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Allbie profile image
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Hi my name is allbie have have fibromyalgia , diabetes, high blood pressure, arthritis. and Spondylitis . I keep myself busy and try not to think about it too much. Always been a positive person but I struggle so much with sleeping. I take pain killers along with herbal remedies. Can anyone make any suggestions to help with this

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Allbie
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Cotswolds25121 profile image
Cotswolds25121

Hello Allbie, I am not sure where you are? I am in England, so not sure what time difference there is. I am awake because I have fibromyalgia and many other health conditions. I am either awake or asleep, that is my life. Work in between and supported my elderly Mum until recently less so over the past few months not because I don’t want to but I just can’t, I am 60 and with my own health conditions I am unable too. I have fought and worked for the past 14years in my job as a Carer and tonight I have admitted defeat and shall finally give in and say I cannot do it all anymore. I don’t know what the outcome will be but I do know that I’m am exhausted beyond the point of thinking I can do another day x

Allbie profile image
Allbie in reply toCotswolds25121

Hi I live in England too. Still trying not very successfully to go to sleep. I was a carer also gor 25 yeats but had to give up and take early retirement 2 years ago. It was getting to much to be at work for 7am on early shifts and not be home until 11.30 on lates. Doing manual handling when I could manual handle myself most of the time was doing myself in. It was time to call it a day. I felt so much better for it

Cotswolds25121 profile image
Cotswolds25121 in reply toAllbie

I have just msgs my manager. Even though it’s early hours, she always says that she doesn’t sleep so maybe she will pick up my msg. I have finally told her how much I am struggling with fm and have been covering up how much pain I am suffering. I am sure many of us do this to keep our jobs, which by the way I love. It’s a double whammy when you have a job that you love and can no longer do. It tears you in two. Literally from not seeing and supporting those that you have come to love and support because they like seeing you and you like seeing them. You both make each other’s day. It’s a win win situation. Same as I can’t bear the thought of not working but I can’t manage 5 days a week

Allbie profile image
Allbie in reply toCotswolds25121

I loved my job too. My manager wouldn't help me she told me all or nothing. I went of sick for a year arguing it in the end it was making me sicker so I took early retirement. I get a reduced work place pension in January I will finally get my state pension so life will be a little easier. It is worth it I'm in a better state of mind now.Maybe she will let you go part time. If she is nicer than my manager maybe you could help the easier to look after people.

Let me know what happens. Good luck x

Sally444 profile image
Sally444 in reply toAllbie

Hi Allbie. I also suffer with a lack of sleep and constant tiredness. I can fall asleep but then wake up numerous times each night. It's very frustrating and I feel like I need a year off just to sleep! I hear of so many people struggling in their jobs with uncaring managers and it makes me so mad! I'm sorry you had to give up your job but glad to hear that you are putting your health and wellbeing first. I hope you find the ability to sleep soon. 😊

Allbie profile image
Allbie in reply toSally444

Thank you. I do find that if I go to bed as soon as I'm tired I will sleep for a bit. We'll until pain wakes. This isn't alway practical as it can be 5 or 6 o'clock at night.

557755 profile image
557755

I find Melatonin really helps - you have to buy it online. 😀

Allbie profile image
Allbie in reply to557755

Thank you. I can cope with anything else except lack of sleep.

Allbie profile image
Allbie in reply to557755

I think this why you can only get it on line.

Still might give it ago though

Melatonin banned in UK30-10-1995 Print

- In the UK, the Medicines Control Agency has banned the high-street sale of melatonin after it was decided the compound was "medicinal by function," and as such requires a drug license. The MCA has written to all relevant suppliers, which comprise mainly health food shops, ordering them to stop selling the product.

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