On Wednesday I was given the first of two Rituximab infusion after waiting over two years for the funding for this drug.
I went into my local hospital Rheumatology Day Unit at 9am and after I was admitted and given a hot drink I was first given an infusion of Steroid to help combat any infections and then Paracetamol tablets and Piriton (Antihistamine) to help with any reaction such as itching. Then I was given the Rituximab via a drip which took about four hours.
After taking the Piriton I went to sleep and had to be woken up every fifteen minutes for my blood pressure, temperature and oxygen saturation levels to be taken. Piriton the antihistamine always makes me sleepy and so I found it very difficult not to sleep.
Once the infusion had finished I was discharged and I left after about thirty minutes still feeling tired and sleepy and very light headed.
Today Friday I am very tired and my body feels as if I have been working out at the gym. So rest, rest and more rest is the order of the day for me.
Thanks to everyone for your support whilst I was waiting for the funding for this drug. I will be having a Lung Function Test next week and will be seeing my consultant a week after the next infusion so I am praying for some improvements i.e. my lungs (Pulmonary Fibrosis), pain in joints and brain fog.
Lots of love