Do other sufferers feel like they have broken bones for long periods of time?

[ChristCornHell]

Most of my pain is concentrated in my feet and lower legs. At times I feel like my toes are broken bones even though I am able to bend them, but mostly I feel like my skin is too tight and or have a burning sensation or feel like my skin is crawling with a parasite. I am getting used to the cramps and similar muscle type pains, but about a year ago I was getting a pain in my right knee. This pain was the same as the pain that alerted doctors to me needing a hip operation (17 years ago) as I was compensating with my walking. At the time I was getting this pain last year I caught myself thinking right this is "real pain" as opposed to neurological. What I meant was I think I have actually done something serious to my knee or the replacement hip needs replacing again (10 - 15 years they said it should last) I'm aware I am going about this description the long way so thanks for bearing with me. For nearly a week now I have felt like my heal is shattered just behind my ankle. It's constant and nothing like a muscle type pain. I can barely walk on it now. Last night I woke up twice (not unusual in itself) but if it wasn't the pain in my heel that woke me up, I was aware of how sore it was before I had fully awakened. I have no recollection of hurting my ankle. As it's been almost a week I am wondering if anyone else has a similar pain before I go about getting an x-ray. After about 6 months of "dire rear" (5 of 7 mornings every week) my colonoscopy results are due. I am thinking that the only way forward for me now is to pay for a private consultation for the MANY other problems that we all know are definitely fibromyalgia before I go ahead down that long lonely road that is the PIP application process and ANY information on how to find a doctor would be great too. Hopefully I will be told I have something curable and not fibromyalgia, or IF another doctor admits it IS a real illness and that another person has it OFFICIAL then maybe we can add to the statistics and finally get the pharmaceutical companies into trying to help you and I. If they found one or 2 medications that actually works alongside the different drug free ways of making our lives more manageable (all of which we SHOULD have access to for free or at least at a reduced rate) The cynical side of me would suggest that nobody wants to give us one drug when they could probably make more money from giving us 10 (and probably more still to deal with the side effect) Fortunately I am not cynical about anything important. I am just in a wee bit of pain from time to time. Thanks for letting me have my occasional rant on here, it gives my ( VERY patient and understanding ) partner a break as she prepares for a hysterectomy on Monday. I know I owe her a lot and am glad to be able to take the role of head nurse off her hands for the next 6 weeks or so. Happy New year everyone. X (rant complete and relax) 🆒❗

[JayCeon]

Hi CCH - HNY2! - Good rant... and esp. good to hear how understanding your partner is. Have you tried or any chance of trying a gentle physiotherapist on these types of pains? (e.g. osteopathy, chiropractic or acupressure).If the colonoscopy doesn't find anything is an elimination diet next?

[ChristCornHell in reply to JayCeon]

Yes. I believe the elimination diet is usually the next step. Blood was found in the samples set off to the Dr and hospital so they fast tracked me through for the colonoscopy. I have to make an appointment to see my own GP about 6 weeks later or phone at 8am for the emergency appointments on the day. The receptionist called to book for me to get my results, saw I had an appointment booked for mid February so I will have to wait until then. They took out a couple of polyps and some other tissue so I assume the next step is to eliminate any food allergies or dietary requirements.... So that precious 10 minutes I had booked and earmarked to finally try and get a much needed meds review will be taken up by other things now. I never feel right taking the emergency appointments for such things as a meds review... But I barely get through half of what I have written down to discuss in a 10 minute appointment... especially when it is not my GP and I have to start from the beginning. Oh well elimination of any food that tastes good is probably more important than getting my medication right eh? 😡

[JayCeon in reply to ChristCornHell]

Praps instead finding some new or long lost scrumptious food you'd forgotten and doesn't trigger can help you on the way...

I'm always careful to prioritize my list, but my, 10 minutes is unbelievably tough - probably just about enough for no. 1! 🥵

[jackie4ball]

I have had lots of knee problems. Over last 18 months technically have had 10 operations in that time. I now have heel pain which is excruciating. It’s called plantar fasciitis I’m wondering if this is the same as what you have in your foot. Worth looking it up to see if the pain and symptoms match it. All I know is it is agony. Hope you get sorted. Have you put in for PIP? You can apply for it with Fybromyalgia it is more recognised now than it was when I was xx jest diagnosed.

[Jinty7]

The symptoms you describe regards tightness , burning etc are same as mine, however, reason for mine is peripheral neuropathy which and is always worse in evening until about 1 am

[KPCPR]

Hi Chris I too have pain in my feet. They feel like they're made of glass which shatters when I walk. It's a truly horrible pain and my heart goes out to you as you've so much more to cope with

[Blearyeyed]

Although we can all get similar crawling , burning and even grinding pain I think you should follow your instincts on this one.I have a number of other chronic conditions as well as Fibro and I've grown used to being able to distinguish the difference between pain or symptoms caused by one of those conditions rather than Fibro, even if it makes my Fibro symptoms feel worse at the same time.

Its not uncommon for someone to need a further hip or knee replacement , or for these things to cause tightening in tendons as the replacement ages which can cause that feeling of grinding or broken bones in the heel and foot.

I would strongly recommend that you contact your GP and tell them the symptoms as you have described them to us .

If it was me I would be requesting an xray , even in these times , to rule out any other injuries or changes in your joints , hip , knee and ankle (in case your Achilles is effected) which could be making the whole leg behave badly.

You may require some physical therapy or other minor non invasive treatment to sort it out or just some antiinflammatories but if you do require treatment for these things , you know from experience yourself , it causes less damage if you get the treatment sooner rather than later and it takes less time to recover if it us addressed quickly.

Take care and I hope its sorted out soon.

[ChristCornHell in reply to Blearyeyed]

Thank you so much for your reply. You know when sometimes it feels like you are just complaining all the time. My partner had this issue and it was something somewhere mentioned in a previous comment (sorry I really should reply to EVERYONE individually) she had to get cortisone injections in her feet. It sounds very much like that.... A severe tightening of the ligaments. Actually I will post a general reply to EVERYONE who helped. It's just so reassuring to hear that I am not alone with the pain. I will also let everyone know how it goes. Thank you Christ (aka Ross) 👍

[Abigail34]

hello. i have just read your post and have found comfort in this.. if you like. i get exaculy the same sort of pains and sensations in my legs which after two years has spread to my arms. the burning in our hands and feet but mainly in my hands and i find this happens more when my stress levels are very high. i also was diagnosed with seconary epelepsie which causes seizures and trembling and twitching. i also have fibromialgia ( oviously) and im also receiving treatment for restless leg syndrome that was the red hot ants are in my legs. so you may want to ask your dotor about restlesleg syndrome but it can be hard to tell what condition is causing what pain and why! i think you are spot on when it comes to help though i would blame the waitng list of people.but pharamacy can be just as bad. my doctor tries to help me the best he can but not enough research into fibro.. can i ask if you suffer with brain fog? i was training in a care home and was a very organised person but now i cant seem to even be able to do the most simple of things. that is something else then triggers depression because you cant physically or mentally do what i used too.im 34 and feel like im trapped in a very old body. its an awful disease and any doctor that says its not real is wrong and i would challenge that. thankyou for sharing your story. this platformhas helped me speak out.