As u know I saw a rheumatologist on Friday who made me feel about 2 inches tall .i had reduced my steroids from 30mg to25mg last Saturday and was getting odd niggle but nothing to bad. My dr phoned me Friday afternoon and I told her what a rude horrible man she had sent me to see .she said he is very good and could I reduce my steroids to20mg . Today Saturday ifelt quite shaky when I woke up so I made some toast took my steroids and codeine .still didn't feel quite right .about 1100 I went to cafe over road and had some nice food as I felt I was lacking energy .when I got back I spent the rest of the day laying on the bed with a hot water bottle. At about 5.30 I got up had a walk about and felt quite ill .my wife dialled 111 and spoke to a dr told him reduced steroids etc. he made us an app to see him at Epsom hospital out of hours surgery for 7.40 .when we arrived I was struggling and in quite a bit of pain so the nurse there said she would go to A&E and tell them she was bringing me there. The triage nurse was very good got me some strong painkillers and got me through really quickly. When the dr saw me I explained my situation to him and he agreed that my hands looked very swollen and sore. I was also very shaky. He asked me why I was wearing sunglasses , I said it was because my eyes were light sensitive . He asked if he could look at them I said sure .he took me to a room where they look at your eyes properly don't know what they call the machine. He held my eyes open while he looked into them ,spent about 5 minutes on each eye ,he then told me that he was an eye dr (said optical something) then told me I have anterier uveitis (bilateral) in my eyes .he said this shows you are having a flare of an autoimmune disease .he said I must put my steroid dosage back up .my eye condition was an automatic referral to a rheumatologist and I must demand this of my gp on Monday and also I must get steroid eye drops for my eyes as they are being damaged he said to tell my gp his findings on Monday and his report will be with her by the end of the week .sorry about the long post but after being fobbed off for 21/2 years which have been hell I think I might have made a breakthrough thanks for reading Alan
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