Has anyone else had a flare up since the weather has cooled back down after it being so hot?

[Just-keep-swimming]

Hi all. I think there are probably many that have struggled when it was really hot last week but has anyone else crashed massively since it has cooled down again? The weather seems to have a huge impact on my Fibro. The last time I was like this was coming back from Spain to the UK. After being back a few days, I could barely walk from the bedroom to the bathroom and now it's happened again with the heatwave in the UK. Im in triple the pain, sleeping an awful lot and can barely stand up. The heat was hard on my fibro but the quick drop in temperature or air pressure has brought out an even worse reaction.

[morag37]

Morning, Totally agree I am in a lot more pain since weather has changed again (Scotland). When it was hot my shoulders, hand and wrists were feeling much better, but now pain is back and supports are back on. So know how you feel, may have to look into heat lamp.Sending Hugs

🤗

[madblondebint]

I've been flaring since it was hot. I'm not sure if that was due to the change in temperature or the lack of sleep while it was hot. I'm definitely on a downward spiral, going for my first accupuncture session tonight to see if that will get me back on track.

[Just-keep-swimming in reply to madblondebint]

Ooh, let me know how it went! x

[madblondebint in reply to Just-keep-swimming]

So far so good, I wasn't expecting miracles after the first session with the amount of stuff I gave her to deal with. I would say I've slept better since, and the pain is less in the morning, by lunch it's all back and strangely some of the pain has moved down my arms and legs. But going for another session next week, there's definitely something in it.

[Yassytina FMA UK Volunteer]

I do think some of us can get affected with temperature changes , gosh it was too hot last Tuesday I found it hard too cope with then yesterday it dropped too 19 degrees and was chilly, English weather hey 🤣 I think differently keep resting it out if your body is reacting. I think people with no medical conditions were flagging last week. I do find warmth is more soothing for my fibro body but extreme heat slowed me down very much so I went with my flow, lots of fluids and chilled x

[BlueTofu]

I think i'm slightly worse and more tired this week. I think it's the lack of sleep and stress. I had other things going on in my life. Also, it was like an emergency situation to survive - which is now over; so back to reality of limited life I live and feeling down.

[Hazel_Angelstar Administrator FMA UK Staff]

I definitely react to changes in the weather, especially going from hot temps to cooler, or from dry to rain

Spent last weekend in bed totally wiped out, and I'm blaming it on the weather, as didn't do anything else that would likely trigger a flare

[Just-keep-swimming in reply to Hazel_Angelstar]

Its hard to know what's triggered a flare sometimes isn't it? x

[PinMartin]

Yes,pain better in the heat though felt awful,now the pain is worse and I keep reacting to any temperature change more severely than usual and definitely in a flare.

[Just-keep-swimming in reply to PinMartin]

It takes a while for me to pin point why I'm feeling worse or better. Not that the weather is something I can control but maybe I can prepare better when we are forecast the next heat wave. Rest more maybe and don't go out in the sun too much. I dunno....trying to get the upper hand on Fibro feels like an impossible task x

[Busymumma22]

Morning, I am in the same boat. My body wants to lay down and just sleep. I have weak arms hands and fingers, very achey shout and neck. I am unable to uncurl my fingers on my right hand and get a cramp in both hands throughout the day. It’s just not fair!! Hope you fell better soon take care x

[Just-keep-swimming in reply to Busymumma22]

Bless you. I can totally feel how fed up you are through your words. I hope feel some ease soon x

[Jeskin]

Hi I feel this too. Since the drop I’ve struggled with walking cos of the pain in and around my feet and ankles. I’m just so stiff when I stand. I have also been sleeping more.I suppose we all suffer different and have different ways of dealing with the fibro.

[Fibrofog]

I just seem to having one prolonged flare! I'm always tired legs are always horrid. Memory is non existent! Sorry can't be no help

[Just-keep-swimming in reply to Fibrofog]

It helps to just know someone else gets it. Feel better x

[fibrogirl41]

hi I have had a wobble last week after the hot weather. I had a bit of a dizzy spell and I was not able to do anything after Thursday because I had a lot of fatigue and floppyness and I felt sick and I was in my pj's for a few days. I hope you are feeling better x ☺️ ❤️

[Just-keep-swimming in reply to fibrogirl41]

Thank you. I hope you're doing better too x

[Midori]

Don't think my total exhaustion is down to a flare; I think mine's just plain old age!

Gets harder to get out of bed in the a.m., harder to walk, etc. brain fog is bad, and In general I'm feeling out of sorts, grumpy and Grrrr!

My legs swell like barrage balloons, and much as I'd love to get out and Do Things, Anything, I feel a bit like a stranded jellyfish!

Cheers, Midori

[Just-keep-swimming in reply to Midori]

Oh I totally feel where you're at. Especially when the sun is shining and everyone is out having a stroll in their little families and then there is us. Lying down, applying various balms and lotions and trying to stop our bottom lip wobbling. It does help that we can come on here and speak to each other though. x

[fmlife]

oh my the 40 Tuesday, We managed to keep the coolest room 20 degrees till sun got to the north started to go down, then it all got warm inside, heat gave me yawns and migraine started, when sun went down and eventually outside cooled, was so pleased to open the window between 1am and 4am just to let the warm air out. am always wearing an oversized jumper, it keeps me at a level temperature. even had to take it off Tuesday.

did sleep longer with heat and the switch around to night sleeping on wednesday night 4pm to 10am unfortunately learnt not moving for a very long time makes pain worse, fm is a balancing act, of keeping warm (Monday & Tuesday cool) and positive attitude, being kind to self.

Because the temperatures were so high had planned on sleeping during day, airing during night.

Hope the pain flare decreases for you soon

Gentle hugs

[Just-keep-swimming in reply to fmlife]

I've got a bit of a heatwave phobia now! Im still unable to go downstairs so I'm feeling pretty closed off from everything "normal". Its even crossed my mind to slide downstairs on my ironing board

[fmlife]

iron board surfing?

slipping down handrail?

6 wheel stair sack barrow doing a stig

genie magic carpet to float down,

abseiling probably painful

a skate board, electric winch and track.

Id go with the gentle bottom shuffles less chance of breaking something.

how would you get back up?

perhaps a a baby cam monitor may be less painful to keep involved down stairs.