Search
Search
About
Log in
Join
Experiences with
Palliative-care
Posts
Communities
1,048 public posts
Filter results
Palliative care
We have a home visit booked for this afternoon for a
palliative
care
plan to be put together. Does anyone have any words of wisdom or tips for us please? Thank you in advance x
We have a home visit booked for this afternoon for a
palliative
care
plan to be put together. Does anyone have any words of wisdom or tips for us please? Thank you in advance x
Italiansunsets
in
PSP Association
3 months ago
Palliative care study
This study highlights the benefits and efficacy of getting involved with
palliative
care
sooner rather than later and using telehealth where possible: https://www.practiceupdate.com/c/167106/32/1/?
This study highlights the benefits and efficacy of getting involved with
palliative
care
sooner rather than later and using telehealth where possible: https://www.practiceupdate.com/c/167106/32/1/?
Shams_Vjean
in
Advanced Prostate Cancer
7 days ago
Offered palliative care only
She was transfered to be treated at a local hospital which the oncologists board decided she will have
palliative
care
only. My dad said the oncologist didnt offered radioteraphy or chemioteraphy, he was so shocked didnt ask why. She is at home now with prescription of Keppra and dexomethasone.
She was transfered to be treated at a local hospital which the oncologists board decided she will have
palliative
care
only. My dad said the oncologist didnt offered radioteraphy or chemioteraphy, he was so shocked didnt ask why. She is at home now with prescription of Keppra and dexomethasone.
NJRV
in
Glioblastoma Support
1 month ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
My story
She is now at the
Palliative
care
stage. It's heart breaking watching her decline.
She is now at the
Palliative
care
stage. It's heart breaking watching her decline.
Flowers2024
in
PSP Association
2 months ago
In need of a hug
He is getting
palliative
care
for inoperable brain bleeds. The night is so dark (no moonlight) and the feelings of gloom and helplessness seems darker and heavier than the day before.
He is getting
palliative
care
for inoperable brain bleeds. The night is so dark (no moonlight) and the feelings of gloom and helplessness seems darker and heavier than the day before.
blackcat64013
in
Anxiety and Depression Support
4 months ago
Hiccups
Palliative
care
in day for washing and pad changes. District nurse, when rarely tracked down, for bed sore dressing and rocket drain dressing.
Palliative
care
in day for washing and pad changes. District nurse, when rarely tracked down, for bed sore dressing and rocket drain dressing.
Fred12344
in
British Liver Trust
3 months ago
A catchup on my hospital outcome
To be referred to oncology for radiotheraphy , if this makes me ill will just be left with
palliative
care
treatment. So have to have physio in a fortnight then change over to oncology.
To be referred to oncology for radiotheraphy , if this makes me ill will just be left with
palliative
care
treatment. So have to have physio in a fortnight then change over to oncology.
katieoxo60
in
Lung Conditions Community Forum
1 month ago
Dad diagnosed with GBM grade 4
We have spoken to Macmillan and
palliative
care
but they have not been very helpful in terms of support for him at home.
Palliative
care
said he could get a nurse in once a day. We can’t continue to stay with him forever though. I have 2 young children. Does anyone have any advice please?
We have spoken to Macmillan and
palliative
care
but they have not been very helpful in terms of support for him at home.
Palliative
care
said he could get a nurse in once a day. We can’t continue to stay with him forever though. I have 2 young children. Does anyone have any advice please?
KerriC05
in
Glioblastoma Support
10 days ago
Butron patch
hi I’ve had the hospice nurse around this week and les is now under the
palliative
care
team , she’s prescribed Butron Parches for les along with morphine tablets for under the tongue and then injection vials , I’ve no idea why the vials as obviously it’s not for me to administer, I worry that they
hi I’ve had the hospice nurse around this week and les is now under the
palliative
care
team , she’s prescribed Butron Parches for les along with morphine tablets for under the tongue and then injection vials , I’ve no idea why the vials as obviously it’s not for me to administer, I worry that they
DeeMilo25
in
Multiple System Atrophy Trust
5 months ago
Being Mortal Book by Atul Gawande
We are meeting with my Dad's oncologist on July 5 and his
palliative
care
doctor on July 8th and I plan to use a lot of what I read during this conversation. My father's pain has returned with a vengeance since June 10 and he has no balance.
We are meeting with my Dad's oncologist on July 5 and his
palliative
care
doctor on July 8th and I plan to use a lot of what I read during this conversation. My father's pain has returned with a vengeance since June 10 and he has no balance.
lgutman
in
Advanced Prostate Cancer
10 days ago
Palliative care
My consultant has put me on
palliative
care
. He says no more lung function tests or CT scans, a triple function inhaler instead of three inhalers and full time oxygen instead of ambulatory. What else can I expect from
palliative
care
? What can I ask for?
