Hi folks, I’m new here. I have been told I have anti-ro antibodies and I’m seeing a rheumatologist for the first time next week.
My symptoms fit completely with pernicious anemia rather than lupus but anti-ro is not associated with PA. I’m on a therapeutic trial of B12 which is helping with some of the symptoms. (No B12 problem found in blood work but that isn’t unusual)
I don’t have a rash although I do get problems in very hot sunlight, I’ve always put it down to being prickly heat. I have Raynauds syndrome but that was diagnosed over 20 years ago. I don’t have joint pain. Could it be lupus? I don’t have the dry eyes problem either. (Sjögren)
I saw someone for peripheral neuropathy testing today (all ok) and he said if my symptoms don’t tally with the result the rheumatologist will disregard the blood test results. Has anyone else been in this situation?
I’ve had to battle so hard to get this far though, GP wanted to just call it chronic fatigue and leave it at that. The most debilitating symptoms are the chronic fatigue and brain fog. I’m signed off work because I have to nap at least once a day to function.
Any thoughts? Anything I should ask the rheumatologist?