Headache post update 🤕 : Dear lovely forum friends... - LUPUS UK

LUPUS UK

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Headache post update 🤕

Tiggywoos profile image
12 Replies

Dear lovely forum friends I hope you’re being kind to yourselves 💕

Wanted to give you an update on the 4 year waking headache 🥱. Saw excellent ENT consultant who checked sinuses all clear . Neurologist was fantastic and ordered MRI head .

Results showed “enlarged pituitary “ but radiographer said could be normal which confused me bit !

Had whole batch of tests done Monday checking thyroid , cortisol , all hormones etc . I’ll post the results if they show anything .

Thank you sooo much for all your support as I’d of never gone to the private neurologist if you hadn’t all supported me 😘 xxx

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Tiggywoos profile image
Tiggywoos
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12 Replies
dg70 profile image
dg70

It's a shame we have to pay but if it gets you help quicker then you have to try. I hope your follow up gives you some answers.

Tiggywoos profile image
Tiggywoos in reply to dg70

Thank you 🙏

CecilyParsley profile image
CecilyParsley

I sincerely hope that your results will show what is causing the persistent headache. I know it is soul destroying to be ill and then have something else on top that sucks the joy out of life.

I know also that going to a private specialist is costly and feels like queue jumping but in terms of quality of life it has become a necessity. Had I not gone to a private Cardiologist I would not have my husband or I would be only three months in to the two year waiting list to see a Gynaecologist that was the wrong specialist anyway. Please keep us informed. Lots of love xx

Tiggywoos profile image
Tiggywoos in reply to CecilyParsley

Blimey 😦… yes so true and I’m not sure drs realise sometimes that even functioning on a low level is so so hard. This isn’t about being able to climb mountains it’s about being able to get through the day , have a wash , make some food . The simple things others would perhaps take for granted xxxx 🤗

CecilyParsley profile image
CecilyParsley in reply to Tiggywoos

Exactly that. We have to work very hard just to exist so we need every opportunity to do so. I don’t think most Doctors understand that xxx

michaellasmith profile image
michaellasmithAdministrator

Hi There Tiggywoos,

Great to hear that you have had some progress with your headache issue!

Let us know how you get on with results and any further tests or appointments you may have.

Warm regards,

Michaella

Tiggywoos profile image
Tiggywoos in reply to michaellasmith

Thank you 🙏. Some indication would be amazing and then can get a plan and we love a plan don’t we 😉😃

honeybug profile image
honeybug

🤗♥️🥰🙏🕊

Tiggywoos profile image
Tiggywoos in reply to honeybug

🤗😘🙏💕

honeybug profile image
honeybug in reply to Tiggywoos

🥰🙏🕊

jopo280886 profile image
jopo280886

Well done you 👍🏻 Glad they are trying to get to the bottom of the headaches 🤞all goes well! Take good care of you Gentle hugs 🥰♥️

Tiggywoos profile image
Tiggywoos in reply to jopo280886

Ah thank you jopo. I’ll defo pop post on . You take care of you too 😘xxx

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