Fibromyalgia Action UK

Why don't things work

Just adding something else.

I woke up this morning in lots of pain with my neck and legs, my legs are a new problem and was thinking, there are soo many of us with this, why doesn't anything work, I've tried so much, physio, massage, reflexology, chiro, exercise, therapy balls, foam rollers, cold packs, hot ones, acupuncture, tried drinking soy, eating different things, been on anti depressants, and so on and nothing helps. Soooooooo frustrating.

9 Replies

It one enormous club isnt it :D


Oh I so agree, my GP has retired and saw a new one yesterday and she was saying things like have to tried this and have you tried that and the answer is yes I have and sometimes more than once. Final thing was well lose weight - AHHH. I have even tried that and that did not work either. All that did was make it easier to buy clothes so spent a lot of money I did not have and never felt well enough to go out and wear them.

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I can sympathise I am a fully paid up member of the club, been there, worn the T shirt as they say.


I genuinely sympathise and empathise as we can all understand where you are coming from.

Hope you feel better soon.

Ken x


Read what i had to say robaxacet thats the answer i sure would like to know if it works for you too please but ask your doctor first


Have you tried LOw Dose Naltroxone(LDN). It can be prescribed 'off label' but most GPs will not prescribe it. [EDITED BY ADMIN]... Per FibroAction Guidelines ...... There is an LDN society run by. Linda Elsegood tel: no.0844 41 45 295. Hope you feel better soon.

Hi jam-es

I am very sorry but I have found the need to edit your post as it breached several of our guidelines.

Guidelines of FibroAction.HU

1. Members posting on the site should not be assumed to be health professionals

2. In posting about health or medical information outside of your immediate personal experience, show a clear distinction between personal experience or opinion and evidence-based information and be careful to not present information outside of your immediate personal experience as fact unless you can back it up with reputable evidence based information sources.

10. Promotion of commercial products & services is not allowed. You may refer to a product or commercial service by name as a useful resource but you must NOT post a link. You can invite people to use the message system to obtain the information from you if needed. Repeated posts about the same product may be considered promotion and could lead to posts being deleted or your account being restricted. Posting about helpful, supportive or informative resources that are freely available IS allowed and links can be given.

11. Do not post details of online pharmacies offering medication without prescriptions

I am also sending this to you as a Private message as well. If any members do want the information that I have deleted they must approach you via a 'Private Message' for this and not on the open forum.

Thank you for your understanding in this matter.

Ken (TheAuthor)

Volunteer Admin (FibroAction)


Hi jam-es

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and could I please ask you to familiarise yourself with the FibroAction guidelines, I have pasted you a link below:

I am aware of this treatment as it has been used to treat MS sufferers for quite a time but it is not without risk. I have pasted below some of the information from the MS UK website relating to LDN:

Special precautions

LDN should NOT be used at the same time as Morphine treatment or a derivative of Morphine.

On starting LDN the recent use of opiate analgesics will result in an opiate withdrawal syndrome with increased pain, muscle spasm and possible vomiting and diarrhoea. It is therefore advisable that any opiate analgesics be discontinued at least two weeks before starting LDN. These include drugs such as Co-Codamol, Oxycodone, Fentanyl and Buprenorphine Patches. Tramadol CAN be used; however, they must be taken 4-6 hours apart. The use of LDN at the same time as sustained release pain killers is NOT recommended.

When starting the treatment please report any untoward or adverse side-effects immediately so that the treatment process may be re-assessed and, if necessary, modified.

As a matter of interest their is an LDN forum on HealthUnlocked if anybody wishes to read about the treatment. There is a very long list of side effects for this treatment that are posted on the MSUK site if any member wishes to view them.

I would also like to say that "Off-label" means the medication is being used in a manner not specified in the FDA's approved packaging label, or insert. Every prescription drug marketed in the U.S. carries an individual, FDA-approved label. This label is a written report that provides detailed instructions regarding the approved uses and doses, which are based on the results of clinical studies that the drug maker submitted to the FDA.

I would strongly urge any member to discuss this medication with their GP before considering trying this.

Thank you

Ken (TheAuthor)

Volunteer Admin (FibroAction).


Thank you for your. Email. I am not a professional in any medical field but have found LDN to be very helpful in dealing with FMS symptoms. I came to hear. About LDN through joining our local support group and thought others may be able to benefit


Hi James i joined this November and it opens up a whole new world with different ailments,If you have found some med that works thats a bonus, and i'm pleased for you. With going support groups it will help with communication which so many lose that contact which is a shame. But you have got your self soughted and good luck for the future.



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