Gutted, so upset, my beautiful daughter of 29 yrs old has just found out she has SLE Lupus.
At 15yrs old she had a terrible rash across her face and was diagnosed with Discoid Lupus and was explained to about it's a skin rash which comes up now and again.
It did just that, when she was stressed over school, boyfriends, looking for a job, she used to get the lupus rash, and then it went down and disappeared.
But, in the last year or so she got terrible pains like me, in her legs, aching etc, her GP gave her codeine and paracetamol nothing else.
The pain continued. I said 'you'd better go back and see your GP again'
Still nothing strong pains in her legs, headaches, bright sunshine hurt her eyes and she battled on.
Eventually I went with her to an appointment and I was quire short with him. I said how does she have to wait to see someone? He explained she choose pain clinic!
What for I shouted, she has no reason for pain?
So then and there, he changed for her to see a consultant.
Today she was given the bad news she now has full blown Lupus SLE.
It's an anti human ' disease. It starts to eat away at the heart, Kidneys or worse The Brain.
I'm so upset I could cry. Well I have cried, loads. Worst problem is she getting married in 6 weeks.
Any advice for me to give to cheer her up?
I feel so ill now, I have Shingles, she is always there for me xx