Good morning all :): A year down the... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Good morning all :)

Jasmeet12 profile image
6 Replies

A year down the line of having to give up work, I still struggle. I had to make a telephone call to my gas and elec company yesterday 2 and half hours later sorting the new meters out, it was so stressful I nearly cried during the call as I had to bend down to check the gas meter a number of times, which was painful and go outside and check the electric meter which made me cold... I was a wreck after. Oh boy did it drain me it was so stressful. I couldnt believe how much it took out of me. I dont think anyone can understand how debilitating fibro can be unless you have it. I can only pace myself 3 hours a day roughly to do anything a day. Then its too much pain and fatigue. I read alot of the posts of the different things people do on here to get well. And I think Ive tried them all and they dont work for long for me. But hey I carry on trying Thank you for listening.

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Jasmeet12
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6 Replies
Yassytina profile image
YassytinaFMA UK Volunteer

Sorry to read this took so long for you to sort out , I bet you were relived at the end of it all. It is disheartening when fibro takes over and leaves people limited to what they can do on a daily basis, you sound like you are doing your best and picking out essentials things to do, when I’m having an off day and find it hard too get started I aim sometimes too prepare the evening dinner , yesterday I actually sat at the table prepared the veg and did some extra for the next day, im always thinking ahead as husband does not cook☹️, then I sit have a hot drink the. perhaps tackle another essential task , sometimes I ve had 4 too 5 mini breaks just too tackle the ironing and get threw so I get where your coming from. You certaintly sound like you try each day and not give up, it’s good too come on the forum for a chat sometimes and we differently do need a listening ear , take care of yourself xx

Jasmeet12 profile image
Jasmeet12 in reply to Yassytina

Yes, im the same always doing something ahead of myself because i do nut like to be behind on things. And i too have prepped food at the table so i can sit down, plus deligate. I font think we can put in words how much it affects us

Yassytina profile image
YassytinaFMA UK Volunteer in reply to Jasmeet12

totally agree x

Midori profile image
Midori

Hi there.

I can understand that feeling. I need to spread my legs like a giraffe to get down to my kitchen cupboards. It makes me feel a right fool!😉

It's a pain to be sure, but Fibro is a horror.

It takes a great deal out of your Spoon Count for the day.

Cheers, Midori

Mystique23 profile image
Mystique23 in reply to Midori

Omg this made me laugh I'm the same, contort myself just to get a bowl or something. I've told my son that he is going to help me gut the kitchen cupboards and reorganise them to make things easier to reach. I brought a stool on wheels and now whizz around the kitchen to get things I've forgotten whilst cooking. What a difference it makes for me.

Jasmeet12 profile image
Jasmeet12 in reply to Mystique23

Yes, i have done that too, as im a shorty and everything to my level as much as poss., also ladders. On bad days the lads have to get things from the top areas ready for me

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