I follow you and know what you all are going through and wish you well.
I have had fibro for the past 40 years. Since January I have experienced hip and leg pain, especially after getting out of bed and I can hardly stand on my leg. It throbs and feels like a band has been tied around the lower part of my ankle. After stretches it gets 'better', but the pain and discomfort continues. A mri scans reveals just normal wear and tear. Have anyone experienced this as part of fibro or is this the result of ageing.
Kind wishes
Nita7
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Nita7
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Thanks for taking time to reply. I had bursitis 20 years ago, had it cleaned up and still have the 10 inch scar to show. It might be that. I am sorry about your leg, it sounds the same. It is good to hear of this 'shared agony'. I try seeing the funny side of this all, we do not know one another but know each others pains and stuff.
Thanks for the hug, I return the gentle one with interest.
It is so encouraging to hear that other people have the same issues as me. It is not easy to find people who understand. I have a clicky hip and bad knees and ankles. I lean against the wall in the morning as I come down the stairs as that is the least painful way to descend. My children think it is funny and it does look quite hilarious. Each time I turn over in bed, I hurt. I struggle to get comfortable at night, as if I lie just a little bit wrong, my arms go numb, or my back hurts or my foot hurts where a scar from an operation is. I wake up exhausted. My husband tries to understand, but it must be hard for him, as there are so many different aspects to this illness.
I hope you are able to get some relief from your pain. Sorry I can't be more helpful with how to solve it, only that I hope you find comfort in knowing that you are not alone in all this.
You are not alone I too hurt so bad it doesn't matter what I do fibro has taken over everything I do. I am getting to where it takes me forever to read all the post because my eyes hurt! It just seems like it is getting worse everyday!
It is good to have a sense of humor in these circumstances. I really appreciate it to get this input from you and am so sorry for what you are going through. I use an electric pad in bed which I switch on every few hours. It helps calming the muscles. I do some mild stretches every second day otherwise the pain get worse! I have also been on medication for the past 14 years. I come from South Africa and had a proper consultant who identified the illness and gave me a report that I keep safe like a special treasure. I do not know why this illness makes so many people suffer and why most people out there do not believe us!
We are there for one another and the love and empathy amongst us, is wonderful!
Yes I have a lot of hip and legs hurt! I have other issues as well so I can't say if it due to fibro or nerve damage I have. Hugs I too am a long time survivor of fibro!
I am so genuinely sorry to read of your pain and suffering, and I sincerely hope that you can find the answers that you are looking for. I do not have the exact same issue that you do as I have a sciatic nerve compression which gives me horrid pain in my hips, lower back, bottom and down my right leg. It is worse when I have just got up on the morning.
I want to genuinely and sincerely wish you all the best of luck.
Thanks for your kind words. I have read some of your posts and know that you have a great deal to cope with. I was astonished by the genuine interest and feedback that I got. You are all so kind - I think this also stems from a long time of suffering and pain. it just makes you more aware of life out there!
i have just had steroid inj in hip to help with pain . consultant at hosp said it was bursitis . and i have osteo arthritis . i had to have the inj in hosp outpatients . they did scan to pinpoint exact spot as if not it wont work. it has helped slightly but i still have the heat like a furnace deep inside hip area which docs ignore . im on long term esa and i get standard pip. i rarely sleep at nite just short naps .i cannot get comfy at all cos of constant pain . rheumotoligist at hosp said he didnt think i had fibro and i walked out of there in tears as he was abrupt , had no patience , raised his voice when i cudnt remember dates etc.
Thank you for your reply and you telling about the consultant! At times like these and with people like that ................... (you know!). I had the same with a consultant at St Johns. He drove me to tears. Rude and abrupt and trying to drive me into a corner with abrupt and fast questioning. I think all of us that are treated like this, should report the consultants.
I am sorry to hear about your bad sleeping. I have an electric pad which I turn on every few hours. The heat helps calming the muscles. I taught myself to sleep on my back with a pillow under my knees. I am also on tramadol SR, Amitriptyline, and citalopram (14 Years). Without the medication I would not be able to survive.
I am thinking about you and hope you find answers.
Understand your upset with Rheumatologist. ...but assuming that he had a reason to say what he did I would suggest you ask for a copy of the letter he would have since sent to your GP with his conclusions and if no clear explanation in there as to why he decided not Fibro then perhaps write to the consultant directly and ask for those reasons. Then you could take things from there. Best of luck.
Hi I,ve had hip and leg pain for nearly 50 years.As a child I was told it was growing pains as it was believed in those days,I now know it was not but Fibromyalgia.I also have had epidurals, steroid injections,Mri,s and x-rays.Fibromyalgia does not show on x-rays or Mri scans.Leg and hip pain is very common with Fibromyalgia. 😣
Hi jive ace....I'm intrigued by your comment that ".As a child I was told it was growing pains as it was believed in those days,I now know it was not but Fibromyalgia". Have you any info / links about this you could share? I too had 'growing pains' that I was supposed to grow out off and didn't! Like you they were centred in the hip & leg areas.
Of course Muscle/joint pains can occur for many reasons other than Fibro ....what makes you so sure growing pains were Fibro?
I linked it to Fibro when I asked other friends who have this condition they too have had hip/leg pain .It seems very common with FM people. My Dr said it is known amongst FM people too.
I hurt in lots of other places but more so in my hip and legs.Sorry I dont have any links to share just personal experience.
Thank you so much for taking time to let me know! You know these days when I walk past people, I watch their faces and think that they too might be going through this or other pain issues and really understand when someone is not all that friendly. At least we can talk to one another!
Ok Jiveace thanks for your reply......I guess the truth is we'll never know for sure whether the two are linked! I agree it seems not uncommon for Fibros to experience a degree of localised pains in the years prior to developing Fibro with its global pain, fatigue, nausea, weakness etc. So pinpointing just when those pains became part of the wider bona fida Fibro illness is a tricky one. I guess retrospective diagnosis will always be imperfect and can only ever be speculative. Hope you are having a decent day. All best.
Hi Nita some of us are good at hiding pain or do not tell anyone when we are hurting.Some days its good to talk about it to say hey Im not the only one suffering.Maybe one day a cure might be found.Both my sister & myself both have it which is known within a family and both my ex sister in law s have it too.
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constant pain 
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