I am just waiting on my results as see specialist on sat but he thinks it is fibromyalgia and other problems with my back. In pain most of the time just can not get my head round it as I am normally very active and now I have to pace myself. I am 48 and live with my partner and feel guilty he as to help me with somethings and he works. I just can not get my head round it all I have told my partner to go find someone else and live his life but he said it's not what he wants but it does not stop me feeling guilty about it all.

13 Replies

  • Hi shellieb.....I think we have all felt very much like you at times regarding our partners, I know I did and still do when invited out or going on trips and I cannot go when the day comes! Even simple jobs around the house become a major event for OH is a gem but there are times when I know he is frustrated with me...I also know he loves me dearly and wants to be with me despite this lousy condition....I hope you are able to sort out some meds with your GP so you are able to get some relief soon.....xx

  • Hi my dr as given me some meds to help and my partner try to help but I don't want him to as I feel it is my job. It's the memory lose I can not handle forgetting just simple things it is good to talk to someone with the same problem as me xx

  • I agree Shellieb68 that the fibro brain fog (soggy brain) I call mine is a blinking nuisance....I write many things down to remember but it is the conversation aspect I find most alarming at times...forgetting what I was talking about, wrong words and constantly saying "No don't tell me...I will remember in a minute".....xx

  • I write everything down but need a note to remind me to read my notes. Getting my words mixed up is a pain everything is a thingy or a what u call it all the time. It's just hard getting my head round it all xx

  • hi I have said that to my partner too, I was diagnosed 6 months ago after years of tests, I feel my foggy brain has got better with a very good diet and trying to keep as active as possible - and my walking has improved with medication - guilt feelings are quite normal with fibromyalgia - he loves you he doesn't want anyone else - Neese xx

  • I think it will take time to take it all in I just need time to get my head round it and help my partner to understand it as well xx

  • yes it takes a while - I knew what I had for a long while - but then still got upset when told I had fibromyalgia - it takes a while to adjust your way of thinking and adjust your life - I still do things but I always have to pace - otherwise I get a flare - I think its just accepting it x

  • I have known for a long time what it was but my dr was not listening to me for over a year now but seeing specialist have had MRI and other stuff done and said that's why they think it is but he is going to phone me tomorrow saying yes or no as he wants to see my last MRI as well. I try and do everything but can't now so just got to get used to pacing myself and doing little at a time xx

  • Hi the only thing I can help with is you have to learn to pace yourself with everything you do.If you over do anything you will suffer. I know it's easier said than done. But you have to make it part of your life.As for partners they can suffer as much as us. Yourself and your partner need to work together on partner has put up with a lot over the years but she's still with me.Touch wood. Good luck.

  • Hi and thanks thank you for all it help I am trying very hard to pace myself but it's a bit hard but I will get there with it. I think he is suffering because i am used to doing everything myself and now he is helping and I am not very good at asking for help. The only problem i have with my partner is we have only been together for 4 and it is a lot to ask him to look after me full time if he as to

  • Hi Shellieb68

    Welcome to the forum and it is wonderful to make your acquaintance. I have pasted a link for you below to our mother site, FMA UK which hosts loads of useful Fibro information:

    I am so gneuinely sorry to read of the suffering and struggling that you are enduring and I sincerely hope that you can find some relief and resolution to these issues. I want to genuinely wish both yourself and your partner all the best of luck.

    All my hopes and dreams for you


  • Thank you Ken and to everyone who as helped

  • Just had the phone call of the specialist and I definitely have fibromyalgia

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