Hi, I hope that everyone is as well as they can be. Sorry I have not posted for a while but I have been reading all the daily posts, the reason being that I hadn’t as yet been given a diagnosis. Those who have read my previous posts know that for years I have been having problems with pain and other symptoms and not one doctor was willing to listen. I then tried the 3rd doctor at my local surgery but due to him being Chinese and not speaking or understanding much in English I sent an email to him with all my past symptoms, he then put me on Naproxen and Amitriptyline and then said would refer me to rheumatology. This was back in June and I also had a physiotherapy appointment at the end of June. The physio didn’t go very well though as he wasn’t really listening to me, nearly had an argument about waiting times for appointments as he insisted it only takes 4 weeks ,not months as in my case! Then just said loose weight and put my feet up night!
Since June I have been keeping a daily diary of all my symptoms. Yesterday I went to my actual rheumatology appointment at the hospital taking with me my letter to my doctor and my diary. I got to see the consultant who is a woman, English and very nice and down to earth, which I was so relieved about! She read all my letter and notes, discussed each point and how I was feeling now. She even said that the doctor had asked her to examine me for Fibromyalgia! So she gave me a thorough examination using pressure and pin prick tests plus others to test for arthritis and muscle strength. Her diagnosis was yes I do have Fibromyalgia, Hypermobility Syndrome plus she thinks other osteoarthritis problems! She thought that most of my problems had actually began in childhood and was amazed that my symptoms had always been dismissed by doctors! I’ve been back again today for xrays and bloods and need to have nerve tests and scans. Need to discuss Meds with my doctor and back to physiotherapy.
I was so relieved to have come out with an actual diagnosis when no one from doctors to friends and family have believed that there is anything wrong with me and it’s just depression or in my head!
Sorry it’s a long post and thanks for reading!