Fibromyalgia Action UK
40,200 members52,305 posts

Qualified, but little common sense

I met with a qualified, specialist pain relief nurse yesterday and immediately sensed her lack of empathy. I have arthritis in both hips, at the bottom of my spine, in my toes, in my fingers, have two bones damaged in my back after radiotherapy following breast cancer. All this is in addition to FYBROMYALGIA!

The nurse said that my pain was just due to "wear and tear". I know you will understand how upset I was. I cried and cried. She went on to say that there was no magic cure and that I have to start managing my pain myself. I told her that all I want is one good night's sleep and to wake up without feeling so tired and aching.

Is it just me or does anyone else sometimes feel that "this is all in my mind" and I am going mad alone.

3 Replies

You don't know how much your comment means to me. Thank you for taking the trouble to respond. Yesterday I felt suicidal but today I am feeling angry X


I met with a qualified pain management person ... I,ll say person but I don't think she was human... She told me to stand up straight and buy a new bra and I would feel like a new woman ... I clenched my teeth otherwise I would have bitten her... Went back to to my gps next day and he got me an appointment with a lovely man instead and now I have trigger point injections which help greatly

Much sympathy

VG x


I honestly think this is the only illness that the NHS seems to think such shoddy treatment is allowed. If it were all in our minds we'd be referred to psych and would be treated very gently but it's not its as real as MS, Cancer, broken bones or RA. Just because you can't see it doesn't mean it's not real. The wind is certainly real but you can't see it


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