Fibromyalgia Action UK
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Has anyone tried oxygen treatment for fibromyalgia

Hi to all, following a failed spine surgery I was diagnosed with genetic fibromyalgia. I had previously suffered with rheumatoid arthritus, a duo denal ulcer and Ibs from a child. Since surgery ive never felt the same again. I was given a number of medication I later realised were for fibro but I intolerated against each and every medication, the worst being Duloxetine. I no longer take oramorph but live on pain killers daily and diazepam for spasms in my back. I was told 2 years ago I can never work again and am classed as severley disabled. I changed my whole diet which does help reduce pins and needles and brain fog. I can not have massage or physio etc due to spine damage. Although ive never been able to reduce surgery pain I have eliminated my fibro to zero twice now when taking a holiday in Cyprus. The heat is amazing and I was able to activities I could never do in the UK. Unfortunately,within hours of returning to the UK I suffer a flu and cough. Has anyone else been diagnosed with genetic fibromyalgia? Ive put myself forward for oxygen treatment and wondering if anyone else has already tried the treatment? Blessings to all sufferers as fibro steals your life away from you and there doesnt seem to be any form of treatment free in the UK other than being used as a Guinea pig for money making pharmaceutical companies

5 Replies

Now, you have my interest! I have never heard of genetic Fibro before. Perhaps you could tell us a bit more about it.

Sorry that your spinal surgery failed. I'm looking at just that, although hopefully with a different outcome. My fingers are well and truly crossed. It's not round the corner, but in several months.

I haven't heard of oxygen therapy either. Is that the same as being put in a chamber where the pressure is controlled, like divers? Sorry, brain fog descended and words scarce lol. I have the word on the tip of my tongue but what my brain wants to write does not sound right lol 🐸



Sorry to hear about your health problems. Fibro is very complicated and has many different symptoms. I really wonder if anyone really knows enough about it? I was told by my rheumy consultant that they think it's genetic and lies dormant until something triggers it. He though that one of my many ops might have triggered mine. Since being on this site though and reading everything, it does seem that different Drs and consultants say different things, so who really knows?

I have heard of oxygen therapy, but not looked into it. If you go ahead with it I will be very interested to hear how you get on.

Good luck and best wishes.🌸

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Hi there

I remembered that this was discussed a while back. Please find a link for a post that was put up about 5 months ago. It's not overly helpful, but it's something:

Wishing you much peace

Lu x

Volunteer Administrator

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Hi Tallullah1

I am so genuinely sorry to read of your suffering and struggling and I sincerely hope that you can find some relief and resolution to your pain issues. They have Hyperbaric Oxygen Tanks at our local MS Centre (my wife has MS) and we are thinking of trying this ourselves but have not done so yet. The users say they are very good and I have not heard one say it didn't help them but we are all different?

I want to sincerely wish you all the best of luck with this and please take care of yourself.

All my hopes and dreams for you



Hi. I have just started oxygen therapy through my local ms society. They said that most patients with fibromyalgia have shown improvement after 16 sessions. All they ask in return is for a donation of at least £10 a time. I am very excited to see what the results will be. # optimistic


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