This might sound weird....: I'm feeling... - Fibromyalgia Acti...

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This might sound weird....

Smilesalot profile image
Smilesalot
โ€ข27 Replies

I'm feeling very strange for me. I'm incredibly irritable, tearful( more than usual), and hate having clothes on. Feel like I'm burning and suffocating ,anxious ๐Ÿ˜“, I even don't want my glasses on. It's driving me nuts.. It's slowly spreading throughout. Advise please ?๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค”

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Smilesalot profile image
Smilesalot
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27 Replies
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Blue-52 profile image
Blue-52

ahh bless you, itโ€™s horrible on these low days, but you have all of us to try and help, personally I am 24/7 in a sarong, itโ€™s loose, but it helps my skin, it sounds like you are having a anxiety attack, so breathe in through the nose and out through the mouth, slowly, try and take yourself off somewhere in your mind, to a quiet place where you feel comfortable and relaxed, not easy I know, when you feel this way.

Sending you lots of healing hugs ๐Ÿค— ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—

Smilesalot profile image
Smilesalotโ€ข in reply toBlue-52

Thank you Blue๐Ÿ™‚,Most unpleasant ๐Ÿ˜“. I've had panic attacks since I was young. This one is new to me. I already wear very baggy clothes. Of thin material. My whole neck and torso have always been hypersensitive in fact I have an invisible tight band around my tummy but there nothing there ???? I'm used to that. My friend Jon begged me not to the cheeky mare that stopped me doing it lol.

Yesterday was particularly bad and today isn't much better pain wise. The skin burning recently started spreading. It's very painful. It's a whole body pain of every thing. Nothing helps.

Anyway between you and Jon I'm breathing better๐Ÿ™„๐Ÿค—๐Ÿ˜‚๐Ÿ˜†๐Ÿ˜‰thanks honey.

Blue-52 profile image
Blue-52โ€ข in reply toSmilesalot

I know, they can be scary, and new symptoms slip in, glad to hear you are breathing better, keep your chin up hun, you are stronger than you think. ๐Ÿค—๐Ÿค—

Yassytina profile image
YassytinaFMA UK Volunteer

Afternoon, I have a very loose fitting dress on today even though itโ€™s chilly and rainy I hate layers, sometimes when Iโ€™m feeling anxious and out of sorts I play music on my iPad, sometimes itโ€™s waterfalls, dolphins sounds, the waves hitting the shore, anything I can take my mind off everything and close my eyes, feeling low today is proberly that you are feeling out of sorts or unwellโ˜น๏ธ, I hope Friday is going too be better and Iโ€™m sending lots of hugs over xx

Smilesalot profile image
Smilesalotโ€ข in reply toYassytina

Thank you Yassy,Yes the weather is Crap here today to.

Just eaten a tomato ๐Ÿ…lol.

I want chocolate really but that has to wait until my birthday.

What are you up to today honey ๐Ÿค—?

I'm in so much physical pain I can't concentrate on anything except this I suppose. I'm so tired.

But the swans had a good feed lol.

I've been watching kitten s on YouTube this morning before Jon got up.

I forgot my morphine๐Ÿ™„๐Ÿ™„๐Ÿ™„๐Ÿ™„๐Ÿ˜ฎ

I'm only half an hour out.

I hope you manage to sleep well tonight

Hugs Dawn ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿ™ƒ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿ˜โค

Yassytina profile image
YassytinaFMA UK Volunteerโ€ข in reply toSmilesalot

I am very sorry your pain is so bad , I hope Friday is alittle better for you, , did alittle shop for hols today , next Friday ( so not so far away ) snack treats for the boys &a few bits for us) mostly at home &Iโ€™ve been quite chilly , just making notes ,canceling papers etc , hoping weekend warms up,alittle , and you get some good sleep tonite xx

Smilesalot profile image
Smilesalotโ€ข in reply toYassytina

I miss buying snacks lol.I m stuck going through my memory of what I like.

Jon shops online and sanitises what I buy ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‹๐Ÿ˜‹๐Ÿ˜‹.

Are the boys excited ?

It's gonna be wet weather for us at the weekend meh.

Pain bad today too. Just typing with one finger( you can see I'm sophisticated lol) hurts like mad,like my joints are twisting but all the way up my arm๐Ÿ˜–.

Could be worse off. So I'll do what I need to not be annoying too much lol๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜…๐Ÿ˜†๐Ÿ˜‰. Just not possible.

I'm alone today yey. Jon's in his office. He'll be angry when he gets home as he's in a whole day meeting๐Ÿ˜’

You have a great day Yassy ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿ™ƒD

Gulfstream_Maggie profile image
Gulfstream_Maggie

Aww Dawn itโ€™s not nice when itโ€™s one of those down days. Iโ€™m currently in an oversized t-shirt and baggy joggers. I also have a couple of kaftans for days when I need to be all loosey-goosey and cool!!!

