What medication are peeps on - Fibromyalgia Acti...

Fibromyalgia Action UK

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What medication are peeps on

21 Replies

I have been on so much diff medication the past decade or so for this terrible condition - what have you been on and what has worked best for you?

21 Replies
Kitten-kat23 profile image
Kitten-kat23

Unfortunately I am so allergic to medication, my GP won't give me anything. I just try to get along as best I can. I have aids to help me round the house and a carer. If the pain gets too bad I am given a course of something stronger than paracetamol, but I can't take it for very long.

JacquiRo profile image
JacquiRo

Hard for me to say.. I am being treated for Atypical Trigeminal Neuralgia and my go wants me to increase those meds which are:

Tegratol

Tramadol

Pregablin

Paracetamol

Omeprazole for tummy

On others for asthma

And osteoarthritis diflofenic sodium slow release

But actually none for this..

Dr said up my pregablin to help me sleep but doesn't help the cause does it just more brain fog!

Healing hugs x

Thanks both, that's an interesting list. I am on gabapentin codeine tramadol lanzoprazole amitriptyline venlafaxine laxido declofenic

spider555 profile image
spider555

Most of the same suspects. Nerve drugs.

On bu trans plus anti nausea med.

It's making me very sleepy. Hands are still sore...

rosewine profile image
rosewine

For fibro, costo chondritis and osteo I have Pregablin, Zapain which is actually Cocodamal 30/500mg and Nurofen. Intake alot of other meds for other illnesses. I think the Pregablin helps the most with the burning and shooting pains I get and Nurofen helps best with any inflammation. The cocodamal does help a bit with the pain but not as much as the other two. With all the meds I feel like a tube of smarties.

It is so difficult to find a set of drugs that help, have tolerable side effects and don't don't conflict with my other meds. Any form of antidepressants seem to be a no no with me. Have tried three different sorts and they have all had horrendous effects on me. Butrans patches ere good but unfortunately I was making inroads the adhesive and came out in ulcerated sores so had to drop them.x

Same here rose wine my bags are like a flaming pharmacy when I go to the chemist they just roll their eyes thinking wow this is going to take 20 mins of my time to sort all this out

I don't find pregabalin useful anymore my body became too used to it

Bobby16 profile image
Bobby16

I tried lots .all unsuitable .made me very I'll. Gabapentin. Amitriptaline. Nephedipine. Stellate ganglion block.iloprost infusion. Co codamol. Can't take ibufren risk of bleed because on clopidodrel. I take it sometimes still.

spider555 profile image
spider555 in reply to Bobby16

Did the block help?

Kitten-whiskers profile image
Kitten-whiskers

The only thing that was good for me as a pain relief gel with Iburofen and menthol that I bought from the chemist, any other stuff from the doctors had side effects.

I did find that giving up dairy also reduced my pain, also Yoga and exercise help, if you are able to do any.

Take care

LayLayM profile image
LayLayM

Me, I'm on - Pregabalin, Sertraline, Tramadol, and Amitryptiline.

My friend is on tons. I think she takes - Pregabalin, Tramadol, Sertraline, Omeprazole, Ivabradine, Methocarbamol, Dihydrocodeine, Mirtazapine, Fludrocortisone, Morphine ER, Diazepam, Midodrine and Cyclizine.

Some of hers are for different conditions I think though. Still a lot x

in reply to LayLayM

Yep we all are drugged up. I am sure I would fail a drugs test if ever I was given one! there is no flaming cure for this abhorrent illness

LayLayM profile image
LayLayM in reply to

True that. Personally tramadol does nothing from me, dont know how its supposed to be strong x

in reply to LayLayM

I take ten tramadol in one go that don't work much

LayLayM profile image
LayLayM in reply to

Gosh, most I take is 4 at a time sometimes but they still don't help much. Will ask my doc if he can try something different x

in reply to LayLayM

My doctor said next step up for me is morphine

LayLayM profile image
LayLayM in reply to

Sorry to hear that. My friend is on Morphine ER and she finds that it helps her so much. I hope you find a good option for for your pain, such a dreadful illness x

in reply to LayLayM

I think I may have 2 go to it but so reluctant already on enough medications as it is. Hope you are ok my lovely x

LayLayM profile image
LayLayM in reply to

You'll be shaking like a maracca 😅. Bit of pain today but that's just the usual I suppose. Hope you're doing ok too honey x

in reply to LayLayM

Yes that's me! Hard to keep under wraps at work though popping all those pills. Yeah pain is horrible isn't it hope you feel better soon x

LayLayM profile image
LayLayM in reply to

Lol, that was me when I still was working. I hope you feel better soon hun x

in reply to LayLayM

Thank you you take care x

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