I asked PIP for a reconsideration to my original award which I received in January 2014 at the urge of my Rhuemy.
I was initially scared in case I lose the benefit altogether however in the in the 10 month it took for my application to be processed and my benefit awarded I was diagnosed with
Hepatitis B core antibody, Inflammatory, Connective Tissue Disease and Myositis.
Eventually I decided to give it a try.
After sending the DWP a letter describing my condition and how it affects me along with letters from my GP and Rheumatologist which got lost despite me sending it via a traceable service which stated that it was delivered and signed .
I then resent the information and was sent a How your condition effects you form! The bloody form I initially had to fill in when I applied in the first place.
Not too sure why they couldn’t send me the form in the first place instead of having me sent them all that info twice (which was costly with the recorded delivery)
Filled out the form and sent it off and now we wait.
I received a letter from the DWP saying that my form was received on the 23rd of July and that it could take up to 26 weeks for an assessment to be arranged.
Oh here we go again
I set myself an alarm in my IPhone and called them every two weeks and was eventually told that my case had been passed over to ATOS as I would have to have an assessment and it could take up to 10 weeks for them to contact me.
I can’t remember exactly how long it took for ATOS to contact me but it was defiantly less than 10 weeks later) saying that they had arranged an appointment for a home assessment for me.
Home assessment?? I didn’t request one but hey I will take it
The assessment went ok I guess the lady was polite I noticed she took her notes by hand instead of bringing a laptop and I wasn’t too sure how I felt about that but oh well. I also had some letters from my Rheumatologist as there had been further changes to my condition since I filled out and sent off the forms which I tried to give to the assessor however she could not take the forms and she gave me a free post envelope to use.
I then photocopied the info (In case it gets lost again) and sent it off to the DWP
I had the appointment in October and set up new reminders in my phone so that I could chase every couple of weeks.
I spoke to some on Monday (07/011/2014) to enquire if they received the information which they did. As it was roughly three weeks after my appointment I asked if there was any news about my assessment and was told that ATOS hadn’t sent over my assessment which I kind of expected so I let it go.
After a rather emotional appointment at the Rheumatologist I decided to call ATOS to chase up my assessment and I was told that ATOS hadn’t sent my assessment over to the DWP on the 31st October!
I then called the DWP who informed me that the assessment had indeed been sent over (But wouldn’t confirm when) and a decision had been made!
A letter had been sent out to me advising of the decision that day however as the document had not been scanned on to the system yet she could not tell me the specific but it looks like I had been awarded the Enhanced rate for both the Daily living component and the Mobility component
Thank god I was sitting down as my legs felt like they were going to give way!
I also forgot to ask for my assessment notes to be sent over to me (My Rheumatologist made me promise to ask for the notes so he can understand the assessment criteria so he can better help his other patients as other than my initially assessment and a few of his other patients he has not had much dealing with pip (Especially as they did not contact him regarding my application – he wrote me a letter detailing my condition ) this morning I called back to request it but the lady I spoke to said that she could not see anything regarding the decision!! And I would have to wait for the letter
Ok I guess some information was lost over night!
She did agree to have the notes sent over (I’m going to call again in a few days to make sure they actually do it)
I’m crossing my fingers that the first lady was telling the truth because I can’t handle another disappointment this week
It would be lovely to take some time off work without worrying how my bills are going to get paid since I have now exhausted all my paid sick leave.
I was also told that I my current medication is not working like the hoped and they are going to refer me for Rituximab
Every on have a fab weekend and cross your fingers for me