I'm in Ramsey near Huntingdon, I was dx'd with fibro after more than 30 years of seeing every specialist in this country and some in America too - worryingly, the dx was made within minutes by a rheumatologist at Hinch, then again (when Hinch didn't folllow up) by another rheumy at Addenbrookes.
My fibro and chemical sensitivites are so advanced now (after 30 years plus they would be) that I can't tolerate any of the normal drugs used to help - so no amytriptaline, tramadol. gabapentin, pregabalin, etc etc. Can't take so many things, no NSAIDS, no pain killers other than opiate group and Imigran (everything I can't tolerate causes violent vomiting, migraines, etc)........have been trying to help myself nutritionally for years.
Was in physio at Hinch before the dx (post breast cancer), which was helpful, until someone stuck their oar in when I refused to have a completely uneccesssry op on my shoulder. I was then dismissed from physio on the grounds that I wasn't helping myself. Managed to get put back into physio because of the fibro dx and my awful muscle pain, especially bad with my back reacting to standing up or walking with major spasm attacks, but new physio has been refusing to do any hands-on work for 99% of the time, on the grounds that she has medical papers that say it is damaging to do manual manipulation on patients!!
I would dearly love to get to the hydrotherapy pool that I know Peterboro has. Has anyone here got any experience of being treated for fibro at P'boro? Can patients from my area get referred to P'boro? Am thinking about asking my GP.
Have been seeing Addy's for 2 years now, about the fibro, and for more years than I care to remember while we were trying to find out what the hell was wrong with me. The rheumy at Addy's has not been able to prescribe meds, because I can't take any of them. He said he was going to arrange home physio, but hasn't. He was also going to find out about me using P'boro's hydro pool, but hasn't. He was going to have a phone appt with me this week, to find out how I'm getting on with the home physio (which I have heard nothing about), and he has even managed to miss that. I'm fed up with all that - the trip there and back puts me to bed for a week. Peterboro would be a lot more convenient for me to get to.
Does anyone here have any experience of being treated at Peterboro? Does anyone at P'boro have
a)any knowledage of fibro,
b)any interest in finding out the root cause of fibro (which may be different in different people), c)any interest in any research anyone else has done of causes & treatments for fibro?
d)is anyone at P'boro any good?
Hope someone can help, - I see from some previous posts that there is at least one person who was here last Feb from my area - if there are any fibro people from Ramsey/Huntingdon, I'd love to meet up for a coffee, it might be useful to swap notes/info etc nolt to mention seeing a friendly understanding face who gets what you're gong through!
Best wishes to everyone,