My consultant has put me on
palliative
care
. He says no more lung function tests or CT scans, a triple function inhaler instead of three inhalers and full time oxygen instead of ambulatory. What else can I expect from
palliative
care
? What can I ask for?
wheezyof
in
Lung Conditions Community Forum
10 months ago
Experience/Opinions on: Pembrolizumab + Lenvatinib for NEPC/SCPC
Also my MO seems to stand behind this estimate since he has registered me with BC
Palliative
Care
Program (6 mo's to live). At my urging, my MO reached out to US based Clinics in Seattle, Portland and San Francisco with the goal of seeking out clinical trials relevant to my condition.
Also my MO seems to stand behind this estimate since he has registered me with BC
Palliative
Care
Program (6 mo's to live). At my urging, my MO reached out to US based Clinics in Seattle, Portland and San Francisco with the goal of seeking out clinical trials relevant to my condition.
skiingfiend
in
Advanced Prostate Cancer
1 month ago
Palliative care, does it still exist?
All this is going well but nothing from the
palliative
care
team. I was hoping someone would contact me as I could do with some advice. I don't know how to contact the team so can't chase them up. Any ideas ?
All this is going well but nothing from the
palliative
care
team. I was hoping someone would contact me as I could do with some advice. I don't know how to contact the team so can't chase them up. Any ideas ?
wheezyof
in
Lung Conditions Community Forum
8 months ago
Ibrance/Letrozole Fail
My
palliative
care
team has my hip pain under control. I should be grateful, but I’m angry because I feel like, after just 22 months, I’m nearing the end of my options. I pray for a much longer life. I believe so much in God and I know He will guide me.
My
palliative
care
team has my hip pain under control. I should be grateful, but I’m angry because I feel like, after just 22 months, I’m nearing the end of my options. I pray for a much longer life. I believe so much in God and I know He will guide me.
CTGirl1962
in
SHARE Metastatic Breast Cancer
5 months ago
Palliative care only
All anti-cancer treatment is being withdrawn, leaving me with
palliative
care
only. She thinks I might see some of 2024, but less of it than more. I would like to thank you all for your support over the years, especially during my struggles to express myself through painting.
All anti-cancer treatment is being withdrawn, leaving me with
palliative
care
only. She thinks I might see some of 2024, but less of it than more. I would like to thank you all for your support over the years, especially during my struggles to express myself through painting.
BrentW
in
Care Community
10 months ago
Palliative care only
My appointment with my oncologist today was not what one might hope, but what I knew was coming. She has done all she can for me (please don't try telling me of alternatives; we discussed them at length and came up blank with each one). So, with all anti-cancer medication removed, I have nothing but
My appointment with my oncologist today was not what one might hope, but what I knew was coming. She has done all she can for me (please don't try telling me of alternatives; we discussed them at length and came up blank with each one). So, with all anti-cancer medication removed, I have nothing but
BrentW
in
Advanced Prostate Cancer
10 months ago
End of life information for heart disease sufferers
I have not been able to find anything about
palliative
care
except this - https://www.bhf.org.uk/informationsupport/heart-matters-magazine/wellbeing/end-of-life-care (The end of life needs of people with heart disease aren’t being met). which is not very comforting.
I have not been able to find anything about
palliative
care
except this - https://www.bhf.org.uk/informationsupport/heart-matters-magazine/wellbeing/end-of-life-care (The end of life needs of people with heart disease aren’t being met). which is not very comforting.
Jessica37
in
British Heart Foundation
6 months ago
My Cancer Journey Repost
([i]At the beginning I had a lot of meetings with
palliative
care
. Eventually I realized it was not so useful. At least at that time and so far.[/i]) G-d willing I am able to continue to enjoy this level of good health, especially for the benefit of and joy with my family.
([i]At the beginning I had a lot of meetings with
palliative
care
. Eventually I realized it was not so useful. At least at that time and so far.[/i]) G-d willing I am able to continue to enjoy this level of good health, especially for the benefit of and joy with my family.
JohnInTheMiddle
in
Advanced Prostate Cancer
1 month ago
What's next?
As I've written before, my husband stopped all treatment and is receiving
palliative
care
. Just got the results of his 3-mo. PSA and it's jumped from 40 to 91. Wondering if there's any way to know if/when symptoms will start appearing due to PCa's further or worsening spread?
As I've written before, my husband stopped all treatment and is receiving
palliative
care
. Just got the results of his 3-mo. PSA and it's jumped from 40 to 91. Wondering if there's any way to know if/when symptoms will start appearing due to PCa's further or worsening spread?
Shamrock46
in
Advanced Prostate Cancer
6 months ago
Moving on to hospice care
We have been managing as best we can on our own with the biweekly visits from the
palliative
care
team, but they have suggested that we will need more help as he is deteriorating fast, and anything could happen at any time.
We have been managing as best we can on our own with the biweekly visits from the
palliative
care
team, but they have suggested that we will need more help as he is deteriorating fast, and anything could happen at any time.
StayingSTRNG
in
Advanced Prostate Cancer
4 months ago
1
2
...
53
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
Diabetes India
234 results
Advanced Prostate Cancer
105 results
PSP Association
86 results
View top 10 communities
Sort by
Most Relevant
Newest