Qualified, but little common sense - Fibromyalgia Acti...

Fibromyalgia Action UK

59,447 members66,491 posts

Qualified, but little common sense

auchentoshan profile image
3 Replies

I met with a qualified, specialist pain relief nurse yesterday and immediately sensed her lack of empathy. I have arthritis in both hips, at the bottom of my spine, in my toes, in my fingers, have two bones damaged in my back after radiotherapy following breast cancer. All this is in addition to FYBROMYALGIA!

The nurse said that my pain was just due to "wear and tear". I know you will understand how upset I was. I cried and cried. She went on to say that there was no magic cure and that I have to start managing my pain myself. I told her that all I want is one good night's sleep and to wake up without feeling so tired and aching.

Is it just me or does anyone else sometimes feel that "this is all in my mind" and I am going mad alone.

Written by
auchentoshan profile image
auchentoshan
To view profiles and participate in discussions please or .
Read more about...
3 Replies
auchentoshan profile image
auchentoshan

You don't know how much your comment means to me. Thank you for taking the trouble to respond. Yesterday I felt suicidal but today I am feeling angry X

I met with a qualified pain management person ... I,ll say person but I don't think she was human... She told me to stand up straight and buy a new bra and I would feel like a new woman ... I clenched my teeth otherwise I would have bitten her... Went back to to my gps next day and he got me an appointment with a lovely man instead and now I have trigger point injections which help greatly

Much sympathy

VG x

SuzyB profile image
SuzyB

I honestly think this is the only illness that the NHS seems to think such shoddy treatment is allowed. If it were all in our minds we'd be referred to psych and would be treated very gently but it's not its as real as MS, Cancer, broken bones or RA. Just because you can't see it doesn't mean it's not real. The wind is certainly real but you can't see it

You may also like...

Increased sense of smell

Sense of humour failure

at all and to announce its going to be on soon right in the break in the news that has been all...

Sense of smell change

Is this normal (or even just common!)

change the *flow* on the shower head, but it's so painful when it touches my skin. Anyone else...

Due to fibromyalgia I can’t cope with the stress of working but don’t think I’d qualify for PIP

any help at all. I get pains all over my body my ankles are swollen and my feet are painful when I...