How many of us have a misdiagnosis and undiagnosed lyme disease?

[Charlie1606]

Heart block tachycardic hypertensive lung issues gastric issues nerve pain swollen joint arthritis chronic fataigue Post exertional malaise etc skin issues

[ButterflyPrincess1]

Hello,

I can only speak from my own knowledge and experience, as nobody here is medically qualified.

As far as I know, M.E/CFS is a diagnosis given by excluding every other explanation for the symptoms we have.

This can be a long process because it involves lots of tests (mainly blood tests, in my case).

Some may also have an MRI scan of the brain, to rule out Multiple Sclerosis (MS).

If all the tests are normal, then an M.E/CFS diagnosis can be given.

If you're unhappy with your care or diagnosis, you can seek a second opinion.

There's lots of information online about the diagnostic criteria for M.E/CFS.

However, take care to use reputable sources, such as the M.E Association.

[klr31]

I wish doctors knew the importance of checking the thyroid. Karen

[_Sarah_J]

This does happen, and I’m now wondering if it’s true for me. I just requested labs for Lyme. Lyme testing often comes back false negative, but one step at a time…