Hi - I'm new here, have been reading a few of your posts and thought I should come out of lurking...It is a bit of a long rambly one i'm afraid because I don't know which symptoms might relate to a broader condition or whether it is just getting older/separate conditions (i'm 39). I also feel like I sound like a moaning Myrtle sometimes!!
My problems started about 10 years ago with extreme fatigue and unremitting pain between the shoulder blades. I didn't bother going to the docs because they tend to be quite dismissive (and tell me to lose weight!) Also a friend of mine was diagnosed with fibromyalgia and had similar symptoms so I just thought what's the point in a diagnosis with no cure so didn't go (sounds odd on reflection but I should also say I was a nurse too and nurses often put off going to the docs!)
Anyhow that friend has since been diagnosed with MS (many more symptoms than those described above) and the fibro was a misdiagnosis..so it made me think perhaps my dismissal of those symptoms was a bit silly...3 years ago I had an awful bout of flu which ended up with sinusitis for 8 months with at least 8 courses of antibiotics and steroids too (even had septoplasty surgery which didn't help). I ended up with permanent tinnitus which was devastating but I have now gotten used to.
At that time my platelets were raised but GP thought that meant nothing...I also still have the overwhelming fatigue and had mouth ulcers which pharmacist said was probably low vitamin B so to eat more chicken...I have been diagnosed with hypermobility with a Beighton score of 9 (which the physio was impressed with!!)
Since then I have developed big toe, knee, back, hip, neck, hand and elbow pain and pain in my heels on waking. I saw the GP early this year and was referred to physio again, she has written to GP to refer me to Rheumatology because she thinks I have arthritis... GP did bloods tests which were negative for RF, ESR etc but positive ANA. He said he didn't think that meant anything..
I went back to the GP this week because the hand pain developed in the last 2 weeks...he has agreed to refer me to Rheumatology but said I was 'pushy' and if I wasn't careful I might end up on drugs that suppress the immune system and cause leukaemia!!...I did also have a one off rash on my chest when I sat in autumn sunshine (under my clothes/I was covered up..it was bright red and shaped like a bow-tie!! but disappeared the next day. I do have a photo).
So I am going back tomorrow after more bloods and hopefully he will refer me to Rheumatology (i'm bizarrely hoping for abnormal bloods so he will refer!!) Then I start the journey of maybe getting a diagnosis. I don't want it to be lupus...but I think the symptoms are pointing in that direction...
I wanted to know if there is anything else I could/should be doing whilst being pushy!! Without a diagnosis it is difficult but has anyone found anything that helped painkiller wise/for fatigue...
Thanks in advance and sorry for long post!!!