My feet/ankles are currently swollen and I can only wear crocs at the mo! Feeling quite dizzy and jelly like, my balance also seems to be shot to pieces.

Not exactly conducive to job hunting and concentration levels.

I sometimes wonder if some of this could be related to the last Covid booster!

Smilesalot profile image
Smilesalotโ€ข in reply toGulfstream_Maggie

It totally could Maggie. Jon still isn't right from his Moderna Covid jab. He's improving.When did you have yours ๐Ÿค—?

Smilesalot profile image
Smilesalotโ€ข in reply toSmilesalot

I hit reply too soon lol one of those ๐Ÿ˜ฉ.What has the Dr said about ur symptoms and are they giving you treatment?

Have you been over doing it too sweet s?๐Ÿค—

I kept getting cramp everywhere yest.

Yeah that feeling is coming back feck !

Meds time for me.

Catch up with you later hugs Dawn ๐Ÿค—๐Ÿค—

Gulfstream_Maggie profile image
Gulfstream_Maggie

We had the Pfizer booster on November 2024. Weโ€™ve both been periodically feeling yucky but nothing you can really put your finger on!

Smilesalot profile image
Smilesalotโ€ข in reply toGulfstream_Maggie

Poor Jon got mild psychosis. He's never had troubles before. Fever chills pain snotty headaches..like I said he's on the mend but still working and looking after me.I'm sorry ur experiencing these things๐Ÿ™ƒ๐Ÿค’๐Ÿ™.

I hope you're improving eventually.

I need puppies and kittens.

HugsMaggie๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—

Smilesalot profile image
Smilesalotโ€ข in reply toSmilesalot

We had ours over 2 weeks ago . Thank you for your time hugs Dawn ๐Ÿค—

Carlt profile image
Carlt

Take your clothes off (close the curtains first).I am often oversensitive all over and become even more grumpy than usual so I shut myself in a room with the only chair I am comfortable in when I feel like that and watch stuff on my tablet minus clothes and with fans blowing (I'm currently rewatching NYPD Blue but anything will do).

I have found that my body is telling me to do, or don't do, stuff so I try to listen and do as I'm told.

I'm not very good with the "Spoon Theory" stuff (although who doesn't like to spoon?) because I'm useless at pacing myself.

When I'm feeling well I frantically get on with stuff and then suffer for it the following day, or week.

When I'm feeling bad I do nothing, or the bare minimum.

Smilesalot profile image
Smilesalotโ€ข in reply toCarlt

Hi Carlt,Thank you for your reply๐Ÿค—

I will give it a go later as it hasn't passed yet.

My carer Kat will be here at 10.30 am to give me a bed bath yey.

It sounds like you do it often ?

I'm short of breath today again but it could be the Copd.

I found lanacane works numbing some of the burning pain briefly๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜ on my legs and back of my hands but it stinks lol๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚.

I hope you don't experience this to often as it's a nightmare.

I'm exhausted and brain fog gy.

I hope you're having a good day honey๐Ÿ˜Š๐Ÿค—๐Ÿค—๐Ÿค—

Dawn

Smilesalot profile image
Smilesalotโ€ข in reply toCarlt

Hi again Carlt.I tried it๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜…๐Ÿ˜…๐Ÿ˜…๐Ÿค”

It happened after 11 and I lay on my bed naked for about 20 minutes. Was weird at first but eventually I relaxed then had a giggling fit hehehe. Unfortunately I was so cold I had to curtail how long I did it for.

Thanks for the heads up ๐Ÿ˜๐Ÿค— hugs Dawn ๐Ÿค—

Elaine200756 profile image
Elaine200756

๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿ’–

MaggieSylvie profile image
MaggieSylvie

Hi there, Dawn, it's good to hear from you, though not good to hear how you are. I'm feeling so terribly tired, and there's good reason for it, but I want to just sleep, and I imagine that a good sleep would help you. I can't write much at the moment; my life isn't my own any more and I just feel so exhausted, so I'm going to try and get some rest that I was begrudged yesterday.

We've had the district nurse on the phone supervising John's insulin injection, and I can't understand why he needs it; he's a bit "village idiot" but that's something he can always take seriously. I don't know where the carer has got to but we have now got a keysafe so they can let themselves in. I have yet to pass the code on to the district nurse admin, but there are so many of them. Well, I have to trust them. Just so tired. Hope you feel cooler soon and kick out the tearfulness. As I said, perhaps all you need is some sleep. It seems to reset us. Take care in all the ways you can think of.๐Ÿค—๐Ÿค—

Smilesalot profile image
Smilesalotโ€ข in reply toMaggieSylvie

Oh sweetie it sounds like your life has been taken over but no help for you. That's ps me off on ur behalf.You rest up and remember to take care of yourself if you can hugs Dawn ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿ™ƒ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿ˜โคโคโคโค.

