Experiences with

Plaquenil

Hi I was diagnosed with lupus around 2 years ago I’ve been on plaquenil 200mg morning and night since and prednisone when I have flares but I’ve been in pain since October so my rhumatologist has decided to start me on methotrexate injections so I’m now on plaquenil 200mg in morning and night 20mg prednisone

Hi I was diagnosed with lupus around 2 years ago I’ve been on plaquenil 200mg morning and night since and prednisone when I have flares but I’ve been in pain since October so my rhumatologist has decided to start me on methotrexate injections so I’m now on plaquenil 200mg in morning and night 20mg prednisone

About to try Plaquenil - very upsetting as there is nothing that has worked and the spots continue. It looks a bit like a massive outbreak of chicken pox! Just looking for suggestions. Its likely tied to inflammation in the body so I am working to reduce that.

I have been on Plaquenil for several years with no issues, but for the last month when I take it, I start to feel sick after about 30mins, it subside during the day, but takes a few hours. I have been taking the same brand all the time, so not sure what could be causing it.

Hello has anyone taken Plaquenil to help reduce steroids for PMR? did it work? any side effects? My Rheumy says it's better to be on Plaquenil than steroids long term so it's worth trying because I'm having trouble getting off steroids.

Hi everyone, I started methotrexate injections as well as 20mg prednisone a day plus 400mg plaquenil just over a month ago, I’ve been having blood tests every week, my leucocytes are rising last ones were 18.3 G/L my neutrophils are 17,22 G/L and my lymphocytes are 0,69 G/L, trying to get hold of my

Plaquenil. Lots of up’s and downs but trying to stay positive because I have been able to cope fairly well until this last month.

I took high doses of Prednisone and Plaquenil and it put me into remission for about 7 years. I recently was hospitalized for swollen legs and ankles again and it seems I am sick again and will be put back on high dose steroids and the Plaquenil.

I took high doses of Prednisone and Plaquenil and it put me into remission for about 7 years. I recently was hospitalized for swollen legs and ankles again and it seems I am sick again and will be put back on high dose steroids and the Plaquenil.

Hello, I have been diagnosed with UCTD and synovitis in both hands and I’m currently on prednisone 20mg Plaquenil 200mg 2x, Savella 50mg, Gabapentin 400mg. With all that my Crp and esr are both at 41 and I’m still in pain and very fatigued. I’ve been on these meds since May 2024.

I have been on 400 mg of plaquenil and prednisone daily since, now reduced to 5 mg a day. In January, my doctor had me try to stop taking the prednisone without tapering down and that was when I first experienced the typical lupus symptoms (or steroid withdrawal rheumatism??)

She also started me on plaquenil. Now before the medicine I had 2 positive Ana with nucleoar . She rechecked a couple days ago and my Ana was negative. How can that be? She believes I have lupus and myositis. Has anyone have that happen to them

Je suis sous plaquenil et cortisone 10mg en échec thérapeutique avec le methotrexate, l'immortel et depuis peu l'arava. Je commence à désespérer. J'entends parler de la biothérapie mais c'est très cher et les mèdecins l'utilisent avec parcimonie.Y a t'il d'autres approches thérapeutiques efficaces.

I've been taking Methylprednisolone longterm for lupus (along with plaquenil) and over the past 8-10 months I've finally tapered down to 2mg every other day until Jan 1st. I'm thrilled to be stopping it, well hopefully, but I can't find any info about what to expect. Especially positive things.

I'm on Plaquenil which helps A LOT with ulcers. I also just started Colchicine for flares and Imuran daily. I've also been on Otezla since August of 2023. I guess my question is how long did it take you to notice a difference on Otezla?

I am on Plaquenil, Gabapentin, Zyrtec, Pepsid and Singular! also..my WHOLE entire body is itchy 24/7band it drives me CRAZY. It is the worst on my hands and feet advice pls!!

Methotrexate and plaquenil. and have not been able,(until now) to decrease my pred. amount. Last June I was given 25mg pred. because I had major surgery and it was felt I needed a higher dose in order to help me recover. Since that time I only had one flare that set me back a little.

About me: 33yo woman with lupus, in remission for over a year, taking 200mg plaquenil and 5mg prednisolone daily. I just tried Lion's Mane (500mg) and L-Theanine (100mg) supplements with a cup of coffee to help with focus.

Hi I have SLE had it for 27 years and have not taken any thing for it just started taking Plaquenil. (Hydroxychloroquine) Is there anyone out there that has been on it for a while and if so has it helped them. I just never feel well so I am hoping it will help. Thanks

He added 81 mg aspirin to my 15 mgs. of warfarin along with my 600 mg plaquenil. It helped back then. I eventually discontinued aspirin but have continued with my 15 mgs. warfarin and 600 mg of Plaquenil and have been pretty good with the micro clots up until about a month ago.