Hi all, hope yous are doing well
I had a review of my medication today. I take 300mg of gabpentin 3 times a day and 20mg fluxocitine per day.
This wasnt my usual GP and she basically told me to get on with it and deal with it as there is no cure for fibromyalgia and pain meds wont help!
I was in tears by the end of it
Some doctors are horrible. It makes you wonder why they go into medicine. It happened to me. It put me off seeing a doctor for months. How are your GP receptionists? I ended up telling mine what happened and I cried on the phone. She was really kind and said I’ll book you in with a lovely doctor this time. That’s the doctor I’m seeing now and it makes such a difference. Next time you make an appointment explain why you don’t want to see that GP again xx
The receptionist is really nice, so i will defo ask her to do that. I left feeling stupid and like i was wasting her time x
Had exactly the same happen to me 18 months ago, haven’t been back to the Gp since. I went to see him in agony and he shouted at me “What do you want, you already have tablets” I just sat there shaking, luckily my husband was with me and he said “Well I think you need to refer her don’t you!” The dr then backed down and referred me to a lovely rheumatologist, who has sorted out tests, physio and Occupational Therapy. I haven’t been to my Gp since I’ve lost all faith in them.
Its horrible isnt it. I have my first physio next week and on the waiting list for chronic pain clinic, which they said is 10 months wait, this was done by rheumatology x
When I went to pain clinic where I live they were just as bad as docs cause they went into my depression and my axienty and wanted me to come off some of my other painkillers I don't think anyone really understand us x
Depression and anxiety definitely make pain worse, that’s why they look at that. In fact I’f say it’s a step forward for the NHS to actually look at things holistically rather than just pushing tablets down our throats.
The painkillers they were taking off me was nothing to do with my fibromyalgia and I've been going round in circles with my mental health and pain they pass me to mental health team who can't help cause I'm in so much pain then pass me back to gp then gp passes me back to mental health team so no helpful at all
That’s not good 
I’ve had similar experiance when the doctor phoned to make appointment I wasn’t in my brother wrote it down when I arrived for appointment she asked why I was there when I told her she denied all knowledge and got me into a state she was rude aggressive and did nothing at all even when I tried to explain my sister was with me I asked her to come in and verify the appointment was in my diary she diidnt want her there she made that plain i leftt no idea what was going on it had been her son who phoned and made the appointment with my brother obviously she didn’t know this was not willing to llisten to me vat all next time I phoned it was telephone appointment on the day of the appointment the receptionist phoned and said she’d left antibiotics in chemist she’d never seen me or spoken to me I’m 75 have many health problems the pharmacist can’t give you anything over the counter she didn’t even see me am I right to be angry or getting evRything out of proportion I thought she’d duty to see me as she can’t see your ear over the phone her attitudes Differant from that day with appointment mix up and I answered her back
Hi annak01 my Gp was much the same with me soon after diogenesing with Fibromyalgia the last time I seen the same Gp just ranted on about doing things slowly over and over for 20minsRound and merry gold Bush
Stay safe Sister
Hi. I'm so sorry your GP is such an unpleasant person. Ask for a different one.The first thing I asked my GP when I moved house was what were his thoughts on fibromyalgia. He has been great but is also realistic.
There are really good ones out there who listen and support us. You just need to find the right one
You might want to think about talking to someone at the practice about her. I know with fibromyalgia though that confrontation is the last thing we need
Good luck
Sending gentle hugs
unbelievable!! I am lost for words. I would complain to the practice manager and when they ask what outcome you want (which they are legally bound to do ) say not to see her again. Hope you get better treatment next time good luck x
Oh how unhelpful! As if we don't know that, but maybe its because medics like her dont want to specialise in chronic health! Please don't feel like you're wasting anyone's time, because you're not.
It's easy to put a label on someone if you cannot be bothered to find out why they are in pain.Pain clinic will in my honest opinion only want you off meds and tell you it's in your head .GP will spend as much time looking at their watch as listening.physio is 9 month wait here .MSK will arrange X-ray and a scan , that took over six months to say discharge back to GP .Every few years I go on this merry go round of people that has in the past included orthopedic for spinal injections, never again am I having a course of those .Pain started when I was 11 _ I am 70 in a few weeks . Everyone wants to throw meds at you , I went to AandE recently I could not cope with the pain any longer told the doctor, after a very long wait, I felt like topping myself the pain was so bad , his answer what do you expect me to do about it! Here is 2 large bottles of morphine goodbye .In all honesty would any of you have given someone those bottles, if they told you that, and sent them home?
Thank you for the replys . Thank goodness there are people i can turn to who understand x
hello sorry for the bad experience there is a lot of this bad behavior from doctormy locum listen to my chest through my clothing a vest sports bra a tunic a cardigan and a thick jacket he said he would get me a antibiotic script but one of the local doctors had to check needless to say I never got my treatment which I needed before I went in for an operation got the antibiotics a week after the operation despite having inflamed sinuses and coughing up phlegm I was lucky the hospital still went ahead with the operation as I had been waiting several years and was getting more ill with the inflamed gallbladder although I did stop breathing 3 times but thankfully still here to tell you about it. Please go see another doctor in the surgery and if still not happy change your practice
I'm sorry you had such a bad experience that sounds awful. But, to be honest my sister and I haven't received good treatment either.
