New diagnosis

I've seen the consultant again and following an MRI I've been diagnosed with CRPS (complex regional pain syndrome), frozen shoulder and Cervical Spine Radiculopathy as well as FM! Think they're covering everything!

I've been referred to the pain clinic and have to go back to the consultant to see if anything can be done to improve things.

Feeling a bit deflated that the general consensus is live with it! Pain relief and it's not going away.

I'm starting a claim for PIP and irritated that I will judged to see if my symptoms are bad enough to get financial help! I'm still working full time, but sickness absence is increasing and I'm worried that I will have to reduce my hours and therefore my pay!! I have to accept that I'm struggling to keep up my hours at work but it's necessary if I want to eat.

Smiling and pretending everything is ok still but inside I'm a mess. I've always been independent and it's hard to ask for help. Sorry to moan but I find it hard to tell my kids (all adults) as I've always been their rock. My partner knows and is supportive. It's a good job he can cook as I can't even chop veg anymore, cans and jars are impossible and no one wants frozen microwave meals every day!!

Thanks for listening to my rant xx

6 Replies

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  • Hi I know what your going through even though I've been diagnosed just with fibromyalgia, arthritis and sever depression. It might not be the same but it is horrible not able to do so much and always in pain.

    No your not moaning the only people that understand everything is the people that are going through it themselves.

    You are blessed to have a partner to help you I lost my husband 10 years and my kids can only understand so much. Lots of Hugs. Debbie Xx

  • Thanks Debbie, hugs and best wishes xx

  • Hello Debbie Dmehat

    Please feel free to write a post about your Fibromyalgia journey.

    Please also accept my sincere condolences on the loss of your husband.

    If you need any help finding your way around the forum please don't hesitate to give me a shout.

    Wishing you a peaceful day

    Lu x

    Administrator

  • Hello Jan1964

    Welcome to our lovely forum :)

    I am sorry that you have been diagnosed with so many conditions. Fibromyalgia doesn't seem to like to come alone.

    I have had Fibro & ME for 36 years. I also suffer with Hypermobility Syndrome, osteoarthritis, PTSD, depression & anxiety.

    I have been a member of the forum for 5 years and have seen so many people desperate to get a diagnosis.

    Often times when people are eventually diagnosed it can actually be quite a depressing time. As you say "feeling a bit deflated ... " is very common.

    I agree with you that the stress people are put under to prove to the DWP how ill we are is disgraceful.

    If you take a look at our mother site you will find lots of info about Fibro fmauk.org

    You may also like to look into locking your posts so that they stay within our forum. Here is a link to an easy to follow guide on how to do this:

    healthunlocked.com/fibromya...

    If you need any help at all navigating the forum, please don't hesitate to give me a shout.

    Wishing you a peaceful day

    Lu x

    Administrator

  • Rant away as we can all empathise with you. I admire you still holding down a full time job as it must be so difficult and yes ready meals are okay occasionally but not on a regular basis, hate not being able to cook much from scratch.

    Multiple diagnosis are always so confusing as you wonder which one is causing which symptom and a name for something doesn't take the stiffness and pain away. I hate it when they bid their heads and say"unfortunately there isn't that much we can do and you need to learn to live with it". If they and it they would soon be begging for a cure.

    It is so disheartening when you have always worked and been independent to feel you have to apply for benefits but needs must as they say.

    Hope the Pain Clinic appointment comes soon and the consultant can help you in some way. Let us know how you get on.x

  • Hi Jan1964

    I am so genuinely sorry to read this my friend and they appear to be covering all bases don't they. I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you

    Ken x

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