Hello I'm new to this site. I have had Lupus for a few years now but I'm now thinking that I might also have Fibromyalgia. I have asked to see my doctor to talk about this. The last time I saw my Rheumatologist in June he told me my blood tests showed negative for lupus at the moment - and I asked 'why do I feel so ill then?' I didn't really get an answer.
The initial symptoms that got me a diagnosis of lupus were: face rash, sun sensitivity, joint pain, brain fog, fatigue and a positive ANA blood test. I didn't react well to the lupus drugs so I opted to manage it with acupuncture, anti-inflammatory diet and pain killers, which has been reasonably successful.
The year after the lupus diagnosis I started to get burning pains in my arms (tendons?) around the joints and in the muscles that made me feel weak and stopped me from working. I also have had nerve pain like electric shocks in my chest. When I flare I also get tingling (like nettle rash pain) all over my skin - and stabbing sensations like I'm being pricked with pins. I also suffer regularly from a stiff neck and headaches. The burning pains are now all over - around wrists, elbows, knees and feet, and I regularly get bouts of feeling like I have the flu, with all over body aches that put me in bed (up to 2 weeks every month since Feb). The pain and fatigue is really getting me down, and I feel pretty low much of the time. I also lost my father a few months ago to a horrible disease which was distressing to watch so I think I also need bereavement counselling.
How do I go about getting a diagnosis for Fibromyalgia? I know it is common for lupus patients to also get Fibro. How do you manage the pain and the feelings of depression? I have just started a drug called LDN from a private doctor and so I'm hoping that as I increase the dose I will feel some relief (you have to increase slowly). Are any of you also on LDN? Thanks for your help!