New diagnosis: Hello every one I haven... - Fibromyalgia Acti...

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New diagnosis

Aig45 profile image
9 Replies

Hello every one I haven't posted anything for awhile it's Andrew here the last time I posted anything it was about me finding out I have cancer and was waiting to hear how bad it was well unfortunately it was stage 4 and terminal so it's all about palliative care now so can anyone out there advise me on what benefits I'm entitled to claim and do I come under special rules also where I now stand in regards to my tribunal thanks hope everyone out there is well Andrew

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Aig45
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9 Replies
Sniffer8 profile image
Sniffer8

So sorry to hear this. I'm no expert but presumably you'll qualify for lots of help? You should get ESA.

Hollie121 profile image
Hollie121

Hi Andrew I'm so sorry for your diagnosis hope you have family and friends to look after you I will keep you in my prayers

ukmsmi4 profile image
ukmsmi4

So sorry to hear your news.

You should indeed be able to claim benefits, especially if you are at the stage of being too ill to work. You may even be able to fast track your application. I have no personal experience of this situation but here are a few links that may help.

mariecurie.org.uk/help/mone...

citizensadvice.org.uk/benef...

patient.info/health/benefit...

I hope you are getting as much care as possible.

Gentle hugs, Margaret. xxx

rosewine profile image
rosewine

Andrew so sorry to hear of your diagnosis. My husband has been fast tracked through re a possible cancer diagnosis and we will hear on Monday so my thoughts are with you.

I am not sure whether you are in an area that still has DLA instead of PIP as I am not sure about where you live but these briefly are the rules:-

What are the special rules?

If you’re living with a terminal illness and your death ‘can reasonably be expected’ within the next six months, your claim for certain benefits can be fast-tracked and paid at the highest rate.

The six month timeframe is set by the Department for Work and Pensions (DWP) and Social Security Agency (SSA) in Northern Ireland. If it applies to you, it means you don’t have to wait for the three month qualifying period to get Disability Living Allowance, Personal Independence Payment or Attendance Allowance. Your claim is prioritised and the DWP or SSA will try to give you a decision within eight working days.

Depending on which benefit you claim, you’ll automatically qualify for the:

highest rate of the Disability Living Allowance care component

enhanced rate of the Personal Independence Payment daily living component

higher rate of Attendance Allowance

In each case this is £82.30 a week.

If you have a terminal illness but your death can’t reasonably be expected within the next six months, you won’t qualify under the special rules.

What about the mobility component?

Both Personal Independence Payment and Disability Living Allowance include a mobility component. You won’t automatically get this under the special rules. The normal rules of assessment still apply, but not the three month qualifying period.

Personal Independence Payment mobility component

If you’re claiming Personal Independence Payment under the special rules, you’ll be asked questions about your mobility when you start the claim. This should speed up the decision on the mobility component and ensure you don’t have to complete another claim form.

Disability Living Allowance mobility component

It’s no longer possible to make a new claim for Disability Living Allowance as an adult in England, Scotland and Wales. You can still claim Disability Living Allowance in Northern Ireland.

How long does it take to process a claim?

The DWP and SSA normally process Disability Living Allowance and Attendance Allowance claims under the special rules within eight working days. Personal Independence Payment claims under the special rules currently take two to three weeks to process.

I believe there are also special rules for ESA.

I hope the above helps.x

Trikki profile image
Trikki

So sad for you and your family for having such a rotten diagnosis .... You will be fast tracked through system...If you need further help with forms either CAB or our own Benefit's Advisor whose link is on the right of this page..

Sending gentle hugs and blessings...Tricia x

BlueMermaid3 profile image
BlueMermaid3

Hello Andrew

I am so very sorry to hear of your diagnosis.

I can see that you have been given some very useful links and advice.

All that I can really add to that would be the details of our own Benefits Adviser Janet.

Here are all of her contact details:

healthunlocked.com/fibromya...

I am genuinely sorry that in addition to having such a dreadful diagnosis that you are having to go through the ordeal of applying for benefits.

I very much hope that your claim is fast tracked by the DWP.

Please do come back to us if you need any other help or advice.

My thoughts and prayers are with you and your family.

Lu xx

Nanny40 profile image
Nanny40

So sorry for your diagnosis, it will be fast tracked for sure, wishing you lots of love support prayers and soft hugs 💙 🙏 xx

Kitten-kat23 profile image
Kitten-kat23

I am so sorry for your news.

TheAuthor profile image
TheAuthor

Hi my friend

I really am so truly sorry to read of your diagnosis, and I want to genuinely and sincerely wish you all the best of luck Andrew. I can see that the others have given you some wonderful advice and replies of what to do next, and so I am sending you my deepest thoughts and regards and best wishes my friend.

All my hopes and dreams for you

Ken

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