level? I think I am B12 dificent but using a B12 spray for over two...

Anyone has had B12 level of 1500 and using a b12 spray and has had injections wi...

Jan87

•5 years ago

19 Replies

High homocysteine

Has anyone had there homocysteine tested at home by the York test.? My homocysteine is very high 18 and looking at a private test cos doc won’t do it.

Has anyone had there homocysteine tested at home by the York test.? My homocyste...

Jan87

•5 years ago

1 Reply

Newbie here.Why am I so sleepy?

I have had ? ME ? Addisons? POTS ? anything you want to insert here!! for a few years now although the Drs I have seen cannot seem to decide what is wrong with...

I have had ? ME ? Addisons? POTS ? anything you want to insert here!! for a few ...

Daisycav1

•5 years ago

4 Replies

Band of fire

Hi all, Hope everyone is managing to cope today, I have a question for you all, I have found that when i'm laying flat I can't raise either of my legs up all...

Hi all, Hope everyone is managing to cope today, I have a question for you all, ...

Hidden

•5 years ago

2 Replies

ME/CFS

I wrote to my MP about lack of support in advice about my Homocysteine and low across the board in vitamins he sent all to the GP who in early December said he...

I wrote to my MP about lack of support in advice about my Homocysteine and low a...

Jan87

•5 years ago

3 Replies

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Posts - Myalgic Encephalomyelitis Community | HealthUnlocked

Myalgic Encephalomyelitis Community

All posts for January 2019

Bath M.E Children Unit - any experiences please?

Surviving pip assessment.

Worth a thousand words ...

Daughter diagnosed CFS-ME, struggling with professionals different views and attitudes.

B12 1500

High homocysteine

Newbie here.Why am I so sleepy?

Band of fire

ME/CFS

Search posts

Pinned Posts

Latest poll

If ever been seen by UK 'CFS/ME' clinics what was your experience? Tick any that apply. (Will be more polls on this subject in future too!)

Topics

Archive