Experiences with

Opiates

So, before having the conversation with my doctor (which I'm already worried about), I wanted to ask if anybody had switched from bup/pregablin to low dose opiates and how they did that.

Hi for those who have tried 1st ,& 2nd line therapies and are now on an opiate which do you find is best for you and mention side effects if you have them . Has anyone had success with just Codien and if so what dose was needed. I am in the UK so not sure what they will prescribe here. I have done

So I keep reading about people who got complete remission of RLS symptoms with opiates but the ones that are on gabapentin or pregabalin don't seem to be so lucky. There always seems to be some RLS left... Are there people here who completely got rid of RLS symptoms while on gabbas?

I have been married to a man who has been using opiates following a back injury and more recently, benzodiazepines for the past 7 years. The mood swings are so intense and erratic. I keep busy and try and stay away, and he won’t get therapy.

there’s not much more she can do, even after a recent MRI showed more endo, she said I could try Zoladex (which I don’t really want to try yet, as I’m hoping to start trying for a baby early next year) and she’s not keen on repeating a surgery, she also won’t give me any stronger pain relief such as opiates

What's the reasoning of limiting the time using very Low Dose Naltrexone (VLDN) or Ultra Low Dose Naltrexone ULDN, with short-acting opiates?

He allowed there is nothing he can do...I'm already taking co codamol (30/500) which they very generously prescribe two per day and I'm not allowed more opiates because it's a rheumy disease.

ive found i get strange reactions to drugs recently. ie/ second gen hayfever meds make me sleep, opiates feel they take ages to work then feel to strong, heart meds i now get every side effect listed it feels. basically all drugs legal and not cause unusual reactions.

When Pregabalin was used with opiates the frequency of deaths rose sharply This is obviously most upsetting with people like me who have used Pregabalin for years . I have often told my GP of my concerns re: addiction but it fell on deaf ears!!

anyone have any comments on RLS not being RLS but MND/MS/Parkinson’s many thanks SORRY for the clunky post, am typing in an old phone with very small screen (compared to many today) I suppose what I’m looking for is someone who is very knowledgable and open to the various ways of tackling RLS - Iron, opiates

firstly ive had slightly raised ALT (around 60) but mainly ok lfts. i get a few symptoms of liver issues , dry skin, bloated stomach and dont tolerate opiates well all of a sudden. Csn this still be liver issues even with normalish bloods?

Do you use it instead of opiates or as an add on? Any side effects to be aware of? Thanks in advance!

The Partners reason for refusing the medication was, it’s addictive, little evidence that it works and anyway they don’t prescribe opiates.

Of course my RLS is going crazy but using opiates to help. Can tapering off these tablets really make you feel this bad? I’d really welcome anybody else’s experiences. Many thanks 🙏

Tramadol and other Opiates should be avoided if possible as they can cause or worsen Encephalopathy. Combinations such as Co Codamol are best avoided. It was also decided to put me back on the List.

I think it probably works by causing release of endogenous opiates, a natural response to pain. I suspect this is the underlying mechanism of action of several of the non-medical methods listed here (ice cold, hot baths, hitting the legs etc).

With my surgeries inability to treat my severe refractory RLS quite possibly due to the cost of the medication rather than their excuse, that, they don’t prescribe Opiates as they are off license in UK and not approved by the NHS for treatment of RLS I went about trying to locate a GP Surgery who was

For me it’s subtle but still affects my ability to fall asleep, and opiates help calm it down to my normal resting pulse. I get the pulse of an active person when I’m lying still in my bed.

-the nausea that I had experienced previously with opiates got worse. So because of the above problems with patches I persuaded a reluctant GP to prescribe tablets and the calculation said 2x 200mcg before bedtime daily.

Hi what’s ok to take for opiate itch which doesnt aggravate RLS. The itching isnt extreme but enough to need something. Tx