MaggieSylvie profile image
MaggieSylvieโ€ข in reply toSmilesalot

Thanks Dawn for understanding. It's not remembering to take care of myself - it's the struggle for that to be allowed. Just to be allowed to rest, to sleep - basic for anyone, healthy or unhealthy.

Smilesalot profile image
Smilesalotโ€ข in reply toMaggieSylvie

I see. That's plain wrong ur in that situation.Thinking of you sweetie ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿ™ƒDawn

Debsdelight72 profile image
Debsdelight72

Right, That's it missis,

Stop running round in the nude๐Ÿ™„, It's on the news,

"SWAN LADY AND THE LAKE"

Nude woman waiting for regular friends with wings ๐Ÿฆข๐Ÿฆข๐Ÿฆข๐Ÿฆข๐Ÿฆข๐Ÿฆข๐Ÿฆข๐Ÿฆขto come home to roost, Is told to have scones with clotted cream and strawberry Jam, For breakfast, lunch and dinner,๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜

Feel better soon Kiddo, It's 2am and there are scones in the food cupboard,I'm being so good and they are downstairs and I am not, I'm allowed down on the stair lift (I'm not being held against my will ๐Ÿคช๐Ÿคช) The batteries in the stair lift take me down not a problem, coming back up will scream and shout, "GET YOUR FAT **** OFF ME"

Which means I have to get back upstairs on my hands and knees and it's not a done deal I'll get all the way or wobble a lot, ๐Ÿš‘๐Ÿš‘

Come on Kiddo, My picture for you is almost finished๐Ÿ˜„ ๐Ÿ˜Š๐Ÿ˜Š๐Ÿ˜Š๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—

Smilesalot profile image
Smilesalotโ€ข in reply toDebsdelight72

Hahaha ya mad mare๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‰.I had a dry scone for breakfast lol. Jon's making me egg soldiers for brunch yum.

It's so darned hot.

The garden looks scruffy. The ducklings hide in the grass lol.

I slept badly last night too. Took loads of different meds that didn't work grrr.

Got up at 6.

I'm looking forward to the picture for me๐Ÿ˜ƒ๐Ÿ˜ƒ๐Ÿ˜ƒ๐Ÿ˜ƒ๐Ÿ˜ƒ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค— food hugs ๐Ÿค—๐Ÿค—๐Ÿค—

Debsdelight72 profile image
Debsdelight72โ€ข in reply toSmilesalot

LOL, I'm glad you took it the right way as I meant it,xxx,

Iv'e just had a really good sleep, I'm just peed off it's the wrong time of day ๐Ÿ™„๐Ÿ™„

Debsdelight72 profile image
Debsdelight72โ€ข in reply toSmilesalot

Ooooooh, Just realised we had chicken last night,

So left over chicken, garlic mayo and crackers ๐Ÿคค

I don't know how? usually Sundays is pancake day๐Ÿ˜•๐Ÿ˜•

I still haven't had the energy to have a batch cooking session, More organising tomorrow

This time I'll stop more often, other wise I'll be in the same ๐Ÿ’ฉ as these past few days

Smilesalot profile image
Smilesalotโ€ข in reply toDebsdelight72

We had take away on Sat night and since then I keep pooping myself๐Ÿค”๐Ÿ˜–๐Ÿ˜ฎ๐Ÿค’๐Ÿ˜ท๐Ÿ˜ค๐Ÿ˜Ÿ๐Ÿ™Š๐Ÿ™‰๐Ÿ™ˆ๐Ÿ’ฉ.Jon made the lamb perfect yesterday ๐Ÿ˜‹๐Ÿ˜‹๐Ÿ˜‹๐Ÿ˜‹๐Ÿ˜‹.

We usually have chicken on a Sunday. Pancake s

Sounds awesome ๐Ÿค—.

I need a nap already๐Ÿ™„๐Ÿ™„๐Ÿ™„

Hope ur feeling a bit better sweetie ๐Ÿ™‚

Smilesalot profile image
Smilesalotโ€ข in reply toDebsdelight72

Oow guess what?!!!Just had a lovely lady round to fit my fall alarm.

I got a pendant. At least it's grey lol.

Jon feels reassured and I'm happier too.

I had to hold in a big bottom chuff. My ibs is so bad and painful๐Ÿ˜‘.

You need to look after yourself Mrs !!!!๐Ÿค—๐Ÿ˜๐Ÿ™

Hugs Dawn ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿ™ƒ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿ˜โคโคโคโคโค

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