My sister has seen so many doctors and every single one of them has said they can't do anything to help her. And, honestly, I think they gave her fibro. It all started with her falling down the stairs on her bum. Then a few months later she developed pelvic pain and persistent sexual arousal as well as having difficulty urinating. The last two of these symptoms are not caused by fibromyalgia. These symptoms caused her enormous amounts of anxiety and stress, but none of the doctor's she saw cared at all, even when she started sobbing during her appointments. They just wanted to send her away with painkillers or antibiotics or send her to physio. She went to physio and they said they couldn't help her. So as time went by with no help her pain began to spread all over the place. And, now I think she has fibro because they left her to suffer on her own.
My health also deteriorated in this time period because I was so stressed about it all. And, I think I also developed fibromyalgia because of it. So now we are both in pain and suffering.
I hope you find a GP who will listen to you and not treat you poorly. I have yet to find one.
What a shocking human being! You ought to make a formal complaint. Fybro is recognised as a long term chronic condition. It is a lottery to find a. A knowlegeable GP as well as the correct cocktail of drugs which assist us sufferers as only a few types of medication authorised by the medical authorities like NICE. When you feel that you are ready to try another cocktail of drugs ask for a referral to the nearest fybro clinic (you will have to wait a while) in the mean time I try to keep up a small activity every day. Stretching, walking on good days, swimming, tai chi. Whatever makes you feel good. I try to pace myself so I don't exacerbate the condition. I have started autogenic training with Dr Nicholas Straiton at UCLH fybro clinic. I work on my acceptance of this horrible condition and I manage to keep myself gainfully employed so that my day has a structure. It's not fun but I pray for strength and practise gratitude. My prayers are with you and whenever you feel like sharing, venting this group is always here to support you. Chin up!😀
Similar here! They throw a prescription at you then make you feel like your a terrible human being for being on any pain medication they prescribe!? No matter the what? An NHS appointment injured me many moons ago, now though if I attend due to the problems I've had ever since? It's the medication that's causing it. Only thing is it's not! I have the opposite problem, but for some reason?
20+ years of attendance for the same reason, since being prescribed cocodamol a lot of years later, this is to blame and it is ineffective after a short period!
Ok, tell that to my hip then! I've had many times where I've forgot to take two, I can assure them I feel the difference as its usually the pain coming on strong that makes me realise I haven't taken any!
Once my hip is fixed I won't need that pain medication, but then again a hip issue that has been with me for more than half my life 20+ years of yet another issue unresolved!
Why?
I haven't a clue and apparently neither has my gp practice, but I went from a keyhole surgery candidate, three years from first referral, which mainly consisted of cancelled appointments time and time again!?
I finally get to see the consultant after tests etc.
Conclusion?
My Fibromyalgia!!!
Which in truth? I don't even know if I've had a 100% diagnosis of?
I've been on a constant tour of duty for this that and the other, but still to date?
I have had no answers, nothing has changed, just left to rot! One appointment one issue so how can you ever truly gey well?
I'm sure there are many of you in a similar situation, at the same time I hope not, because it's sh*t! And that's all I can say about my treatment since 2015 when fms/cfs was written in my medical records, but then again so has anorexia and sleep apnea!?
Who knew?
Not me and I doubt I will know much more as no matter who I ask about even just my hip mri? They can't/won't answer.
This has actually tormented my brain!
Check your med recs folks, I can honestly say I have a lots of untruths, and opinions implied regarding words which have been made out to be not the what was actually said!
This is from long ago, so I doubt I could raise it if a consultant may have retired in that time, but I do wonder can the wrong opinion, information contribute to how you are treated from then on it?
I think so?
Too many issues ongoing to even get one resolved I'd need many, many appointments for everything I suffer, but it's always fibro, and now perimenopausal possibly, they won't test me at my age think I was 44 at that time so that's a new thing to use as a reason!?
Sick of the nhs, personally. Not the staff that work and assist each every patient with the care they requite, just feel like maybe I was assigned a lower number at birth?
There's care you can see happening, I just feel met by ignorance and arrogance with some docs that don't listen because they know better!?
One look ay my medical records since 2012ish it's laughable!?
I've spent a year or more trying to find a way to show the history of me prior to fibro, and the consistently same testing for the same things like an appointment made gor something it takes you a while to manage back to speak about?
Your right back to the start!
Could just be to humour the Fibromyalgia moaner!? Lol
Hope your OK, do not let them keep you down! It's hard enough!
Keep your chin up, if it isn't painful! Lol
You'll be fine, stay true to you and what you feel x
Hi..... That wasn't very nice.... or helpful . Find out if there's someone else there you can see in future. Maybe you can get a referral to see a rheumatologist.... some people seem to have got on better by that route. Take care and try not to let it get to you. xx
I don't think it is just GP's anymore who can be out right rude! I seem to keep coming into contact with rude Consultants in hospital. I discussed the behaviour of one consultant with the GP and she suggested reporting them or ask to change consultant.
Funny if you have someone with you they often back down. I hope you get to see the nicer GP next time.
Inaccurate and unfair report from GP
Rheumatologist appointment - finally
Appointment last night
