im 16 and I've experienced a range of pains in many different places for over a year now
Around june last year I had a blood count of 5 which is a third less of what your meant to have, I had three blood transfusions but I was never diagnosed, some may believe it's related to stress. For the next 5 months I was perfect, but the past three months I have had various chest pains, kidney area pains and lower back as well as arm. Ive had many tests, ECG's, chest xrays, CT scans and blood tests for heart etc but still nothing.
Recently I had a terrific amount of pain around the whole of the left chest, lower rib and lower back for 25 minutes which I felt like I was dying, but it was relieved by lying on the side.
I am fed up and want to know what it is, I believe it could be stress as its mainly when I think about it but want other opinions as I havnt had any tests related to stress, however I have my gcses which may contribute to stress.
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Callain1
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Hi Callain1 welcome to our wonderful forum ☺ I'm sorry you have and still are suffering with these awful symptoms, You say you had 3 blood transfusions but not diagnosed and I'm a bit confused by that bit. Can I ask why you had to have blood transfusions ?.
You mention you are also having a lot of stress with your exams and you could be having anxiety and panic attacks but it difficult to say because we are not doctors. Stress does crazy things to our bodies & if our mind is in turmoil, it makes sense eventually that will effect our body.
Why don't you take someone with you to your doctors and ask what they think all of these pains are that you are getting, write your symptoms down, keep a little diary, this can be useful for the doctor to understand what it it. Fibromyalgia takes a long long time to diagnose and you have to have lots of blood tests to rule out other conditions that Fibro symptoms mimic. If after a few mths you are still in pain & your bloods are all normal, it is usual for your GP to refer you to a Rhuematologist, who will then do further tests. Have you been given any medication for pain ?
Please do go and have a look at the mother site where you will find all the information and lots of useful links on Fibro and I look forward to chatting to you on the forum.
Wow the anaemia must have been very severe to warrant 3 blood transfusions and you must have been seriously Ill. I thought blood transfusions were only given after major surgery or a serious accident, when you lose a lot of blood. I find it crazy that your symptoms were not investigated and you have not been diagnosed with what caused the extremely low blood count and you should be on medication for it, your iron need to be replaced to bring it back up.
Can your parents come with you to the doctors and get you refered to a Hematologist ? I'm not a doctor but it sounds to me like your blood count is the problem, as it does cause you to be very unwell and you have to take iron, so if I were you my friend, I would go to your gp and find out what on earth is going on. This is difficult for adults sometimes to be assertive & say what you want to say to doctors, it's definitely good to take someone with you.
Hey Callain, it's not totally clear from your post why you have had blood transfusions but seems to suggest that you may possibly be anaemic? Regardless of this it sounds like you are under a lot of stress at the moment chicken and that in itself can cause so many problems, both physically and mentally. I would suggest you keep a pain diary that doesn't just to record when u have physical pain but what you are experiencing/thinking/feeling at that time. This will give your GP a clearer picture of what is happening with you. It is not a forgone conclusion that you have fibro as this can take a long time to diagnose after everything else has been ruled out. Hopefully you have an understanding GP but if not get back to us on here as there will be someone to give advice. Take care lovely. xxx
Thank you, yes I was anaemic but it wasn't clear why I became it.
Hello Callian 1, what you describing does not sound like Fibromygia with this condition it affects the feet, legs, arms, bach and neck You get headaches and fateag Most members here have been diegnosed with Fibromygia and are on fairly serious drugs to combat the hell of this condistion Good luck I hope you can get a doctor to help you
Callain1 , You may need to see a gp....someone who 16 years old should not have enough stress to put you in pain like that.Im no gp but you need to get checked out just to be safe.Take care.Peck 🐤
I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you are experiencing this issue and what you have described could be anxiety attacks. I have pasted you an excerpt below form the *calmclinic cache on this issue:
*Anxiety causes chest pain, but an important factor in reducing the stress of that chest pain is making sure you're confident your heart is in good health. ... Still, often those living with anxiety and panic attacks will experience chest pain caused by any number of different factors.
I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Thank you very much, I believe now that after all the tests coming back good it may be related to anxiety as I have multiple pains everywhere and when I believe I'm in good health I do not have the pains.
Stress does not help our bodies, sometimes it makes us panic, hyperventilate, anxious or depressed. It can be a very distressing condition to be in. I would go back to your GP after booking a double appointment so you don't feel rushed, and tell him what you are feeling.
It is usual to have a diagnosis of fibro after everything else has been ruled out and this can take some time. Can you take a family member who knows you and your symptoms well?
Wonder, could you be coeliac? I had really low iron levels (thought it was due to my heavy periods) but the doctor sent me for an endoscopy where they found evidence of coeliacs. The GP said due to the damage in my stomach from coeliacs I was bleeding into my GI but not enough to be visible to the naked eye but enough to affect my iron levels. Don't want to embarrass you by asking about periods etc but sure you have already explored that (if appropriate).
The other thing that I've just found is myofascial release. Your fascia basically wraps around my muscles abit like stockinette on a cushion to allow your skin (the cushion cover) and muscles (cushion) to move smoothly. If this gets damaged it can get 'snagged' or stuck and can cause pain. It's a very gentle process, the therapist literally is stretching the fascia out, holding it for a minute or two so that it relaxes and releases. Had it done yesterday and whilst they were working on the bottom of my back (the back of my head and face went numb with extreme pressure which are my most frequent symptoms which was weird!) I'm not saying everyone with fibro has myofascial pain but if you look at the research the two can go hand in hand ie you can have fibro & fascial pain. I've certainly found after two treatments that it has helped both physically and mentally as I feel as though I have some answers on my pain which means when I am in pain I can cope with it better as I know what is causing it. What I would say is that it is so gentle that you could be forgiven for thinking nothing is happening but the idea is that the fascia is like an elastic band so if you give it a quick tug (vigorous massage) as soon as you let go it springs back into its damaged state (which is what happens with me). This means the idea is that you are gently stretching that band so that it retains its new position and this has to be done gently.
Of course, the difficulty with fibro is that what works for one person doesn't work for another but I've found so many new things to have a go of on her (some worked, some didn't) that I just want to share my experience but do always check with your GP or the therapist before going ahead as you may have pre-existing conditions that require a different approach.
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