Experiences with

Plaquenil

Hello has anyone taken Plaquenil to help reduce steroids for PMR? did it work? any side effects? My Rheumy says it's better to be on Plaquenil than steroids long term so it's worth trying because I'm having trouble getting off steroids.

I have been on Plaquenil for several years with no issues, but for the last month when I take it, I start to feel sick after about 30mins, it subside during the day, but takes a few hours. I have been taking the same brand all the time, so not sure what could be causing it.

Hello, I have been diagnosed with UCTD and synovitis in both hands and I’m currently on prednisone 20mg Plaquenil 200mg 2x, Savella 50mg, Gabapentin 400mg. With all that my Crp and esr are both at 41 and I’m still in pain and very fatigued. I’ve been on these meds since May 2024.

I took high doses of Prednisone and Plaquenil and it put me into remission for about 7 years. I recently was hospitalized for swollen legs and ankles again and it seems I am sick again and will be put back on high dose steroids and the Plaquenil.

I took high doses of Prednisone and Plaquenil and it put me into remission for about 7 years. I recently was hospitalized for swollen legs and ankles again and it seems I am sick again and will be put back on high dose steroids and the Plaquenil.

Plaquenil. Lots of up’s and downs but trying to stay positive because I have been able to cope fairly well until this last month.

She also started me on plaquenil. Now before the medicine I had 2 positive Ana with nucleoar . She rechecked a couple days ago and my Ana was negative. How can that be? She believes I have lupus and myositis. Has anyone have that happen to them

Je suis sous plaquenil et cortisone 10mg en échec thérapeutique avec le methotrexate, l'immortel et depuis peu l'arava. Je commence à désespérer. J'entends parler de la biothérapie mais c'est très cher et les mèdecins l'utilisent avec parcimonie.Y a t'il d'autres approches thérapeutiques efficaces.

I have been on 400 mg of plaquenil and prednisone daily since, now reduced to 5 mg a day. In January, my doctor had me try to stop taking the prednisone without tapering down and that was when I first experienced the typical lupus symptoms (or steroid withdrawal rheumatism??)

I'm on Plaquenil which helps A LOT with ulcers. I also just started Colchicine for flares and Imuran daily. I've also been on Otezla since August of 2023. I guess my question is how long did it take you to notice a difference on Otezla?

I am on Plaquenil, Gabapentin, Zyrtec, Pepsid and Singular! also..my WHOLE entire body is itchy 24/7band it drives me CRAZY. It is the worst on my hands and feet advice pls!!

Hi I have SLE had it for 27 years and have not taken any thing for it just started taking Plaquenil. (Hydroxychloroquine) Is there anyone out there that has been on it for a while and if so has it helped them. I just never feel well so I am hoping it will help. Thanks

He added 81 mg aspirin to my 15 mgs. of warfarin along with my 600 mg plaquenil. It helped back then. I eventually discontinued aspirin but have continued with my 15 mgs. warfarin and 600 mg of Plaquenil and have been pretty good with the micro clots up until about a month ago.

Methotrexate and plaquenil. and have not been able,(until now) to decrease my pred. amount. Last June I was given 25mg pred. because I had major surgery and it was felt I needed a higher dose in order to help me recover. Since that time I only had one flare that set me back a little.

I take Plaquenil twice a day. I develop a rash on my left eyelid every so often. It seems to be a sign I am getting sick. I have had it the past month. It is itchy at times, but at the moment it just looks very red and dry. I have tried a variety of things.

Basically nothing else was controlling the flares, tried aza, colchicine, plaquenil, methotrexate, mercaptopurine, humira and probably others that I've forgotten. My steroid use was getting a little out of hand and the higher doses have a pretty negative impact on my mental health.

Anyone taking Plaquenil and have insomnia and what sleep meds have worked for you? Thank you.

I take Plaquenil for joint pain/RA and omeprazole for GERD/hiatus hernia. I also have Raynaud's mainly hands and feet.

The Plaquenil I don't mind, as side effects are nil. But there is still a financial cost to them too. Middle fingers are stiff, have to put up with it for now. But I am sleeping better, my hands don't fall asleep as much or as painful as they were.

I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence? Thanks for any advice.